Lived Experiences of Hospitalized COVID-19 Patients: A Qualitative Study
Abstract
:1. Introduction
2. Materials and Methods
2.1. Design
2.2. Selection of Participants
2.3. Data Collection
2.4. Data Analysis
2.5. Ethical Considerations
3. Results
3.1. Participant Characteristics
3.2. Theme 1. Positive and Negative Aspects of the Care Provided
3.2.1. Isolation
“I had never been hospitalized, the first time in 63 years, when I had already been confined at home for days and I’m still... I’m not a person who needs a lot of people around me. I know that my family was missing me and so did they, but it wasn’t difficult for me”.(2 Participant)
“even if you are isolated, as you’ve got your mobile and the nurses come in from time to time to check your temperature, you’re not really alone... I guess that having my mobile and not being a severe case, I could get up and I didn’t need oxygen, which also made things easier”.(5 Participant)
3.2.2. Confidence
“I see that the level of professional competence makes you feel safe being in the hospital”.(4 Participant)
“I’ve never lived the experience from inside a hospital, first you may think it’s chaotic, but then you see that everything is coordinated. All the professionals know what has to be done and everyone is coordinated, so you feel confident”.(2 Participant)
3.2.3. Uncertainty
“Each day getting worse and worse, and of course I said:—my God, it seems I’m not getting better... [cries] I just asked for my life to be saved, because I have a three-year-old girl”.(9 Participant)
3.2.4. Information and Communication
“little information, my children told me they had little information. Of course, they could not visit either, but they received little information”.(6 Participant)
“the information was correct, at least what they gave me... I never had the feeling of not knowing how everything was, or what was happening. As for my relatives, they got more information from me than from the hospital. My wife received a call only once to tell her that I had just come out of the ICU, just once”.(4 Participant)
“Except for the days I was in the ICU sedated, you communicate with the mobile, the mobile has helped a lot”.(2 Participant)
3.2.5. Flexibility
“I saw all the difficulties that nurses had in caring for patients. The fact that we were in rooms with a maximum of two people made the tasks very difficult. I imagine that larger rooms, with more patients together would have been better... hospitals, at least this one, have demonstrated an ability, a flexibility, an extraordinary ability to adapt to the new situation that was really impressive”.(4 Participant)
3.3. Theme 2. Patients Hospitalization Experience
3.3.1. Patient Adaptation to the New Situation
“I wish there had been more people, because as I say, the first days, above all... uh, things were done late, but I imagine that’s why. The procedures didn’t let them come before”.(11 Participant)
“all very nice, always very dedicated, and although I understood that the security measures meant that nurses did not come in to the rooms all the time, but from time to time they opened the door, looked in and asked how you were, always attentive to what you wanted. I would say very dedicated”.(5 Participant)
“the professionals gave us a lot of love, when they were taking our blood pressure. All “disguised”, you couldn’t see their faces, you only heard the voice. They were very sweet and made us feel secure and tranquil. You got the feeling that you weren’t alone. They’re there”.(3 Participant)
“for me this is very important, to know the people, in the way they have treated you, and to be able to thank them, you already do it but they have their face [laughs] covered and you hardly see them, just the eyes a little”.(10 Participant)
3.3.2. Human and Material Resources
“I only saw that they were drowning in the situation and that there was a lack of care, other nurses didn’t have time. Since it was undressing, dressing, getting into bed, this takes a while, more nurses were needed”.(6 Participant)
“the nurses should have had more material, they had little and each day was different, this didn’t make us feel secure when they were working with fear”.(3 Participant)
3.4. Theme 3. Perception of the Experience of Disease
3.4.1. Hospital Process
“I didn’t know I was going into the ICU, I was in intermediate care. I had walked into the hospital and was sent to intermediate care. I guess I ran out of air, and they took me to the ICU: I woke up in the ICU, everything was shining, it was very modern, you were very protected, it looked like 2001 A Space Odyssey. I didn’t know if I was in heaven or hell... someone came and started asking me questions... who I was, what my name was, I didn’t understand the reason for the questions. I missed this part of the disease”.(2 Participant)
“I remember walking into the hospital... I had my chest X-ray, and I don’t remember anything else. And I know I was awake until I was intubated, and I don’t remember that I had talked to the doctor, who asked me for consent to be intubated... I don’t remember anyone. I’ve erased that from my mind. There are things that your mind erases and it’s over. [Silence]”.(1 Participant)
“The days I was awake in the ICU were very oppressive, it felt as if I was in a movie in the third dimension, I didn’t believe what was going on... had very weird feelings, I don’t know, sounds [silence] I guess were all from my head”.(1 Participant)
3.4.2. Abandonment
“At first I took it hard. It’s because I didn’t know I had this. And I remember nothing from the last few days I had it. So what happened, I woke up and found myself alone, without my children, who didn’t know what I had. I thought they had left me (choking, emotional voice). I had a hard time in the sense that I thought I had been left there alone”.(6 Participant)
“I couldn’t see my children, I thought they had abandoned me. Then I understood it, although I was grieving inside, but I also thought what if they catch it, so I have to put up with it, in the end I understood”.(6 Participant)
4. Discussion
4.1. Limitations
4.2. Implications for the Future
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Acknowledgments
Conflicts of Interest
Appendix A
Code | Age | Sex | Marital Status | Children | Education | Admission Unit | ICU | Admission (Days) | IMV (Days) |
---|---|---|---|---|---|---|---|---|---|
1P | 61 | Female | Married | 0 | High school | ICU/ward/Hotel | Yes | 40 | 12 |
2P | 63 | Male | Married | 3 | Academic degree | ICU/ward | Yes | 17 | 3 |
3P | 57 | Female | Married | 2 | High school | Ward/Hotel | No | 8 | |
4P | 58 | Male | Single | 2 | Academic degree | ICU/ward/Hotel | Yes | 15 | |
5P | 51 | Male | Married | 3 | High school | Ward | No | 8 | |
6P | 63 | Female | Married | 2 | No graduation | ICU/ward | Yes | 38 | 13 |
7P | 80 | Male | Married | 2 | No graduation | Ward/Hotel | No | 11 | |
8P | 41 | Female | Married | 2 | No graduation | Ward/Hotel | No | 16 | |
9P | 39 | Female | Married | 2 | No graduation | ICU/ward/Hotel | Yes | 17 | |
10P | 38 | Male | Married | 2 | Academic degree | Ward/Hotel | No | 16 | |
11P | 58 | Male | Single | 0 | Academic degree | Ward/Hotel | No | 10 |
Characteristics | Patients (n = 11) |
---|---|
Age, mean (range) | 55, 4 years (38–80) |
Sex, n (%) | Female: 5 (45.5) |
Marital status, n (%) | Married: 9 (81.8) single: 2 (18.2) |
Parenthood, n (%) | 9 (81.8) |
Education, n (%) | Academic degree: 4 (36.3) High school: 3 (27.3) No graduation: 4 (36.3) |
Admission Unit, n (%) | ICU: 5 (45.5) Ward: 11 (100) Health Hotel: 5 (45.5) |
Mechanical ventilation, n (%) | 3 (27.3) |
Total income days, mean (range) | 17, 8 days (8–40) |
Themes | Subthemes |
---|---|
Positive and negative aspects of the care provided | Isolation Confidence Uncertainty Information and communication Flexibility |
Patient hospitalization experience | Patients’ adaptation to the new situation Human and material resources |
Perception of the experience of disease | Hospital process Abandonment |
References
- Pamlin, D.; Armstrong, S. 12 Risks that Threaten Human Civilisation: The Case for a New Risk Category; Global Challenge Foundation: Stockholm, Sweden, 2015. [Google Scholar]
- Galeana, P. Las Epidemias a lo Largo de la Historia. 2020. Available online: https://revistasipgh.org/index.php/anam/article/view/844 (accessed on 16 September 2021).
- CODEINEP. Available online: https://codeinep.org/coronavirus-mapa-interactivo-en-vivo/ (accessed on 7 June 2021).
- World Health Organization. State of the World’s Nursing 2020: Investing in Education, Jobs and Leadership. 2020. Available online: https://apps.who.int/iris/rest/bitstreams/1274201/retrieve (accessed on 6 July 2021).
- Remuzzi, A.; Remuzzi, G. COVID-19 and Italy: What next? Lancet 2020, 395, 1225–1228. [Google Scholar] [CrossRef]
- Estalella, G.M.; Zabalegui, A.; Guerra, S.S. Gestión y liderazgo de los servicios de Enfermería en el plan de emergencia de la pandemia COVID-19: La experiencia del Hospital Clínic de Barcelona. Enfermería Clínica 2021, 31, S12–S17. [Google Scholar] [CrossRef] [PubMed]
- Rubin, G.J.; Wessely, S. The psychological effects of quarantining a city. BMJ 2020, 368, m313. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Johnson, M.M.; Gilligan, C. In a Different Voice: Psychological Theory and Women’s Development; American Sociological Association: Washington, DC, USA, 1983; p. 448. [Google Scholar] [CrossRef]
- Green, B. Applying feminist ethics of care to nursing practice. J. Nurs. Care 2012, 1. [Google Scholar] [CrossRef] [Green Version]
- Alonso-Ovies, Á.; La Calle, G.H. Dígame qué necesita. Le escucho. Med. Intensiv. 2018, 43, 193–194. [Google Scholar] [CrossRef]
- Mishel, M.H. Uncertainty in Illness. Image J. Nurs. Sch. 1988, 20, 225–232. [Google Scholar] [CrossRef]
- Chung, J.W.; Wong, T.K.; Chang, K.K.; Chow, C.; Chung, B.P.; Chung, G.; Ho, S.; Ho, J.S.; Lai, C.K.; Lai, A.; et al. Rapid assessment of a helpdesk service supporting severe acute respiratory syndrome patients and their relatives. J. Clin. Nurs. 2004, 13, 748–755. [Google Scholar] [CrossRef]
- Wu, K.K.; Chan, S.K.; Ma, T.M. Posttraumatic stress after SARS. Emerg. Infect. Dis. 2005, 11, 1297–1300. [Google Scholar] [CrossRef] [Green Version]
- Brooks, S.K.; Webster, R.; Smith, L.E.; Woodland, L.; Wessely, S.; Greenberg, N.; Rubin, G.J. The psychological impact of quarantine and how to reduce it: Rapid review of the evidence. Lancet 2020, 395, 912–920. [Google Scholar] [CrossRef] [Green Version]
- Lima, C.K.T.; Carvalho, P.M.D.M.; Lima, I.D.A.A.S.; Nunes, J.V.A.D.O.; Saraiva, J.S.; de Souza, R.I.; da Silva, C.G.L.; Neto, M.L.R. The emotional impact of Coronavirus 2019-nCoV (new Coronavirus disease). Psychiatry Res. 2020, 287, 112915. [Google Scholar] [CrossRef]
- Qiu, J.; Shen, B.; Zhao, M.; Wang, Z.; Xie, B.; Xu, Y. A nationwide survey of psychological distress among Chinese people in the COVID-19 epidemic: Implications and policy recommendations. Gen. Psychiatry 2020, 33, e100213. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Berenguer, A.; de Sanmamed, F.M.; Pons, M. Escuchar, Observar y Comprender. Recuperando la Narrativa en las Ciencias de la Salud. Aportaciones de la Investigación Cualitativa; Institut Universitari d’Investigación en Atención Primaria Jordi Gol: Barcelona, Spain, 2014. [Google Scholar]
- Muñoz, L.A.; Erdman, A.L. La fenomenología en la producción de conocimiento en enfermería. In Investigación Cualitativa en Enfermería: Contexto y Bases Conceptuales; OPS: Washington, DC, USA, 2008; pp. 101–116. [Google Scholar]
- Tong, A.; Sainsbury, P.; Craig, J. Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. Int. J. Qual. Health Care 2007, 19, 349–357. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Kvale, S. Las Entrevistas en Investigación Cualitativa; Ediciones Morata: Morata, Madrid, 2011. [Google Scholar]
- Betrián, E.V.; Galitó, N.G.; García, N.M.; Jové, G.M.; Macarulla, M.G. La triangulación múltiple como estrategia metodológica. REICE Rev. Iberoam. Calid. Efic. Cambio Educ. 2013, 11, 5–24. [Google Scholar]
- Lindseth, A.; Norberg, A. A phenomenological hermeneutical method for researching lived experience. Scand. J. Caring Sci. 2004, 18, 145–153. [Google Scholar] [CrossRef]
- Guba, E.G.; Lincoln, Y.S. Competing paradigms in qualitative research. In The Landscape of Qualitative Research; Denzin, N.K., Lincoln, Y.S., Eds.; Sage: Thousand Oaks, CA, USA, 1989. [Google Scholar]
- World Medical Association. World Medical Association Declaration of Helsinki. Ethical principles for medical research involving human subjects. JAMA 2013, 310, 2191–2194. [Google Scholar] [CrossRef] [Green Version]
- Sun, N.; Wei, L.; Shi, S.; Jiao, D.; Song, R.; Ma, L.; Wang, H.; Wang, C.; Wang, Z.; You, Y.; et al. A qualitative study on the psychological experience of caregivers of COVID-19 patients. Am. J. Infect. Control. 2020, 48, 592–598. [Google Scholar] [CrossRef]
- Akgün, K.M.; Shamas, T.L.; Feder, S.L.; Schulman-Green, D. Communication strategies to mitigate fear and suffering among COVID-19 patients isolated in the ICU and their families. Hear. Lung 2020, 49, 344–345. [Google Scholar] [CrossRef]
- Xiang, Y.-T.; Yang, Y.; Li, W.; Zhang, L.; Zhang, Q.; Cheung, T.; Ng, C.H. Timely mental health care for the 2019 novel coronavirus outbreak is urgently needed. Lancet Psychiatry 2020, 7, 228–229. [Google Scholar] [CrossRef] [Green Version]
- Back, A.; Tulsky, J.A.; Arnold, R.M. Communication skills in the age of COVID-19. Ann. Intern. Med. 2020, 172, 759–760. [Google Scholar] [CrossRef] [Green Version]
- Marra, A.; Buonanno, P.; Vargas, M.; Iacovazzo, C.; Ely, E.W.; Servillo, G. How COVID-19 pandemic changed our commu-nication with families: Losing nonverbal cues. Crit. Care 2020, 24, 297. [Google Scholar] [CrossRef]
- Barello, S.; Falcó-Pegueroles, A.; Rosa, D.; Tolotti, A.; Graffigna, G.; Bonetti, L. The psychosocial impact of flu influenza pandemics on healthcare workers and lessons learnt for the COVID-19 emergency: A rapid review. Int. J. Public Health 2020, 65, 1205–1216. [Google Scholar] [CrossRef]
- El-Hage, W.; Hingray, C.; Lemogne, C.; Yrondi, A.; Brunault, P.; Bienvenu, T.; Etain, B.; Paquet, C.; Gohier, B.; Bennabi, D.; et al. Les professionnels de santé face à la pandémie de la maladie à coronavirus (COVID-19): Quels risques pour leur santé mentale? L’Encéphale 2020, 46, S73–S80. [Google Scholar] [CrossRef]
- Shanafelt, T.; Ripp, J.; Trockel, M. Understanding and addressing sources of anxiety among health care professionals during the COVID-19 pandemic. JAMA 2020, 323, 2133. [Google Scholar] [CrossRef]
- Organization for Economic Cooperation and Development (OECD) Nurses. 2020. Available online: https://data.oecd.org/healthres/nurses.htm (accessed on 15 July 2020).
- Builes, I.; Manrique, H.; Henao, C.M. Individuación y Adaptación: Entre Determinaciones y Contingencias. Nómadas. Critical Journal of Social and Juridical Sciences. 2017. Available online: https://www.redalyc.org/articulo.oa?id=18153284002. (accessed on 6 July 2021).
- Day, G.; Robert, G.; Rafferty, A.M. Gratitude in health care: A meta-narrative review. Qual. Health Res. 2020, 30, 2303–2315. [Google Scholar] [CrossRef]
- Niner, S.; Kokanovic, R.; Cuthbert, D. Displaced mothers: Birth and resettlement, gratitude and complaint. Med. Anthr. 2013, 32, 535–551. [Google Scholar] [CrossRef]
- Luhmann, N. Familiarity, confidence, trust: Problems and alternatives. In Trust: Making and Breaking of Cooperative Relations; Gambetta, D., Ed.; Blackwell: Oxford, UK, 1988. [Google Scholar]
- Garg, R.K. Spectrum of neurological manifestations in Covid-19: A review. Neurol. India 2020, 68, 560–572. [Google Scholar] [CrossRef] [PubMed]
- Asadi-Pooya, A.A.; Simani, L. Central nervous system manifestations of COVID-19: A systematic review. J. Neurol. Sci. 2020, 413, 116832. [Google Scholar] [CrossRef]
- Sahoo, S.; Mehra, A.; Suri, V.; Malhotra, P.; Yaddanapudi, L.N.; Puri, G.D.; Grover, S. Lived experiences of the corona survivors (patients admitted in COVID wards): A narrative real-life documented summaries of internalized guilt, shame, stigma, anger. Asian J. Psychiatry 2020, 53, 102187. [Google Scholar] [CrossRef] [PubMed]
- Maunder, R.; Hunter, J.; Vicent, L.; Bennett, J.; Peladeau, N.; Leszcz, M.; Sadavoy, J.; Verhaeghe, L.M.; Steinberg, R.; Mazzulli, T. The immediate psychological and occupational impact of the 2003 SARS outbreak in a teaching hospital. CMAJ 2003, 168, 1245–1251. Available online: https://www.cmaj.ca/content/168/10/1245.long (accessed on 27 July 2021). [PubMed]
- Li, W.; Yang, Y.; Liu, Z.-H.; Zhao, Y.-J.; Zhang, Q.; Zhang, L.; Cheung, T.; Xiang, Y.-T. Progression of mental health services during the COVID-19 outbreak in China. Int. J. Biol. Sci. 2020, 16, 1732–1738. [Google Scholar] [CrossRef] [PubMed] [Green Version]
Publisher’s Note: MDPI stays neutral with regard to jurisdictional claims in published maps and institutional affiliations. |
© 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Venturas, M.; Prats, J.; Querol, E.; Zabalegui, A.; Fabrellas, N.; Rivera, P.; Casafont, C.; Cuzco, C.; Frías, C.E.; Olivé, M.C.; et al. Lived Experiences of Hospitalized COVID-19 Patients: A Qualitative Study. Int. J. Environ. Res. Public Health 2021, 18, 10958. https://doi.org/10.3390/ijerph182010958
Venturas M, Prats J, Querol E, Zabalegui A, Fabrellas N, Rivera P, Casafont C, Cuzco C, Frías CE, Olivé MC, et al. Lived Experiences of Hospitalized COVID-19 Patients: A Qualitative Study. International Journal of Environmental Research and Public Health. 2021; 18(20):10958. https://doi.org/10.3390/ijerph182010958
Chicago/Turabian StyleVenturas, Montserrat, Judith Prats, Elena Querol, Adelaida Zabalegui, Núria Fabrellas, Paula Rivera, Claudia Casafont, Cecilia Cuzco, Cindy E. Frías, Maria Carmen Olivé, and et al. 2021. "Lived Experiences of Hospitalized COVID-19 Patients: A Qualitative Study" International Journal of Environmental Research and Public Health 18, no. 20: 10958. https://doi.org/10.3390/ijerph182010958
APA StyleVenturas, M., Prats, J., Querol, E., Zabalegui, A., Fabrellas, N., Rivera, P., Casafont, C., Cuzco, C., Frías, C. E., Olivé, M. C., & Pérez-Ortega, S. (2021). Lived Experiences of Hospitalized COVID-19 Patients: A Qualitative Study. International Journal of Environmental Research and Public Health, 18(20), 10958. https://doi.org/10.3390/ijerph182010958