Affiliate Stigma in Caregivers of Children with Attention-Deficit/Hyperactivity Disorder: The Roles of Stress-Coping Orientations and Parental Child-Rearing Styles
Abstract
:1. Introduction
1.1. Affiliate Stigma in Caregivers of Children with Attention-Deficit/Hyperactivity Disorder
1.2. Coping Orientations and Affiliate Stigma
1.3. Parental Child-Rearing Styles and Affiliate Stigma
1.4. Aims of the Present Study
2. Methods
2.1. Participants and Procedure
2.2. Measures
2.2.1. Affiliate Stigma Scale
2.2.2. Coping Orientation to Problems Experienced (COPE)
2.2.3. Chinese Version of the Caregiver-Reported Parental Bonding Instrument (PBI)
2.2.4. Child Behavior Checklist for Ages 6–18
2.2.5. Center for Epidemiological Study-Depression Scale
2.2.6. Demographic Characteristics
2.3. Statistical Analysis
3. Results
4. Discussion
4.1. Coping Orientations and Affiliate Stigma
4.2. Parental Child-Rearing Styles and Affiliate Stigma
4.3. Implication
4.4. Limitations
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
- Mak, W.W.; Cheung, R.Y.M. Affiliate stigma among caregivers of people with intellectual disability or mental illness. J. Appl. Res. Intellect Disabil. 2008, 21, 532–545. [Google Scholar] [CrossRef]
- Chang, C.C.; Chen, Y.M.; Liu, T.L.; Hsiao, R.C.; Chou, W.J.; Yen, C.F. Affiliate stigma and related factors in family caregivers of children with attention-deficit/hyperactivity disorder. Int. J. Environ. Res. Public Health 2020, 17, 576. [Google Scholar] [CrossRef] [Green Version]
- Charbonnier, E.; Caparos, S.; Trémolière, B. The role of mothers’ affiliate stigma and child’s symptoms on the distress of mothers with ADHD children. J. Ment. Health 2019, 28, 282–288. [Google Scholar] [CrossRef] [PubMed]
- Mikami, A.Y.; Chong, G.K.; Saporito, J.M.; Na, J.J. Implications of parental affiliate stigma in families of children with ADHD. J. Clin. Child. Adolesc. Psychol. 2015, 44, 595–603. [Google Scholar] [CrossRef] [Green Version]
- Chen, Y.L.; Chang, C.C.; Chen, Y.M.; Liu, T.L.; Hsiao, R.C.; Chou, W.J.; Yen, C.F. Association between affiliate stigma and depression and its moderators in caregivers of children with attention-deficit/hyperactivity disorder. J. Affect. Disord. 2021, 279, 59–65. [Google Scholar] [CrossRef]
- Bronfenbrenner, U. The Ecology of Human Development: Experiments by Nature and Design; Harvard University Press: Cambridge, MA, USA, 1979. [Google Scholar]
- Lazarus, R.S. Coping theory and research: Past, present, and future. Psychosom. Med. 1993, 55, 234–247. [Google Scholar] [CrossRef] [PubMed]
- Baker, J.P.; Berenbaum, H. Emotional approach and problem-focused coping: A comparison of potentially adaptive strategies. Cognit. Emot. 2007, 21, 95–118. [Google Scholar] [CrossRef]
- Carver, C.S.; Scheier, M.F.; Weintraub, J.K. Assessing coping strategies: A theoretically based approach. J. Pers Soc. Psychol. 1989, 56, 267–283. [Google Scholar] [CrossRef]
- Compas, B.E.; Connor-Smith, J.K.; Saltzman, H.; Thomsen, A.H.; Wadsworth, M.E. Coping with stress during childhood and adolescence: Problems, progress, and potential in theory and research. Psychol. Bull. 2001, 127, 87–127. [Google Scholar] [CrossRef]
- Wilson, G.S.; Pritchard, M.E.; Revalee, B. Individual differences in adolescent health symptoms: The effects of gender and coping. J. Adolesc. 2005, 28, 369–379. [Google Scholar] [CrossRef]
- Tilahun, D.; Hanlon, C.; Fekadu, A.; Tekola, B.; Baheretibeb, Y.; Hoekstra, R.A. Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: A cross-sectional facility-based survey. BMC Health Serv. Res. 2016, 16, 1383–1389. [Google Scholar] [CrossRef] [Green Version]
- Wong, C.C.Y.; Mak, W.W.S.; Liao, K.Y.-H. Self-compassion: A potential buffer against affiliate stigma experienced by parents of children with autism spectrum disorders. Mindfulness 2016, 7, 1385–1395. [Google Scholar] [CrossRef]
- Yang, X. No matter how I think, it already hurts. J. Intellect Disabil. 2015, 19, 367–380. [Google Scholar] [CrossRef]
- Ngo, H.; Shin, J.; Nhan, N.; Yang, L. Stigma and restriction on the social life of families of children with intellectual disabilities in Vietnam. Singap. Med. J. 2012, 53, 451–457. [Google Scholar]
- Werner, S.; Shulman, C. Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? J. Intellect Disabil. Res. 2015, 59, 272–283. [Google Scholar] [CrossRef]
- Parker, G. Parental characteristics in relation to depressive disorders. Br. J. Psychiatry 1979, 134, 138–147. [Google Scholar] [CrossRef]
- Cox, B.J.; Enns, M.W.; Clara, I.P. The Parental Bonding Instrument: Confirmatory evidence for a three-factor model in a psychiatric clinical sample and in the National Comorbidity Survey. Soc. Psychiatry Psychiatr. Epidemiol. 2000, 35, 353–357. [Google Scholar] [CrossRef]
- Gau, S.S. Parental and family factors for attention-deficit hyperactivity disorder in Taiwanese children. Aust. N. Z. J. Psychiatry 2007, 41, 688–696. [Google Scholar] [CrossRef]
- Gau, S.S.; Chang, J.P. Maternal parental styles and mother-child relationship among adolescents with and without persistent attention-deficit/hyperactivity disorder. Res. Dev. Disabil. 2013, 34, 1581–1594. [Google Scholar] [CrossRef]
- American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders, 5th ed.; American Psychiatric Association: Washington, DC, USA, 2013. [Google Scholar]
- Chang, C.C.; Su, J.A.; Tsai, C.S.; Yen, C.F.; Liu, J.H.; Lin, C.Y. Rasch analysis suggested three unidimensional domains for Affiliate Stigma Scale: Additional psychometric evaluation. J. Clin. Epidemiol. 2015, 68, 674–683. [Google Scholar] [CrossRef]
- Gau, S.S.; Shen, H.Y.; Chou, M.C.; Tang, C.S.; Chiu, Y.N.; Gau, C.S. Determinants of adherence to methylphenidate and the impact of poor adherence on maternal and family measures. J. Child. Adolesc. Psychopharmacol. 2006, 16, 286–297. [Google Scholar] [CrossRef]
- Wong, C.K.; Chen, Y.M.; Yen, C.F. Associations of parental bonding and adolescent internet addiction symptoms with depression and anxiety in parents of adolescents with attention deficit/hyperactivity disorder. Arch. Clin. Psychiatry 2019, 46, 40–43. [Google Scholar] [CrossRef] [Green Version]
- Gau, S.S.; Chiu, Y.N.; Soong, W.T.; Lee, M.B. Parental characteristics, parenting style, and behavioral problems among Chinese children with Down syndrome, their siblings and controls in Taiwan. J. Formos. Med. Assoc. 2008, 107, 693–703. [Google Scholar] [CrossRef] [Green Version]
- Chen, Y.L.; Chen, S.H.; Gau, S.S. ADHD and autistic traits, family function, parenting style, and social adjustment for Internet addiction among children and adolescents in Taiwan: A longitudinal study. Res. Dev. Disabil. 2015, 39, 20–31. [Google Scholar] [CrossRef]
- Achenbach, T.M.; McConaughy, S.H.; Howell, C.T. Child/adolescent behavioral and emotional problems: Implications of cross-informant correlation for situational specificity. Psychol. Bull. 1987, 101, 213–232. [Google Scholar] [CrossRef]
- Achenbach, T.M.; Rescorla, L.A. Manual for the ASEBA School-Age Forms & Profiles; University of Vermont, Research Center for Children, Youth, and Families: Burlington, VT, USA, 2001. [Google Scholar]
- Chen, Y.; Huang, H.L.; Chao, C.C. Achenbach System of Empirically Based Assessment; Psychological Publishing: Taipei, Taiwan, 2009. [Google Scholar]
- Chien, C.P.; Cheng, T.A. Depression in Taiwan: Epidemiological survey utilizing CES-D. Seishin Shinkeigaku Zasshi. 1985, 87, 335–338. [Google Scholar]
- Radloff, L.S. The CSE-D scale: A self-report depression scale for research in the general population. Appl. Psychol. Meas. 1977, 1, 385–401. [Google Scholar] [CrossRef]
- Chinn, S. A Simple method for converting an odds ratio to effect size for use in meta-analysis. Stat. Med. 2000, 19, 3127–3131. [Google Scholar] [CrossRef]
- Rosenthal, J.A. Qualitative descriptors of strength of association and effect size. J. Soc. Serv. Res. 1996, 21, 37–59. [Google Scholar] [CrossRef]
- Leitch, S.; Sciberras, E.; Post, B.; Gerner, B.; Rinehart, N.; Nicholson, J.M.; Evans, S. Experience of stress in parents of children with ADHD: A qualitative study. Int. J. Qual. Stud. Health Well-Being 2019, 14, 1690091. [Google Scholar] [CrossRef] [Green Version]
- Calev, A. Affect and memory in depression: Evidence of better delayed recall of positive than negative affect words. Psychopathology 1996, 29, 71–76. [Google Scholar] [CrossRef]
Variable | n (%) | Mean (SD) | Range |
---|---|---|---|
Caregivers’ characteristics | |||
Affiliate stigma | |||
Low | 212 (53.0) | ||
High | 188 (47.0) | ||
Gender | |||
Female | 321 (80.3) | ||
Male | 79 (19.8) | ||
Age (years) | 43.2 (7.0) | 23–69 | |
Length of education (years) | 14.2 (3.2) | 0–28 | |
Marriage status | |||
Married or cohabited | 319 (79.8) | ||
Separated or divorced | 81 (20.3) | ||
Depressive symptoms | |||
Low | 208 (52.0) | ||
High | 192 (48.0) | ||
Problem-focused coping | |||
Low | 201 (50.3) | ||
High | 199 (49.8) | ||
Seeking social support | |||
Low | 214 (53.5) | ||
High | 186 (46.5) | ||
Less effective coping | |||
Low | 227 (56.7) | ||
High | 173 (43.3) | ||
Changing cognition | |||
Low | 224 (56.0) | ||
High | 176 (44.0) | ||
Passive emotional coping | |||
Low | 222 (55.5) | ||
High | 178 (44.5) | ||
Care/affection | |||
Low | 218 (54.5) | ||
High | 182 (45.5) | ||
Overprotection | |||
Low | 242 (60.5) | ||
High | 158 (39.5) | ||
Authoritarianism | |||
Low | 231 (57.8) | ||
High | 169 (42.3) | ||
Children’s characteristics | |||
Gender | |||
Girl | 78 (19.5) | ||
Boy | 322 (80.5) | ||
Age (years) | 10.3 (3.2) | 6–18 | |
Internalizing problems | |||
Low | 210 (52.5) | ||
High | 190 (47.5) | ||
Externalizing problems | |||
Low | 211 (52.8) | ||
High | 189 (47.3) | ||
ADHD symptoms | |||
Low | 206 (51.5) | ||
High | 194 (48.5) |
Variable | High Affiliate Stigma |
---|---|
OR (95% CI) | |
Caregiver | |
Age | 1.015 (0.987–1.044) |
Male a | 0.591 (0.356–0.981) * |
Marriage status of separation or divorce b | 1.445 (0.886–2.358) |
Length of education | 0.981 (0.922–1.045) |
High depressive symptoms c | 3.431 (2.274–5.178) *** |
High problem-focused coping d | 0.471 (0.316–0.703) *** |
High seeking social support d | 0.365 (0.243–0.548) *** |
High changing cognition d | 0.388 (0.258–0.584) *** |
High passive emotional coping d | 0.974 (0.656–1.445) |
High less effective coping d | 1.989 (1.331–2.972) ** |
High care/affection e | 0.346 (0.229–0.521) *** |
High overprotection e | 2.525 (1.673–3.810) *** |
High authoritarianism e | 1.546 (1.037–2.305) * |
Children’s characteristics | |
Boy f | 0.861 (0.525–1.413) |
Age | 1.018 (0.957–1.083) |
High internalizing problems g | 2.532 (1.691–3.790) *** |
High externalizing problems g | 2.584 (1.725–3.870) *** |
High ADHD symptoms g | 1.822 (1.224–2.710) ** |
Variable | High Affiliate Stigma | |
---|---|---|
Model I OR (95% CI) | Model II OR (95% CI) | |
Male caregivers a | 0.577 (0.325–1.023) | 0.665 (0.376–1.178) |
Caregivers’ high depressive symptoms b | 2.172 (1.367–3.451) *** | 2.093 (1.328–3.301) ** |
Children’s high internalizing problems c | 0.512 (0.321–0.818) ** | 1.498 (0.929–2.418) |
Children’s high externalizing problems c | 1.585 (0.994–2.527) | 1.308 (0.775–2.210) |
Children’s high ADHD symptoms c | 1.060 (0.670–1.676) | 1.178 (0.716–1.938) |
High problem-focused coping d | 0.866 (0.530–1.413) | |
High seeking social support d | 0.505 (0.309–0.825) ** | |
High changing cognition d | 0.659 (0.404–1.074) | |
High less effective coping d | 1.369 (0.866–2.165) | |
High care/affection e | 0.471 (0.297–0.748) ** | |
High overprotection e | 1.678 (1.062–2.651) * | |
High authoritarianism e | 1.004 (0.639–1.578) |
Publisher’s Note: MDPI stays neutral with regard to jurisdictional claims in published maps and institutional affiliations. |
© 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Chang, C.-C.; Chen, Y.-M.; Hsiao, R.C.; Chou, W.-J.; Yen, C.-F. Affiliate Stigma in Caregivers of Children with Attention-Deficit/Hyperactivity Disorder: The Roles of Stress-Coping Orientations and Parental Child-Rearing Styles. Int. J. Environ. Res. Public Health 2021, 18, 9004. https://doi.org/10.3390/ijerph18179004
Chang C-C, Chen Y-M, Hsiao RC, Chou W-J, Yen C-F. Affiliate Stigma in Caregivers of Children with Attention-Deficit/Hyperactivity Disorder: The Roles of Stress-Coping Orientations and Parental Child-Rearing Styles. International Journal of Environmental Research and Public Health. 2021; 18(17):9004. https://doi.org/10.3390/ijerph18179004
Chicago/Turabian StyleChang, Chih-Cheng, Yu-Min Chen, Ray C. Hsiao, Wen-Jiun Chou, and Cheng-Fang Yen. 2021. "Affiliate Stigma in Caregivers of Children with Attention-Deficit/Hyperactivity Disorder: The Roles of Stress-Coping Orientations and Parental Child-Rearing Styles" International Journal of Environmental Research and Public Health 18, no. 17: 9004. https://doi.org/10.3390/ijerph18179004
APA StyleChang, C. -C., Chen, Y. -M., Hsiao, R. C., Chou, W. -J., & Yen, C. -F. (2021). Affiliate Stigma in Caregivers of Children with Attention-Deficit/Hyperactivity Disorder: The Roles of Stress-Coping Orientations and Parental Child-Rearing Styles. International Journal of Environmental Research and Public Health, 18(17), 9004. https://doi.org/10.3390/ijerph18179004