Inclusive Research and the Use of Visual, Creative and Narrative Strategies in Spain
Abstract
:1. Introduction
2. Background
2.1. Inclusive Research
- “Research that aims to contribute to social change, helping to create a society in which excluded groups belong, and which aims to improve the quality of their lives.
- Research based on issues important to a group and which draws on their experiences to inform the research process and outcomes.
- Research which aims to recognise, foster, and communicate the contributions people with intellectual disabilities can make.
- Research that provides information which can be used by people with intellectual disabilities to campaign for change on behalf of others.
- Research in which those involved in it are ‘standing with’ those whose issues are being explored or investigated” (p. 758).
2.2. The Use of Visual and Narrative Strategies
3. Study Context
3.1. Methodology
3.2. Mediated Spaces of Reflection through Objects, Image-Theatre and Body-Mapping
“This makes me feel a bit embarrassed, because for me this is already a bit childish”. Finally, Elena (co-researcher) uncovered her object: “This is very important to me because it has photos of my first communion. That day was very important, I felt emotional, for me it is very important”.Belén (co-researcher): “My object is a letter (…) but it was a special moment for me because after many years of bullying, it was the first time, it was my first boyfriend, the first boy that paid attention to me… it brings back a nice memory”.(Field Notes, s2)
Susana (academic): What do you think the things we have done have been useful for?Belén: To get to know something about ourselves.Susana: How has it helped you?Ernesto (co-researcher): To know a bit more about the others.Susana: Nearly everyone has said important things. Why? We go through each of the objects and link them to people that have been or are important in our lives.(AudioRecording, s2)
Susana: We also said something about the interviews (…) What had we missed?Santi: Some things were missing!Mónica: We have to change questions 6 and 7, some of the terms.Santi: Terms, and a close to end the interview.Susana: (…) someone told us the questions were very difficult, we had to repeat them several times and give examples so that they would understand us. So those of us who were in the last session decided that Nacho and I should give the questions some more thought and come up with a proposal.(VRecording 12)
Susana: How do you see this activity and the questions we asked the interviewees?Ernesto: Good!Elena: Oh! I think it’s complicated.Santi: Would it be this activity?Susana: The interview would be the one we prepared together, but do you remember that some questions weren’t clear?Santi: Yes!Susana: So, we would do this in the middle: they would have to talk about a situation…Santi: Oh OK! But without the post-its or the figuresSusana: No, no! With the figures and the post-its, and later we would bring the 60 figures and 60 post-its, whatever…Santi: That would be great! But it’s going to be complicated to sort all that outElena: That’s right!(VRecording 12)
- –
- Share personal knowledge within the group.
- –
- Talk about the importance of looking after ourselves and others and, therefore, the need to know how to set limits.
- –
- Return to important issues, remembering work carried out so far.
- –
- Use personal experience to connect to social issues.
- –
- Debate complex topics, identify ways of thinking and being in different worlds.
- –
- Recognise the value of basic human rights.
- –
- Organise the process followed.
- –
- Share the research process followed or the work carried out with other people.
- –
- Question the ways in which we traditionally carry out research and the extent to which methods distance us from the people being interviewed or observed.
- –
- Continually reflect on the ways in which research limits and restricts our ability to talk, act and imagine.
4. Discussion of the Results
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
1 | INNOVATION NETWORKS FOR EDUCATIONAL AND SOCIAL INCLUSION. CO-LABORATORY OF INCLUSIVE PARTICIPATION (EDU2015-68617-C4-4-R) (MINECO/FEDER, UE). Director: Teresa Susinos Rada. |
2 | https://inclusionlab.unican.es (accessed on 27 March 2022). |
References
- Álvarez, Lucía, Ignacio Haya, Santiago Lastra, Elena Mijares, Susana Rojas, Ernesto Soberón, and Mónica Valverde. 2022. ‘La importancia de las relaciones sociales y la soledad’: Una investigación inclusiva desde la Universidad de Cantabria. Aprendizajes y propuestas para afrontar retos compartidos. In Investigación Inclusiva. Diez años de Trabajo con el Consejo Asesor del Grupo de Investigación en Diversidad de la Universitat de Girona, 1st ed. Edited by Díaz-Garolera. pp. 1–13. Available online: https://www.udg.edu/en/grupsrecerca/diversitat/publicacions (accessed on 27 March 2022).
- Aldridge, Jo. 2007. Picture this: The use of participatory photographic research methods with people with learning disabilities. Disability & Society 22: 1–17. [Google Scholar] [CrossRef]
- Bigby, Christine, Patsie Frawley, and Paul Ramcharan. 2014. Conceptualizing Inclusive Research with People with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities 27: 3–12. [Google Scholar] [CrossRef] [PubMed]
- Boal, Augusto. 1979. Theatre of the Oppressed. New York: Theatre Communications Group. [Google Scholar]
- Boal, Augusto. 2006. Aesthetics of the Oppressed. London: Routledge. [Google Scholar]
- Booth, Tim, and Wendy Booth. 1996. Sounds of silence: Narrative research with inarticulate subjects. Disability & Society 11: 5–69. [Google Scholar] [CrossRef]
- Booth, Tim, and Wendy Booth. 2003. In the Frame: Photovoice and mothers with learning difficulties. Disability & Society 18: 431–42. [Google Scholar] [CrossRef]
- Chalachanová, Anna, Melanie Nind, May Østby, Andrew Power, Liz Tilley, Jan Walmsley, Britt-Evy Westergård, Torill Heia, Alf Magne Gerhardsen, Ole Magnus Oterhals, and et al. 2020. Building Relationships in Inclusive Research in Diverse Contexts. Scandinavian Journal of Disability Research 22: 147–57. [Google Scholar] [CrossRef]
- Cluley, Victoria. 2016. Using photovoice to include people with profound and multiple learning disabilities in inclusive research. British Journal of Learning Disabilities 45: 39–46. [Google Scholar] [CrossRef] [Green Version]
- Dew, Angela, Susan Collings, Isabella Dillon Savage, Emma Gentle, and Leanne Dowse. 2019. “Living the life I want”: A framework for planning engagement with people with intellectual disability and complex support needs. Journal of Applied Research in Intellectual Disabilities 32: 401–12. [Google Scholar] [CrossRef]
- Ellis, Liz. 2018. Making decisions together? Exploring the decision-making process in an inclusive research project. Disability & Society 33: 454–75. [Google Scholar] [CrossRef]
- Englhart, Andreas. 2004. What is theatre image? Comments on the current discussion on the iconic turn and on the phenomenon of image theatre. Forum Modernes Theatre 19: 3–25. [Google Scholar]
- Fudge, Ann, Robert Wilton, and Nick Marquis. 2019. Building Collaboration in the Co-Production of Knowledge with People with Intellectual Disabilities about Their Everyday Use of City Space. Area 51: 415–18. [Google Scholar] [CrossRef]
- Fulcher, Gillian. 1995. Excommunicating the severely disabled: Struggles, policy and researching. In Making Difficulties. Research and the Construction of SEN, 1st ed. Edited by Peter Clough and Len Barton. London: Paul Chapman Publishing, vol. 1, pp. 6–23. [Google Scholar]
- Garbutt, Ruth, John Tattersall, Rachel Boycott-Garnett, and Jo Dunn. 2009. Accessible article: Involving people with learning disabilities in research. British Journal of Learning Disabilities 38: 21–34. [Google Scholar] [CrossRef]
- Gastaldo, Denise, Natalia Rivas-Quarneti, and Lilian Magalhães. 2018. Body-Map Storytelling as a Health Research Methodology: Blurred Lines Creating Clear Pictures. Forum Qualitative Social Research 19: 1–26. [Google Scholar] [CrossRef]
- Goddard, Jennifer. 2015. Valuing the Place of Young People with Learning Disabilities in the Arts. Child Care in Practice 21: 238–55. [Google Scholar] [CrossRef]
- Goodley, Dan, and Michele Moore. 2000. Doing disability research: Activist lives and the academy. Disability & Society 15: 861–82. [Google Scholar] [CrossRef]
- Haya-Salmón, Ignacio, and Susana Rojas-Pernia. 2021. Building a research team and selecting a research topic within the process of an inclusive research project in Spain. Journal of Applied Research in Intellectual Disabilities 34: 742–51. [Google Scholar] [CrossRef]
- Holt, Louise, Jayne Jeffries, Edward Hall, and Andrew Power. 2019. Geographies of co- Production: Learning from Inclusive Research Approaches at the Margins. Area 51: 390–95. [Google Scholar] [CrossRef]
- Ignagni, Esther, and Ann Fudge Schormans. 2016. Reimagining Parenting Possibilities: Towards Intimate Justice. Studies in Social Justice 10: 238–60. [Google Scholar] [CrossRef] [Green Version]
- Jager, Adèle de, Anna Tewson, Bryn Ludlow, and Katherine M. Boydell. 2016. Embodied Ways of Storying the Self: A Systematic Review of Body- Mapping. Forum: Qualitative Social Research 17: 1–31. [Google Scholar] [CrossRef]
- Kennedy, Lucille, and Gayle Brewer. 2014. Creative methodologies to enhance communication. British Journal of Learning Disabilities 44: 35–42. [Google Scholar] [CrossRef]
- Kim, Min Ah, Jaehee Yi, Laura Bradbury, Ki-Myung Han, Jieun Yang, and Jinseung Lee. 2021. A Photovoice Study: The life experiences of middle-aged adults with intellectual disabilities in Korea. Journal of Applied Research in Intellectual Disabilities 34: 852–65. [Google Scholar] [CrossRef]
- Krisson, Emma, Maria Qureshi, and Annabel Head. 2022. Adapting photovoice to explore identity expression amongst people with intellectual disabilities who have limited or no verbal communication. British Journal of Learning Disabilities 50: 41–51. [Google Scholar] [CrossRef]
- Mannay, Dan. 2016. Visual, Narrative and Creative Research Methods. New York: Routledge. [Google Scholar]
- Mannay, Dan. 2020. Artefacts, third objects, sandboxing and figurines in the doll’s house. In Visual Research Methods, 2nd ed. Edited by Luc Pauwels and Dawn Mannay. London: Sage Publications, vol. 1, pp. 322–32. [Google Scholar]
- Martínez, Ana. 2008. La antropología Visual. Madrid: Síntesis. [Google Scholar]
- Milner, Paul, and Patsie Frawley. 2019. From ‘On’ to ‘By’: People with Learning Disability Creating a Space for the Third Wave of Inclusive Research. Qualitative Research 19: 382–98. [Google Scholar] [CrossRef]
- Mooney, Fran, Nazia Rafique, and Liz Tilly. 2019. Getting involved in the community-What stops us? Findings from an inclusive research project. British Journal of learning Disabilities 47: 241–46. [Google Scholar] [CrossRef]
- Murray, Victoria. 2019. Co-Producing Knowledge: Reflections on Research on the Residential Geographies of Learning Disability. Area 51: 423–32. [Google Scholar] [CrossRef]
- Nind, Melanie, and Hilra Vinha. 2014. Doing Research Inclusively: Bridges to Multiple Possibilities in Inclusive Research. British Journal of Learning Disabilities 42: 102–9. [Google Scholar] [CrossRef]
- Nind, Melanie. 2014. What is Inclusive Research? London: Bloomsbury. [Google Scholar]
- Nind, Melanie. 2016. Inclusive Research as a Site for Lifelong Learning: Participation in Learning Communities. Studies in the Education of Adults 48: 23–37. [Google Scholar] [CrossRef] [Green Version]
- Pallisera, Maria, Carol Puyalto, Judith Fullana, Montserrat Vilà, and Raquel Martin. 2015. Una experiencia de investigación inclusiva. personas con discapacidad intelectual como asesoras en una investigación sobre transición a la vida adulta. Revista Iberoamericana de Educación 69: 147–66. [Google Scholar] [CrossRef]
- Perry, Adam J. 2012. A silent revolution: ‘Image Theatre’ as a system of decolonization. Research in Drama Education: The Journal of Applied Theatre and Performance 17: 103–19. [Google Scholar] [CrossRef]
- Rigano, Mariela. 2021. Teatro imagen. El valor político de la quietud y el silencio. Anagnórisis. Revista de Investigación Teatral 24: 266–97. [Google Scholar]
- Rojas-Pernia, Susana, and Josep Mª Sanahuja. 2011. The image as a relate: Video as a resource for listening to and giving voice to persons with learning disabilities. British Journal of Learning Disabilities 40: 31–36. [Google Scholar] [CrossRef]
- Rojas-Pernia, Susana, Ignacio Haya-Salmón, Santiago Lastra-Cagigas, and Lucía Álvarez Sáenz. 2020. The importance of social relationships and loneliness: An inclusive research project in Spain. British Journal of Learning Disabilities 48: 291–300. [Google Scholar] [CrossRef]
- Rojas-Pernia, Susana, and Ignacio Haya-Salmón. 2021. Inclusive research, learning disabilities, and inquiry and reflection as training tools: A study on experiences from Spain. Disability & Society 36: 978–98. [Google Scholar]
- Serrano, Araceli, Juan Carlos Revilla, and María Arnal. 2016. Narrar con imágenes: Entrevistas fotográficas en un estudio comparado de “resiliencia” social y resistencia ante la crisis. Empiria. Revista de Metodología de las Ciencias Sociales 35: 71–104. [Google Scholar]
- Sitter, Kathleen C., Amy C. Burke, Sheliza Ladhani, and Nicole Mallay. 2019. Supporting positive sexual health for persons with developmental disabilities: Stories about the right to love. British Journal of Learning Disabilities 47: 255–63. [Google Scholar] [CrossRef]
- Walmsley, Jan, and Kelley Johnson. 2003. Inclusive Research with People with Learning Disabilities. Past, Present and Futures. London: Jessica Kingsley Publishers. [Google Scholar]
- Walmsley, Jan, Iva Strnadová, and Kelley Johnson. 2018. The added value of inclusive research. Journal of Applied Research in Intellectual Disabilities 31: 751–59. [Google Scholar] [CrossRef]
Publisher’s Note: MDPI stays neutral with regard to jurisdictional claims in published maps and institutional affiliations. |
© 2022 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Rojas-Pernia, S.; Haya-Salmón, I. Inclusive Research and the Use of Visual, Creative and Narrative Strategies in Spain. Soc. Sci. 2022, 11, 154. https://doi.org/10.3390/socsci11040154
Rojas-Pernia S, Haya-Salmón I. Inclusive Research and the Use of Visual, Creative and Narrative Strategies in Spain. Social Sciences. 2022; 11(4):154. https://doi.org/10.3390/socsci11040154
Chicago/Turabian StyleRojas-Pernia, Susana, and Ignacio Haya-Salmón. 2022. "Inclusive Research and the Use of Visual, Creative and Narrative Strategies in Spain" Social Sciences 11, no. 4: 154. https://doi.org/10.3390/socsci11040154
APA StyleRojas-Pernia, S., & Haya-Salmón, I. (2022). Inclusive Research and the Use of Visual, Creative and Narrative Strategies in Spain. Social Sciences, 11(4), 154. https://doi.org/10.3390/socsci11040154