A Study Protocol for Applying User Participation and Co-Learning—Lessons Learned from the eBalance Project
Abstract
:1. Introduction
2. Methods and Participants
2.1. Ethical Considerations
2.2. The eBalance-Technology
2.3. Methodological Approach and Theoretical Framework
2.4. Data Collection and Analysis
3. Interactive Procedures
3.1. Organisation and Recruitment
3.2. Interactive Workshops
3.3. Between Workshop Activities
3.4. A Shared Study Report
4. Discussion
4.1. Combining the Appreciative Action and Reflection with Normalization Process Theory
4.2. Appreciative Inquiry, Interaction, and Participation Roles
“We older people do not want to be left behind”.
5. Conclusions
Acknowledgments
Author Contributions
Conflicts of Interest
Appendix A
Examples of Probing Questions Used for Reflections on Implementation Potential and Study Cooperation
- (A)
- What is important for you and/or persons you work with, to …A: 1Be ready to become engaged and test?Use it, even when you face uphill struggles and/or stress?Use it on a regular basis?Use it on a long-term basis as part of your activities in daily life/work-life?A: 2Experience support for the use of exergames?
- ○
- Which person(s) near you (in your organization) need to be involved and support your use?
- ○
- What instructions are needed?
- ○
- What kind of feed-back is needed?
- ○
- What kind of supportive communication is needed for discussions, advise and answering questions etc.?
A: 3Judge it is secure enough to use?Experience that it is suitable to use?A: 4Be convinced that using it gives good effect? - (B)
- What is important for you to …B: 1Be ready to be involved in the interaction?Continue participation?B: 2Get the opportunity to speak and be heard?B: 3Interact to facilitate sharing of experiences and knowledge?B: 4Improve the interaction?
References
- Larsen, L.H.; Schou, L.; Lund, H.H.; Langberg, H. The physical effect of exergames in healthy elderly—A systematic review. Games Health J. 2013, 2, 205–212. [Google Scholar] [CrossRef] [PubMed]
- Delbaere, K.; Close, J.C.; Heim, J.; Sachdev, P.S.; Brodaty, H.; Slavin, M.J.; Kochan, N.A.; Lord, S.R. A multifactorial approach to understanding fall risk in older people. J. Am. Geriatr. Soc. 2010, 58, 1679–1685. [Google Scholar] [CrossRef] [PubMed]
- Ganz, D.A.; Bao, Y.; Shekelle, P.G.; Rubenstein, L.Z. Will my patient fall? JAMA 2007, 297, 77–86. [Google Scholar] [CrossRef] [PubMed]
- Wagner, H.; Melhus, H.; Gedeborg, R.; Pedersen, N.L.; Michaelsson, K. Simply ask them about their balance—Future fracture risk in a nationwide cohort study of twins. Am. J. Epidemiol. 2009, 169, 143–149. [Google Scholar] [CrossRef] [PubMed]
- Karinkanta, S.; Piirtola, M.; Sievanen, H.; Uusi-Rasi, K.; Kannus, P. Physical therapy approaches to reduce fall and fracture risk among older adults. Nat. Rev. Endocrinol. 2010, 6, 396–407. [Google Scholar] [CrossRef] [PubMed]
- Nelson, M.E.; Rejeski, W.J.; Blair, S.N.; Duncan, P.W.; Judge, J.O.; King, A.C.; Macera, C.A.; Castaneda-Sceppa, C. Physical activity and public health in older adults: Recommendation from the american college of sports medicine and the american heart association. Circulation 2007, 116, 1094–1105. [Google Scholar] [CrossRef] [PubMed]
- Power, V.; Clifford, A. Characteristics of optimum falls prevention exercise programmes for community-dwelling older adults using the fitt principle. Eur. Rev. Aging Phys. Act. 2013, 10, 95–106. [Google Scholar] [CrossRef]
- Sherrington, C.; Whitney, J.C.; Lord, S.R.; Herbert, R.D.; Cumming, R.G.; Close, J.C. Effective exercise for the prevention of falls: A systematic review and meta-analysis. J. Am. Geriatr. Soc. 2008, 56, 2234–2243. [Google Scholar] [CrossRef] [PubMed]
- Shubert, T.E. Evidence-based exercise prescription for balance and falls prevention: A current review of the literature. J. Geriatr. Phys. Ther. 2011, 34, 100–108. [Google Scholar] [CrossRef] [PubMed]
- Mahoney, J.E.; Shea, T.A.; Przybelski, R.; Jaros, L.; Gangnon, R.; Cech, S.; Schwalbe, A. Kenosha county falls prevention study: A randomized, controlled trial of an intermediate-intensity, community-based multifactorial falls intervention. J. Am. Geriatr. Soc. 2007, 55, 489–498. [Google Scholar] [CrossRef] [PubMed]
- Yardley, L.; Bishop, F.L.; Beyer, N.; Hauer, K.; Kempen, G.I.; Piot-Ziegler, C.; Todd, C.J.; Cuttelod, T.; Horne, M.; Lanta, K.; et al. Older people’s views of falls-prevention interventions in six european countries. Gerontologist 2006, 46, 650–660. [Google Scholar] [CrossRef] [PubMed]
- McMahon, S.; Talley, K.M.; Wyman, J.F. Older people’s perspectives on fall risk and fall prevention programs: A literature review. Int. J. Older People Nurs. 2011, 6, 289–298. [Google Scholar] [CrossRef] [PubMed]
- Child, S.; Goodwin, V.; Garside, R.; Jones-Hughes, T.; Boddy, K.; Stein, K. Factors influencing the implementation of fall-prevention programmes: A systematic review and synthesis of qualitative studies. Implement. Sci. 2012, 7, 91. [Google Scholar] [CrossRef] [PubMed]
- Oettinger, G. Draft Blueprint: Digital Transformation of Health and Care for the Ageing Society; European Innovation Partnership on Active and Healthy Aging: Brussels, Belgium, 2016; p. 26. [Google Scholar]
- Pietrzak, E.; Cotea, C.; Pullman, S. Using commercial video games for falls prevention in older adults: The way for the future? J. Geriatr. Phys. Ther. 2014, 37, 166–177. [Google Scholar] [CrossRef] [PubMed]
- Van Diest, M.; Lamoth, C.J.; Stegenga, J.; Verkerke, G.J.; Postema, K. Exergaming for balance training of elderly: State of the art and future developments. J. Neuroeng. Rehabil. 2013, 10, 101. [Google Scholar] [CrossRef] [PubMed]
- Alhasan, H.; Hood, V.; Mainwaring, F. The effect of visual biofeedback on balance in elderly population: A systematic review. Clin. Interv. Aging 2017, 12, 487–497. [Google Scholar] [CrossRef] [PubMed]
- Bonnechere, B.; Jansen, B.; Omelina, L.; Van Sint Jan, S. The use of commercial video games in rehabilitation: A systematic review. Int. J. Rehabil. Res. 2016, 39, 277–290. [Google Scholar] [CrossRef] [PubMed]
- Skjaeret, N.; Nawaz, A.; Morat, T.; Schoene, D.; Helbostad, J.L.; Vereijken, B. Exercise and rehabilitation delivered through exergames in older adults: An integrative review of technologies, safety and efficacy. Int. J. Med. Inform. 2016, 85, 1–16. [Google Scholar] [CrossRef] [PubMed]
- Skjaeret, N.; Nawaz, A.; Ystmark, K.; Dahl, Y.; Helbostad, J.L.; Svanaes, D.; Vereijken, B. Designing for movement quality in exergames: Lessons learned from observing senior citizens playing stepping games. Gerontology 2015, 61, 186–194. [Google Scholar] [CrossRef] [PubMed]
- Hawley-Hague, H.; Boulton, E.; Hall, A.; Pfeiffer, K.; Todd, C. Older adults’ perceptions of technologies aimed at falls prevention, detection or monitoring: A systematic review. Int. J. Med. Inform. 2014, 83, 416–426. [Google Scholar] [CrossRef] [PubMed]
- Healey, F.; Monro, A.; Cockram, A.; Adams, V.; Heseltine, D. Using targeted risk factor reduction to prevent falls in older in-patients: A randomised controlled trial. Age Ageing 2004, 33, 390–395. [Google Scholar] [CrossRef] [PubMed]
- Wiklund Axelsson, S.; Nyberg, L.; Naslund, A.; Melander Wikman, A. The anticipated positive psychosocial impact of present web-based e-health services and future mobile health applications: An investigation among older Swedes. Int. J. Telemed. Appl. 2013, 2013, 509198. [Google Scholar] [CrossRef] [PubMed]
- Findahl, O. Svenskarna och internet 2013 (The Swedes and Internet 2013); Stiftelsen för Internetinfrastruktur: Stockholm, Sweden, 2013. (In Swedish) [Google Scholar]
- Murray, E.; Treweek, S.; Pope, C.; MacFarlane, A.; Ballini, L.; Dowrick, C.; Finch, T.; Kennedy, A.; Mair, F.; O’Donnell, C.; et al. Normalisation process theory: A framework for developing, evaluating and implementing complex interventions. BMC Med. 2010, 8, 63. [Google Scholar] [CrossRef] [PubMed]
- Hammersley, M.; Atkinson, P. Ethnography. Principles in Practice, 2nd ed.; Routledge: London, UK, 1995. [Google Scholar]
- Savage, J. Ethnography and health care. BMJ 2000, 321, 1400–1402. [Google Scholar] [CrossRef] [PubMed]
- Ghaye, T.; Melander-Wikman, A.; Kisare, M.; Chambers, P.; Bergmark, U.; Kostenius, C.; Lillyman, S. Participatory and appreciative action and reflection (PAAR)—Democratizing reflective practicies. Reflect. Pract. 2008, 9, 361–397. [Google Scholar] [CrossRef]
- May, C.; Murray, E.; Finch, T.; Mair, F.; Treweek, S.; Ballini, L.; Macfarlane, A.; Rapley, T. Normalization Process Theory On-Line Users’ Manual and Toolkit. Avaliable online: http://www.normalizationprocess.org (acessed on 19 September 2016).
- Gil-Gomez, J.A.; Llorens, R.; Alcaniz, M.; Colomer, C. Effectiveness of a wii balance board-based system (eBaViR) for balance rehabilitation: A pilot randomized clinical trial in patients with acquired brain injury. J. Neuroeng. Rehabil. 2011, 30. [Google Scholar] [CrossRef] [PubMed]
- Lange, B.; Flynn, S.; Proffitt, R.; Chang, C.Y.; Rizzo, A.S. Development of an interactive game-based rehabilitation tool for dynamic balance training. Top. Stroke Rehabil. 2010, 17, 345–352. [Google Scholar] [CrossRef] [PubMed]
- Ghaye, T. Reflective inquiry as participatory and appreciative action and reflection. In Handbook of Reflection and Reflective Inquiry. Mapping a Way of Knowing for Professional Reflective Inquiry; Lyons, N., Ed.; Springer: New York, NY, USA, 2010; pp. 553–569. [Google Scholar]
- May, C. Implementing, embedding and integreting parctices: An outline of normalization process theory. Sociology 2009, 43, 535–554. [Google Scholar] [CrossRef]
- Mays, N.; Pope, C. Qualitative research in health care. Assessing quality in qualitative research. BMJ 2000, 320, 50–52. [Google Scholar] [CrossRef] [PubMed]
- Åberg, A.C.; Frykberg, G.; Mellberg, N.; Halvorsen, K. Medio-lateral stability of sit-to-walk performance in older individuals with and without fear of falling. Gait Posture 2009, 4, 438–443. [Google Scholar] [CrossRef] [PubMed]
- Åberg, A.C.; Thorstensson, A.; Tarassova, O.; Halvorsen, K. Calculations of mechanisms for balance control during narrow and single-leg standing in fit older adults: A reliability study. Gait Posture 2011, 34, 352–357. [Google Scholar] [CrossRef] [PubMed]
- Ghaye, T. In what way can reflective practices enhance human flourishing? Reflect. Pract. 2010, 11, 1–7. [Google Scholar] [CrossRef]
- Thompson, N.; Pascal, J. Developing critically reflective practice. Reflect. Pract. 2015, 13, 311–325. [Google Scholar] [CrossRef]
- Bauman, Z.; May, T. Thinking Sociologically, 2nd ed.; Wiley-Blackwell: Oxford, UK, 2001; p. 208. [Google Scholar]
- Trajkovski, S.; Schmied, V.; Vickers, M.; Jackson, D. Implementing the 4D cycle of appreciative inquiry in health care: A methodological review. J. Adv. Nurs. 2013, 69, 1224–1234. [Google Scholar] [CrossRef] [PubMed]
- Rousseau, D.M. The ‘problem’ of the psychological contract considered. J. Organ. Behav. 1998, 19, 665–671. [Google Scholar] [CrossRef]
- Sachs, L. Vårdens Etnografi: Om Hälsa, Sjukdom och Vård I Sitt Kulturella Sammanhang (The Ethnography of Care: On Health, Disease and Care in Their Cultural Context); Team Offset: Malmö, Sweden, 1992. (In Swedish) [Google Scholar]
- Trost, J.; Levin, I. Att Förstå Vardagen (Understanding Everyday Life); Studentlitteratur: Lund, Sweden, 1999. (In Swedish) [Google Scholar]
- Ministry of Education and Research. The Swedish Higher Education Act, 2013:1117; Ministry of Education and Research, Sweden: Stockholm, Sweden, 1992.
- Doyle, M.; Timonen, V. Lessons from a community-based participatory research project: Older people’s and researchers’ reflections. Res. Aging 2010, 32, 244–263. [Google Scholar] [CrossRef]
- Bowen, D.J.; Kreuter, M.; Spring, B.; Cofta-Woerpel, L.; Linnan, L.; Weiner, D.; Bakken, S.; Kaplan, C.P.; Squiers, L.; Fabrizio, C.; et al. How we design feasibility studies. Am. J. Prev. Med. 2009, 35, 452–457. [Google Scholar] [CrossRef] [PubMed]
Senior Citizens | Women/Men | Motives for Participation * (n) |
---|---|---|
7/1 | Experience of balance problems due to dizziness, Parkinson’s disease, or stroke (5) | |
Experience of previous falls (2) | ||
Long history of exercising (1) | ||
Important with exercise support as the County Council has reduced resources (1) | ||
Rehabilitation Staff | ||
4/0 | Area of interest (2) | |
Can be useful in regular work (1) | ||
Development of own knowledge (1) | ||
Research Coordinators | ||
4/2 | Research interests: | |
Physical activity and health of older people (1) | ||
Geriatric care and rehabilitation (2) | ||
Balance, dizziness, and balance exercise (2) | ||
Human-computer interaction (1) | ||
Movement analysis (2) |
Interaction | Senior Citizens | Rehabilitation Staff | |
---|---|---|---|
First contact | Asked if interested in participation at a Senior Health Convention. Contact details collected. All showing interest in participation invited to an information meeting. | Cooperation contract with the head of the community care of older people. Information to managers of rehabilitation, which asked for participation interest and approved participation during working hours. Invitation to an information meeting for all Staff showing interest in participation. | |
Information meetings | Information about the study for Seniors at the local health centre, including the opportunity to sign the list of interest for participation. | Information about the study for Staff at the local health centre, including the opportunity to sign the list of interest for participation. | |
Leaflet | Study information for Seniors distributed at the information meeting, including a question for participation and contact details of the study coordinator. | Study information for Staff distributed at the information meeting, including a question for participation and contact details of the study coordinator. | |
List of Interest | Opportunity to sign the list of interest, including giving motive for participation, at the information meeting or later through contact with the study coordinator. | Opportunity to sign the list of interest, including giving motive for participation, at the information meeting or later through contact with the study coordinator. | |
Invitation | All 8 who met the inclusion criteria * were invited to participate. | All 4 who met the inclusion criteria ** were invited to participate. | |
Informed Consent | Informed consent according to the Swedish regulations of ethical vetting of research on humans was given at the first workshop. |
Interaction | Duration | Theme | Activity | PAAR-Type Reflective Inquiry |
---|---|---|---|---|
Work shop 1 | 1 day | Project Interaction | Interaction task: Pair-wise interview and presentation of participants Presentation: About this project and its interactive methodology, including group discussions Exergame * group work: Introduction, demonstration, and testing Summarising reflections in the whole group Presentation: Activity and health among older people and Homework introduction | Development of an appreciative gaze Reframing study aims Sharing new experiences and joint development of experienced-based knowledge Re-framing lived experiences Knowledge sharing to re-frame lived experiences and provide a basis for co-learning |
Home Work 1 | Meaningful activities in daily life? | List and reflect upon the question within 5 days, between WS1 and WS2 | Appreciative knowledge-sharing to generate shared understanding and meaning, and co-learning | |
Work shop 2 | 2 h | Fall-prevention and IT-based support | Presentation of project aims Homework follow-up Presentation: Fall-prevention supported by IT Group discussions (NPT based questions **) Summarising reflections in whole group | Reframing study aims to generate shared understanding and meaning around them See above Knowledge sharing to generate shared understanding and meaning and co-learning Building practical wisdom |
Work shop 3 | 2 h | Balance exercise and IT-support | Presentation and testing: Balance exercise Exergame group work, focusing on effective balance training Reflection: Think-peer-share Homework introduction | Knowledge-sharing to re-frame lived experiences and provide a basis for co-learning Sharing new experiences and joint development of experienced-based knowledge and practical wisdom |
Home Work 2 | 5 days | Views on IT-based support for balance exercise? | List and reflect upon the theme (question) within 5 days, between WS3 and WS4 | Knowledge sharing to generate shared understanding and meaning and co-learning as a base for building practical wisdom |
Work shop 4 | 1 day | User-needs and design requests | Presentation of project aims Movies: Fall-prevention in the home and Balance exercise Reflection: Think-peer-share Exercise-brake for improved balance Group-reflexions: Factors of importance for project interaction (NPT based questions **) followed by Whole-group reflection of the above, including ranking | Generate shared understanding and meaning around the study aims Sharing new experiences and joint development of experienced-based knowledge and practical wisdom Same as above Appreciative knowledge sharing to generate shared understanding and meaning “Demonstrating achievement”—initiation |
Home Work 3 | 3 weeks | Views on project interaction? | List and reflect upon the theme (question) within 5 days, between WS4 and WS5 | Appreciative knowledge sharing for building practical wisdom and demonstrating achievement |
Work shop 5 | 2.5 h | What we have learned | Presentation of a summary of achievements Reflection: Think-peer-share Summarising reflections in the whole group | Building practical wisdom to demonstrate achievements |
Shared Study report | Our interactive work and what we together achieved | Sharing drafts of the report between participants Considering feedback from all participants Sharing the final printed report between all participants | Demonstrating achievements as basis for moving forward |
© 2017 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
Share and Cite
Åberg, A.C.; Halvorsen, K.; From, I.; Bruhn, Å.B.; Oestreicher, L.; Melander-Wikman, A. A Study Protocol for Applying User Participation and Co-Learning—Lessons Learned from the eBalance Project. Int. J. Environ. Res. Public Health 2017, 14, 512. https://doi.org/10.3390/ijerph14050512
Åberg AC, Halvorsen K, From I, Bruhn ÅB, Oestreicher L, Melander-Wikman A. A Study Protocol for Applying User Participation and Co-Learning—Lessons Learned from the eBalance Project. International Journal of Environmental Research and Public Health. 2017; 14(5):512. https://doi.org/10.3390/ijerph14050512
Chicago/Turabian StyleÅberg, Anna Cristina, Kjartan Halvorsen, Ingrid From, Åsa Bergman Bruhn, Lars Oestreicher, and Anita Melander-Wikman. 2017. "A Study Protocol for Applying User Participation and Co-Learning—Lessons Learned from the eBalance Project" International Journal of Environmental Research and Public Health 14, no. 5: 512. https://doi.org/10.3390/ijerph14050512
APA StyleÅberg, A. C., Halvorsen, K., From, I., Bruhn, Å. B., Oestreicher, L., & Melander-Wikman, A. (2017). A Study Protocol for Applying User Participation and Co-Learning—Lessons Learned from the eBalance Project. International Journal of Environmental Research and Public Health, 14(5), 512. https://doi.org/10.3390/ijerph14050512