Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services?
Abstract
:1. Introduction
2. Materials and Methods
2.1. Participants
2.2. Materials
Definitions of General and High Level of Need for Dementia Care Services Based on the WHODAS 2.0-36-item
2.3. Data Analysis
2.3.1. Spatial Analysis
2.3.2. PWD and TLD Measurements: Indices of Accessibility of Services
3. Results
3.1. Characteristics of Service Users and Providers
3.2. Service Availability/Accessibility and Burden of Distance
4. Discussion
4.1. PWD & TLD vs. 2SFCA & E2SFCA
4.2. Policy Priorities When Setting up Dementia Services
5. Conclusions
Author Contributions
Funding
Acknowledgments
Conflicts of Interest
Appendix A
Variables | Cutoff Point | Sensitivity | Specificity | AUC | 95% Cl | p-Value | |
---|---|---|---|---|---|---|---|
Domain 1 | 77.50 | 0.657 | 0.584 | 0.659 | 0.649 | 0.668 | <0.001 * |
Domain 2 | 78.00 | 0.599 | 0.721 | 0.712 | 0.704 | 0.721 | <0.001 * |
Domain 3 | 55.00 | 0.546 | 0.714 | 0.659 | 0.649 | 0.668 | <0.001 * |
Domain 4 | 96.00 | 0.519 | 0.730 | 0.652 | 0.643 | 0.661 | <0.001 * |
Domain 5 | 95.00 | 0.754 | 0.477 | 0.623 | 0.614 | 0.632 | <0.001 * |
Domain 6 | 60.50 | 0.521 | 0.703 | 0.647 | 0.638 | 0.657 | <0.001 * |
Total | 66.50 | 0.669 | 0.630 | 0.704 | 0.695 | 0.713 | <0.001 * |
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Variables | Dementia Cases Living in the Community | Dementia Cases with General Demand a | Dementia Cases with High Level of Need b | p-Value ab | |
---|---|---|---|---|---|
n = 9704 | n = 6593 | n = 3111 | |||
n (%) | n (%) | n (%) | |||
Age (mean ± SD) | 78.22 ± 9.78 | 76.98 ± 9.93 | 82.10 ± 8.48 | <0.001 | |
21–30 | 5 (0.1) | 5 (0.1) | 0 | <0.001 | |
31–-40 | 30 (0.3) | 26 (0.4) | 4 (0.1) | ||
41–50 | 117 (1.2) | 102 (1.5) | 15 (0.5) | ||
51–60 | 403 (4.2) | 349 (5.3) | 54 (1.7) | ||
61–70 | 1181 (12.2) | 967 (14.7) | 214 (6.9) | ||
71–80 | 3432 (35.4) | 2553 (38.7) | 879 (28.3) | ||
81–90 | 3975 (41.0) | 2374 (36) | 1601 (51.5) | ||
91–100 | 553 (5.7) | 215 (3.3) | 338 (10.9) | ||
101–110 | 8 (0.1) | 2 (0.03) | 6 (0.2) | ||
Gender | Male | 3590 (37) | 2456 (37.3) | 1134 (36.5) | 0.446 |
Female | 6114 (63) | 4137 (62.7) | 1977 (63.5) | ||
Severity of Disability | Mild | 2729 (28.1) | 2526 (38.3) | 203 (6.5) | <0.001 |
Moderate | 3615 (37.3) | 2686 (40.7) | 929 (29.9) | ||
Severe | 734 (7.6) | 432 (6.6) | 302 (9.7) | ||
Extremely serious | 2626 (27.1) | 949 (14.4) | 2626(53.9) |
Score | Dementia Cases Living in the Community | Median | Dementia Cases with General Demand a | Median | Dementia Cases with High Level of Need b | Median | p-Value ab |
---|---|---|---|---|---|---|---|
n = 9704 | n = 6593 | n = 3111 | |||||
(mean ± SD) | (mean ± SD) | (mean ± SD) | |||||
Summary score | 65.74 ± 23.33 | 68.87 | 54.56 ± 19.60 | 56.52 | 89.43 ± 7.58 | 90.22 | <0.001 |
D1 Cognition | 72.13 ± 25.65 | 80.00 | 61.17 ± 23.89 | 60.00 | 95.35 ± 7.02 | 100 | <0.001 |
D2 Mobility | 60.61 ± 35.42 | 62.50 | 44.64 ± 31.62 | 43.75 | 94.45 ± 10.41 | 100 | <0.001 |
D3 Self-care | 57.70 ± 35.42 | 60.00 | 40.05 ± 29.16 | 40.00 | 95.11 ± 7.15 | 100 | <0.001 |
D4 Getting along | 70.47 ± 29.56 | 80.34 | 59.21 ± 28.86 | 58.33 | 94.35 ± 11.02 | 100 | <0.001 |
D5 Life activities | 83.06 ± 26.90 | 100.00 | 75.37 ± 29.45 | 90.00 | 99.37 ± 5.28 | 100 | <0.001 |
D6 Participation | 52.11 ± 25.74 | 50.0 | 43.33 ± 22.33 | 41.67 | 70.74 ± 22.36 | 75.00 | <0.001 |
City or County | Area | Providers a | Dementia Cases Living in the Community b | Dementia Cases with General Demand | Dementia Cases with High Level of Need | Ratio of Dementia Cases to Providers (b/a) |
---|---|---|---|---|---|---|
km2 | n (%) | |||||
Taipei City | 271.8 | 162 (9.1) | 1564 (16.1) | 996 (15.1) | 568 (18.3) | 9.65 |
New Taipei City | 2052.6 | 227 (12.7) | 1554 (16.0) | 1010 (15.3) | 544 (17.5) | 6.85 |
Keelung City | 132.8 | 38 (2.1) | 105 (1.1) | 81 (1.2) | 24 (0.8) | 2.76 |
Taoyuan City | 1221.0 | 102 (5.7) | 622 (6.4) | 409 (6.2) | 213 (6.9) | 6.10 |
Hsinchu County | 1427.5 | 48 (2.7) | 153 (1.6) | 84 (1.3) | 69 (2.2) | 3.19 |
Hsinchu City | 104.2 | 26 (1.5) | 90 (0.9) | 59 (0.9) | 31 (1.0) | 3.46 |
Miaoli County | 1820.3 | 41 (2.3) | 194 (2.0) | 122 (1.9) | 72 (2.3) | 4.73 |
Taichung City | 2214.9 | 149 (8.4) | 868 (8.9) | 563 (8.5) | 305 (9.8) | 5.83 |
Changhua County | 1074.4 | 90 (5.1) | 416 (4.3) | 292 (4.4) | 124 (4.0) | 4.62 |
Nantou County | 4106.4 | 42 (2.4) | 232 (2.4) | 178 (2.7) | 54 (1.7) | 5.52 |
Yunlin County | 1290.8 | 72 (4.0) | 388 (4.0) | 251 (3.8) | 137 (4.4) | 5.39 |
Chiayi County | 1903.6 | 54 (3.0) | 358 (3.7) | 261 (4.0) | 97 (3.1) | 6.63 |
Chiayi City | 60.0 | 40 (2.2) | 152 (1.6) | 103 (1.6) | 49 (1.6) | 3.80 |
Tainan City | 2191.7 | 169 (9.5) | 965 (9.9) | 719 (10.9) | 246 (7.9) | 5.71 |
Kaohsiung City | 2951.9 | 237 (13.3) | 1005 (10.4) | 737 (11.2) | 268 (8.6) | 4.24 |
Pingtung County | 2775.6 | 98 (5.5) | 394 (4.1) | 279 (4.2) | 115 (3.7) | 4.02 |
Yilan County | 2143.6 | 72 (4.0) | 263 (2.7) | 197 (3.0) | 66 (2.1) | 3.65 |
Hualien County | 4628.6 | 40 (2.2) | 181 (1.9) | 126 (1.9) | 55 (1.8) | 4.53 |
Taitung County | 3515.3 | 47 (2.6) | 123 (1.3) | 78 (1.2) | 45 (1.5) | 2.62 |
Penghu County | 126.9 | 13 (0.7) | 32 (0.3) | 20 (0.3) | 12 (0.4) | 2.46 |
Kinmen County | 151.7 | 9 (0.5) | 42 (0.4) | 27 (0.4) | 15 (0.5) | 4.67 |
Lienchiang County | 28.8 | 6 (0.3) | 3 (0.0) | 1 (0.0) | 2 (0.1) | 0.50 |
Total | 36,194.4 | 1782 (100) | 9704 (100) | 6593 (100) | 3111 (100) | 5.45 |
City or County | Providers a | Dementia Cases Living in the Community b | Dementia Cases with General Demand | Dementia Cases with High Level of Need for | |||
---|---|---|---|---|---|---|---|
n | PWD (m) | TLD (m) | PWD (m) | TLD (m) | PWD (m) | TLD (m) | |
Taipei City | 162 | 650 | 1200 | 350 | 1300 | - | 600 |
New Taipei City | 227 | 200 | 2200 | 200 | 1800 | - | 950 |
Keelung City | 38 | 300 | 1250 | - | - | - | 550 |
Taoyuan City | 102 | 200 | 3250 | 250 | 1850 | 150 | 2250 |
Hsinchu County | 48 | 200 | 1500 | 300 | 1200 | - | - |
Hsinchu City | 26 | 150 | - | - | 1200 | - | - |
Miaoli County | 41 | 150 | 2950 | 150 | 1000 | - | - |
Taichung City | 149 | 150 | 3000 | 150 | 3000 | 150 | 2150 |
Changhua County | 90 | 150 | 4750 | - | - | - | - |
Nantou County | 42 | 150 | 3650 | - | 4050 | - | - |
Yunlin County | 72 | - | 6250 | - | - | - | - |
Chiayi County | 54 | 300 | 1200 | 400 | 700 | - | - |
Chiayi City | 40 | 250 | - | 350 | - | 350 | - |
Tainan City | 169 | 350 | 1200 | 300 | 1450 | 450 | 4500 |
Kaohsiung City | 237 | 350 | 1600 | 300 | 1700 | 300 | 1600 |
Pingtung County | 98 | 150 | 3600 | 150 | 2950 | - | - |
Yilan County | 72 | 150 | 1200 | - | 1100 | - | - |
Hualien County | 40 | 600 | 1700 | 550 | 1650 | - | - |
Taitung County | 47 | - | 1300 | - | - | - | 900 |
Penghu County | 13 | - | - | - | - | - | - |
Kinmen County | 9 | - | - | - | - | - | - |
Lienchiang County | 6 | - | - | - | - | - | - |
The Status of PWD and TLD | All Dementia Cases | Dementia Cases with General Demand | Dementia Cases with High Level of Need | |||
---|---|---|---|---|---|---|
n | City or County | n | City or County | n | City or County | |
With both PWD and TLD | 15 | Taipei City | 11 | Taipei City | 4 | Taoyuan City |
New Taipei City | New Taipei City | Taichung City | ||||
Keelung City | Taoyuan City | Tainan City | ||||
Taoyuan City | Hsinchu County | Kaohsiung City | ||||
Hsinchu County | Miaoli County | |||||
Miaoli County | Taichung City | |||||
Taichung City | Chiayi County | |||||
Changhua County | Tainan City | |||||
Nantou County | Kaohsiung City | |||||
Chiayi County | Pingtung County | |||||
Tainan City | Hualien County | |||||
Kaohsiung City | ||||||
Pingtung County | ||||||
Yilan County | ||||||
Hualien County | ||||||
Only PWD | 2 | Hsinchu City | 1 | Chiayi City | 1 | Chiayi City |
Chiayi City | ||||||
Only TLD | 2 | Yunlin County | 3 | Hsinchu City | 4 | Taipei City |
Taitung County | Nantou County | New Taipei City | ||||
Yilan County | Keelung City | |||||
Taitung County | ||||||
Neither PWD nor TLD | 3 | Penghu County | 7 | Keelung City | 13 | Hsinchu County |
Kinmen County | Changhua County | Hsinchu City | ||||
Lienchiang County | Yunlin County | Miaoli County | ||||
Taitung County | Changhua County | |||||
Penghu County | Nantou County | |||||
Kinmen County | Yunlin County | |||||
Lienchiang County | Chiayi County | |||||
Pingtung County | ||||||
Yilan County | ||||||
Hualien County | ||||||
Penghu County | ||||||
Kinmen County | ||||||
Lienchiang County |
Year | 2005 | 2009 | 2009 | 2016 | 2015 | Present Study |
---|---|---|---|---|---|---|
Author(s) | Wang and Luo | McGrail and Humphreys | Luo and Qi | Kilinc et al. | Lin et al. | Yen & Lin |
Purpose | Assessing the accessibility of primary care in Illinois | Assessing the accessibility of primary care in rural areas in Victoria, Australia | Measuring the accessibility of primary care physicians | Assessing and measuring the accessibility and disparity in home care services | Developing new indices to compare nursing home care services in urban and rural areas | Using the PWD and TLD to examine the accessibility of dementia services and plan for resource allocation based on distributive justice |
Method | 2SFCA, factor analysis | 2SFCA, closest facility analysis (a tool of network analysis) | E2SFCA, spatial cluster analysis | Revised 2SFCA, spatial cluster analysis | Spatial autocorrelation, regression | Spatial autocorrelation, join point analysis |
Index used * | Moran’s I | PWD TLD | Revised PWD and TLD | |||
Index development & variables collected (level of complexity) | Spatial and non-spatial factors (e.g., individual’s age, gender, race, socioeconomic status and language skills) and characteristics of a population or area (e.g., land use, university graduation rate, ratio of single-parent families, state of unemployment, and ratio of occupational categories). Weighted factors are derived based on their eigenvalues and fuzzy logic. | Spatial (i.e., locations of service users and providers) and non-spatial factors (i.e., service availability, acuteness of service demand). The WHODAS 2.0 assessment results (as in the present study) or other measurements of health needs (target group). |
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Yen, C.-F.; Lin, S.-W. Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services? Int. J. Environ. Res. Public Health 2019, 16, 1754. https://doi.org/10.3390/ijerph16101754
Yen C-F, Lin S-W. Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services? International Journal of Environmental Research and Public Health. 2019; 16(10):1754. https://doi.org/10.3390/ijerph16101754
Chicago/Turabian StyleYen, Chia-Feng, and Shyang-Woei Lin. 2019. "Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services?" International Journal of Environmental Research and Public Health 16, no. 10: 1754. https://doi.org/10.3390/ijerph16101754
APA StyleYen, C. -F., & Lin, S. -W. (2019). Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services? International Journal of Environmental Research and Public Health, 16(10), 1754. https://doi.org/10.3390/ijerph16101754