Dependency and Care: Perspectives from the Point of View of Professionals Assessing Situations of Dependency in Spain
Abstract
:1. Introduction
2. Methods
2.1. Study Design
2.2. Sample and Data Collection
2.3. Data Analysis
2.4. Ethical Considerations
3. Results
3.1. Benefits of the Dependency Act in Extremadura
“in addition to what has been achieved at a broader level, such as the recognition of a subjective right and the protection that this entails, in our region, what has been achieved is, above all, to provide care in the territory, in the people’s homes, in their place of origin, their living, social care environment,… because some people are in a different type of care service, to bring resources closer, services that previously were provided by the will of x association or organization, rather subject to solidarity, not simply because the recognition of a right”.(I13)
3.2. Implementation Difficulties
“I tell people that it is like a just-born child, you give them all your love and all of a sudden you stop feeding them”.(I1)
“we cannot deny it comes late, through excessive bureaucracy, and that, moreover, it comes through an assessment that is not sensitive enough”.(I1)
“I think that people suffering from mental restrictions, or limitations, or deficiencies are especially affected. The scale is not well designed there (…), people with mental illness are completely unprotected against the scale we use, whatever they say”.(I9)
“all the tools designed to identify needs are not sensitive to many key aspects in people’s lives: their social context, their life course, any previous access or non-access to other resources. But on top of that, that tool is not capable of measuring the transformation that the Act itself or the resources made available to that citizen, the capacity it has to improve quality of life”.(I4)
“when people ask for the Dependency Act, they do it with an aim in mind, with an idea, that sometimes is something that makes no sense, that other times comes with much concern, with great need, How can I walk away without telling them? You know? And, off you go home because you have to make the more the better. As there is only a handful of us, let’s do it very quickly. Besides, assessments are often really difficult to make”.(I1)
“…in a community where you have no resources, you have no businesses and you have no services… You have to give what you have. And what is it that you have? People at home. People at home caring for others. Women at home caring for their parents or their children or their siblings”.(I3)
“The Act planned a study of each person, considering their health conditions, their functional capacity, their social and family situation, and provides an economic or other benefit (attendance, rehabilitation) specifically for you. But it has come to nothing. Well, are you dependent? Alright then. Choose between this, this, and this. No, not this because you do not meet the requirement. Between this and this. Because I cannot afford this. Ahhh. You get this. But this does not suit me. So there is nothing else. Come on. If you get worse ask for a review”.(I4)
“I think that there should be much more focus on promotion of personal autonomy. For me, this is deficient. We see people with a Degree I and we know and report that they should review the file in the future because without rehabilitation and without promotion of personal autonomy they are going to get worse, unless they go to private resources to get it where people can privately pay for their services”.(I8)
3.3. Dependency in Times of Crisis: the Impact of the Royal Decree/Law 20/2012.
“it was not a repeal, but it was, virtually, of a very important part… and what is taken away is very hard to get back. And there we are now (…), no-one could ever imagine that someone could be denied the right to go to a school or receive education for two years because, since we do not have a budget for it, you have to wait there”.(I13)
“… when they removed Degree I and then until 2015, that was the worst thing. Because, of course, Degree I was not included until 2015 and they only included, and they are still negotiating Degree I from 2009 and 2010. Because those with Degree I, you negotiate them, but you leave them a review sheet because they are all worse off”.(I10)
“… if you have economic resources you will be able to access certain services because you are going to pay for them yourself, otherwise… if in addition, certain services should help you from increasing this situation of dependence and to improve the quality of life,… at least you are going to stay the same”.(I5)
“the dependency has been used to solve all the problems of the rest of the services, social services, mental health, disability, well, what a mess”.(I5)
“… obviously the DAS I think it is not a tool designed to be an access filter to services. By no means. But it is true that it is in the interest of all autonomous regions that dependent people access it because of the way it is designed. Maybe the problem is the method of financing and that this does not condition the access to certain services”.(I13)
4. Discussion
5. Conclusions
Author Contributions
Funding
Conflicts of Interest
References
- De la Fuente Robles, Y.; Sotomayor Morales, E. The Spanish Long-Term Care System in the European Context. Arbor 2015, 191, 206. [Google Scholar] [CrossRef] [Green Version]
- Ruiz-Adame Reina, M.; Correa, M.; Burton, K. The Opportunity Costs of Caring for People with Dementia in Southern Spain. Gac. Sanit. 2019, 33, 17–23. [Google Scholar] [CrossRef] [PubMed]
- Sosvilla Rivero, S.; Moral Arce, I. Estimación de Los Beneficiarios de Prestaciones de Dependencia En España y Del Gasto Asociado a Su Atención Para 2007–2045. Gac. Sanit. 2011, 25, 66–77. [Google Scholar] [CrossRef] [Green Version]
- Serrano Pascual, A.; Artiaga Leiras, A.; Dávila de León, M.C. Crisis de Los Cuidados, Ley de Dependencia y Confusión Semántica. Rev. Int. Sociol. 2013, 71, 669–694. [Google Scholar] [CrossRef]
- Comisión Para el Análisis de la Situación del Sistema de Dependencia. Informe de La Comisión Para El Análisis de La Situación Actual Del Sistema de La Dependencia, de Su Sostenibilidad y de Los Actuales Mecanismos de Financiación, Para Evaluar Su Adecuación a Las Necesidades Asociadas a La Dependencia; Ministerio de Sanidad, Consumo y Bienestar Social: Madrid, Spain, 2017. [Google Scholar]
- Comas D’Argemir, D. Long Term Care, and the Fourth Pillar of the Welfare State. Rev. Antropol. Soc. 2015, 24, 375–404. [Google Scholar]
- Camacho, J.A.; Rodriguez, M.; Hernández, M. El Sistema de Atención a La Dependencia En España: Evaluación y Comparación Con Otros Países Europeos. Cuad. Geográficos 2008, 42, 37–52. [Google Scholar]
- Masana, L. Cuidados Informales de Larga Duración En España: Retos, Miradas y Soluciones. Salud Colect. 2017, 13, 337–352. [Google Scholar] [CrossRef]
- Tapia Granados, J.A. The Economic Crisis and Health in Spain and Europe: Is Mortality Increasing? Salud Colect. 2014, 10, 81–91. [Google Scholar] [CrossRef]
- Montserrat Codorniu, J. Impactos de Las Medidas de Estabilidad Presupuestaria En El Sistema de Autonomía y Atención a La Dependencia: Retos Del Futuro. Zerb. Gizarte Zerb. Aldizkaria Rev. Serv. Soc. 2015, 60, 9–30. [Google Scholar] [CrossRef]
- Albarrán Lozano, I.; Alonso González, P.; Bolancé Losillas, C. Comparación de Los Baremos Español, Francés y Alemán Para Medir La Dependencia de Las Personas Con Discapacidad y Sus Prestaciones. Rev. Esp. Salud Publica 2009, 83, 379–392. [Google Scholar] [CrossRef] [Green Version]
- Maestro González, M.B.; Martín Marín, C.; Hernández Blanco, R.; Izquierdo Narganes, L.; Vallejo de la Gala, P. Repercusión de La Implantación de La Ley de Dependencia Sobre Los Profesionales de Enfermería. Metas Enfermería 2010, 13, 62–67. [Google Scholar]
- Callado, J.R. La Población Dependiente En España y Su Distribución Por Grados Según El Baremo de Valoración de La Dependencia. Estimación y Comparación Con La Población Reconocida. Gestión y Análisis Políticas Públicas 2013, 9, 48–64. [Google Scholar] [CrossRef] [Green Version]
- Holsti, O.R. Content Analysis for the Social Sciences and Humanities; Longman Higher Education: Jersey City, NJ, USA, 1969. [Google Scholar]
- Ortí, A. En El Margen Del Centro: La Formación de La Perspectiva Sociológica Crítica de La Generación de 1956. Rev. Española Sociol. 2001, 1, 119–163. [Google Scholar]
- Denzin, N.K.; Lincoln, Y.S. El Campo de La Investigación Cualitativa; Gedisa: Barcelona, Spain, 2012. [Google Scholar]
- Creswell, J.W. Qualitative Inquiry & Research Design: Choosing among Five Approaches, 3rd ed.; SAGE: Thousand Oaks, CA, USA, 2013. [Google Scholar]
- Carpenter, C.; Suto, M. Qualitative Research for Occupational and Physical Therapists: A Practical Guide; Blackwell Pub: New York, NY, USA, 2008. [Google Scholar]
- Giorgi, A. The Theory, Practice, and Evaluation of the Phenomenological Method as a Qualitative Research Procedure. J. Phenomenol. Psychol. 1997, 28, 235–260. [Google Scholar] [CrossRef]
- Tong, A.; Sainsbury, P.; Craig, J. Consolidated Criteria for Reporting Qualitative Research (COREQ): A 32-Item Checklist for Interviews and Focus Groups. Int. J. Qual. Health Care 2007, 19, 349–357. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Martínez-Pérez, J.E.; Sánchez-Martínez, F.I.; Abellán, J.M. Impacto de La Ley de Dependencia Sobre El Gasto Autonómico En Servicios Sociales. Gac. Sanit. 2018, 34. [Google Scholar] [CrossRef] [PubMed]
- Camacho Ballesta, J.A.; Ruiz Peñalver, S.M.; Miguela Recover, M.Á. La Atención a Las Personas En Situación de Dependencia Como Yacimiento de Empleo En Tiempos de Crisis: El Caso Español. Cuad. Relac. Laborales 2015, 33, 169–188. [Google Scholar] [CrossRef] [Green Version]
- Martínez-Buján, R. Los Modelos Territoriales de Organización Social Del Cuidado a Personas Mayores En Los Hogares Regional Models of Social Organization of In-Home Care for the Elderly Palabras Clave. Reis. Rev. Esp. Investig. Sociol. 2014, 145, 210–5233. [Google Scholar] [CrossRef]
- García Paredes, C.; Nieto Masot, A. La Organización de La Atención Sociosanitaria a Las Personas Mayores En Extremadura. Investig. Geográficas 2015, 63, 161–178. [Google Scholar] [CrossRef] [Green Version]
- Beitia, R.; Pardavila, B. La Ley de Dependencia: Costes Reales y Financiación Total Durante El Periodo 2012–2015. Rev. Española Discapac. 2016, 4, 189–204. [Google Scholar] [CrossRef] [Green Version]
- Marbán Gallego, V. Actores Sociales y Desarrollo de La Ley de Dependencia En España. Rev. Int. Sociol. 2012, 70, 375–398. [Google Scholar] [CrossRef] [Green Version]
- Correa, M.; Jiménez-Aguilera, J.d.D. Sombras y Sombras En La Aplicación de La Ley de Dependencia. Gac. Sanit. 2016, 30, 77–80. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Sobrino Calzado, T.; Rodríguez Pulido, F.; Vallespí Cantabrana, A.M.; López Álvarez, M.; López Gómez, D.; Rodríguez González, A.; San Pío Tendero, M.J.; Simón Expósito, M.; Uriarte Uriarte, J.J.; Villegas Mirando, F.; et al. Impacto de La & quot; Ley de Promoción de La Autonomía Personal y Atención a Las Personas En Situación de Dependencia & quot; En Las Personas Con Trastorno Mental Grave. Rev. la Asoc. Española Neuropsiquiatría 2012, 32, 329–348. [Google Scholar]
- Martínez Buján, R. El Trabajo Doméstico Cuenta! Características y Transformaciones del Servicio Doméstico en España. Migraciones 2014, 36. [Google Scholar] [CrossRef] [Green Version]
- Mayobre, P.; Vazquez, I. The Cost of Care: An Analysis of Care from the Gender Perspective. Rev. Esp. Investig. Sociol. 2015, 151, 83–100. [Google Scholar]
- Zueras, P.; Spijker, J.; Blanes, A. Evolución Del Perfil de Los Cuidadores de Personas de 65 y Más Años Con Discapacidad En La Persistencia de Un Modelo de Cuidado Familiar. Rev. Esp. Geriatr. Gerontol. 2018, 53, 66–72. [Google Scholar] [CrossRef]
- Cheng, S.T.; Mak, E.P.M.; Lau, R.W.L.; Ng, N.S.S.; Lam, L.C.W. Voices of Alzheimer Caregivers on Positive Aspects of Caregiving. Gerontologist 2016, 56, 451–460. [Google Scholar] [CrossRef] [Green Version]
- Recio Cáceres, C.; Moreno Colom, S.; Borràs Català, V.; Torns Martín, T. La Profesionalización Del Sector de Los Cuidados. Zerbituan Diciembre 2015, 60, 179–193. [Google Scholar] [CrossRef] [Green Version]
- Deusdad, B.A.; Comas-d’Argemir, D.; Dziegielewski, S.F. Restructuring Long-Term Care in Spain: The Impact of The Economic Crisis on Social Policies and Social Work Practice. J. Soc. Serv. Res. 2016, 42, 246–262. [Google Scholar] [CrossRef]
- Montserrat-Codorniú, J.; Montejo, I. El Copago En La Ley de Promoción de La Autonomía Personal y Atención a Las Personas En Situación de Dependencia. Análisis Medidas Introducidas Resolución 2013, 13, 252–258. [Google Scholar]
- Martínez López, J.Á.; Frutos Balibrea, L.; Solano Lucas, J.C.; Lucas, J.C.S. Los Usos de La Prestaciones Económicas de La Dependencia En El Municipio de Murcia. Un Estudio de Caso. Rev. Española Sociol. 2017, 26, 97–113. [Google Scholar] [CrossRef]
Participant | Gender | Type of Population |
---|---|---|
I1 | Woman | Rural |
I2 | Woman | Rural |
I3 | Man | Rural |
I4 | Woman | Rural |
I5 | Woman | Rural/Urban |
I6 | Woman | Rural/Urban |
I7 | Man | Urban |
I8 | Woman | Rural |
I9 | Man | Rural/Urban |
I10 | Woman | Rural |
I11 | Woman | Rural/Urban |
I12 | Woman | Urban |
I13 | Man | Urban |
I14 | Woman | Rural/Urban |
I15 | Man | Rural |
I16 | Woman | Rural |
● How do you rate the implementation of the Dependency Act in Extremadura? |
● In your opinion, what aspects can be improved in the implementation of the Dependency Act in Extremadura? |
● What is the situation of dependent people and their families in the territory where you make assessments? |
● What are the future challenges for the care of dependent persons and their families? |
● How does the DAS assess dependency in different health and/or disability conditions? * |
© 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
Share and Cite
Cantero-Garlito, P.A.; Flores-Martos, J.A.; Moruno-Miralles, P. Dependency and Care: Perspectives from the Point of View of Professionals Assessing Situations of Dependency in Spain. Int. J. Environ. Res. Public Health 2020, 17, 1178. https://doi.org/10.3390/ijerph17041178
Cantero-Garlito PA, Flores-Martos JA, Moruno-Miralles P. Dependency and Care: Perspectives from the Point of View of Professionals Assessing Situations of Dependency in Spain. International Journal of Environmental Research and Public Health. 2020; 17(4):1178. https://doi.org/10.3390/ijerph17041178
Chicago/Turabian StyleCantero-Garlito, Pablo A., Juan Antonio Flores-Martos, and Pedro Moruno-Miralles. 2020. "Dependency and Care: Perspectives from the Point of View of Professionals Assessing Situations of Dependency in Spain" International Journal of Environmental Research and Public Health 17, no. 4: 1178. https://doi.org/10.3390/ijerph17041178
APA StyleCantero-Garlito, P. A., Flores-Martos, J. A., & Moruno-Miralles, P. (2020). Dependency and Care: Perspectives from the Point of View of Professionals Assessing Situations of Dependency in Spain. International Journal of Environmental Research and Public Health, 17(4), 1178. https://doi.org/10.3390/ijerph17041178