The Role of Communication Affordances in Post-Traumatic Stress Disorder Facebook and WhatsApp Support Groups
Abstract
:1. Introduction
1.1. Online Support for Stigmatized Individuals
1.2. Communication Affordances
1.3. Coping with PTSD
1.4. Case Study: PTSD Support Groups for Israeli Veterans and Their Partners on Facebook and WhatsApp
2. Methodology
Analysis
3. Findings
3.1. Visibility
“Facebook is problematic. My profile is connected to my business, and it’s in a public place. Google searches will bring up your Facebook posts, even from closed groups, sentences, you won’t be able to log in to see the entire post, but you’ll see the subject heading. I am cautious with Facebook. WhatsApp—a little easier.”
“[On WhatsApp] you don’t always know the person’s name. I can see the group’s list of girls here, but I don’t even know who they are. [She pulls out her mobile phone and looks at the list]. Some have names, some have pictures, some have only the phone number. Who are they? Facebook is much more convenient. You can search and find what the person has previously written in groups.”
“As soon as I got past the mental barrier of feeling embarrassed, Facebook enabled me to open up in the most honest and sensitive way. I can choose my words in a way that does not exist in one-on-one interactions. For people who want to open things up and talk, Facebook is very convenient and pleasant. It can get to the level of, sorry to say it in such a way, of having sex with a girl. It’s the most intimate thing there is, and then it’s gone. And I found it to be just what I needed to feel okay. To feel you’re not alone, but also not to become a burden on anyone.”
3.2. Availability
“Last Friday night, I had the feeling of ’this is it.’ Danny was sick, and then he lost it. Being sick is awful to him because then he loses control. And I already felt it coming, and I wrote to them immediately. At 10 o’clock at night, I messaged the group and got instant responses. The group knows what’s going on. Yes, we know each other so well.”
“Someone needed help with a doctor who could prescribe medical marijuana for him. He asked me about it in a direct WhatsApp message, and I posted his question on the WhatsApp group. The responses came in promptly in the middle of the night.”
3.3. Multimediality
“I can’t write during an anxiety attack. I can’t press the keys, they are small and annoying, and I get even more annoyed. I want to break the phone anyway. Instead of destroying your house, you can complain and shout inside the WhatsApp group, and someone will listen to your recording and say, ‘Come on, let’s go to the beach.’ That’s something you can’t do on Facebook.”
“Last night, someone wrote ‘I need something serious, like some guided imagery.’ I recorded and sent them a script of guided imagery from a class I took. The group’s response was positive: they wrote: ‘Really wonderful, well done really!’ And one member wrote ‘I’m in bed now after listening to your guided imagination class, thank you! Going to fall asleep with a huge smile!’”
“This is Uri. A unique kid. Blond hair, blue eyes. He was a [unit’s name] fighter. It was tough for me to lose this kid. I grew up with him in Haifa. When he came to the army, I was so happy that he came to [unit’s name]. When he finished his service in [unit’s name], I moved him to my team. I posted his photo and wrote something on the anniversary of his death.”
“Since I joined this group, my phone has crashed. I have to erase memories all the time, delete things, media, photos, videos.”
3.4. Surveillance
“Some members are just listeners. No, they don’t have to post messages, only if they want to. It’s not my goal to track these girls, but recently I wanted to see how many members we had in the group. I looked to see who had two blue checkmarks next to my message. Two blue checkmarks means she got the message. That’s great. It means that she’s in the group. She doesn’t have to say anything.”
“If I leave the WhatsApp group, I will immediately get a message from the admin, ‘What happened, everything okay?’ If you leave, you have to go through a person. Even if you don’t feel like it, you have to say what’s going on.”
“One member occasionally posts in the group. Lately, he publishes posts daily. Something is going on with him. He uploads lots of stuff, photos, personal posts. If I were to tell him that I noticed something different, he would be alarmed by how he exposed himself and say goodbye.”
3.5. Synchronicity
“On WhatsApp, you get lost. You send a message, someone responds to you, but someone else sends a new message and pushes yours back. It’s a little hard to follow. On Facebook, you say something, and people relate to you. You can later respond to others’ comments, but everything is in the same thread. There is something more embracing, more personal about it.”
4. Discussion
Limitations
5. Conclusions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
- Rueger, J.; Dolfsma, W.; Aalbers, R. Perception of Peer Advice in Online Health Communities Access to Lay Expertise. Soc. Sci. Med. 2020, 113117. [Google Scholar] [CrossRef] [PubMed]
- Rains, S.A. Coping with Illness Digitally; The MIT Press: Cambridge, MA, USA, 2018. [Google Scholar] [CrossRef]
- Rains, S.A.; Peterson, E.B.; Wright, K.B. Communicating Social Support in Computer-mediated Contexts: A Meta-analytic Review of Content Analyses Examining Support Messages Shared Online among Individuals Coping with Illness. Commun. Monogr. 2016, 82, 403–430. [Google Scholar] [CrossRef]
- Rains, S.A.; Wright, K.B. Social Support and Computer-Mediated Communication: A State-of-the-Art Review and Agenda for Future Research. Ann. Int. Commun. Assoc. 2015, 40, 175–211. [Google Scholar] [CrossRef]
- Deandrea, D.C. Testing the Proclaimed Affordances of Online Support Groups in a Nationally Representative Sample of Adults Seeking Mental Health Assistance. J. Health Commun. 2015, 20, 147–156. [Google Scholar] [CrossRef] [PubMed]
- Rains, S.A. The Implications of Stigma and Anonymity for Self-Disclosure in Health Blogs. Health Commun. 2013, 1–9. [Google Scholar] [CrossRef]
- Smith, R.; Rossetto, K.; Peterson, B.L. A meta-analysis of disclosure of one’s HIV-positive status, stigma and social support. AIDS Care 2008, 20, 1266–1275. [Google Scholar] [CrossRef] [PubMed]
- Tanis, M. What makes the Internet a place to seek social support? In Mediated Interpersonal Communication; Konijin, S.U.E.A., Tanis, M., Barnes, S.B., Eds.; Routledge: London, UK, 2008; pp. 290–308. [Google Scholar]
- Wright, K.B. Communication in health-related online social support groups/communities: A review of research on predictors of participation, applications of social support theory, and health outcomes. Rev. Commun. Res. 2016, 4, 65–87. [Google Scholar] [CrossRef]
- Yeshua-Katz, D.; Martins, N. Communicating Stigma: The Pro-Ana Paradox. Health Commun. 2013, 28, 499–508. [Google Scholar] [CrossRef]
- Evans, S.K.; Pearce, K.E.; Vitak, J.; Treem, J.W. Explicating Affordances: A Conceptual Framework for Understanding Affordances in Communication Research. J. Comput. Commun. 2017, 22, 35–52. [Google Scholar] [CrossRef] [Green Version]
- Gibson, J.J. The theory of affordances. Hilldale USA 1977, 1, 67–82. [Google Scholar]
- Roystonn, K.; Vaingankar, J.A.; Chua, B.Y.; Sambasivam, R.; Shafie, S.; Jeyagurunathan, A.; Verma, S.; Abdin, E.; Chong, S.A.; Subramaniam, M. The public health impact and policy implications of online support group use for mental health in Singapore: Cross-sectional survey. In JMIR Mental Health; JMIR Publications Inc.: Toronto, ON, Canada, 2020; Volume 7, p. e18114. [Google Scholar] [CrossRef]
- Hanley, T.; Prescott, J.; Gomez, K.U. A systematic review exploring how young people use online forums for support around mental health issues. J. Ment. Health 2018, 28, 566–576. [Google Scholar] [CrossRef]
- Gough, B. Men’s depression talk online: A qualitative analysis of accountability and authenticity in help-seeking and support formulations. Psychol. Men Masc. 2016, 17, 156–164. [Google Scholar] [CrossRef]
- Yeshua-Katz, D.; Segerstad, Y.H.A. Catch 22: The Paradox of Social Media Affordances and Stigmatized Online Support Groups. Soc. Media Soc. 2020, 6, 2056305120984476. [Google Scholar] [CrossRef]
- Coulson, N.S. Affordance theory can help understanding of individuals’ use of online support communities. Br. J. Health Psychol. 2017, 22, 379–382. [Google Scholar] [CrossRef] [PubMed]
- Willems, W. Beyond platform-centrism and digital universalism: The relational affordances of mobile social media publics. Inf. Commun. Soc. 2020, 1–17. [Google Scholar] [CrossRef]
- Boyd, D. Social Network Sites as Networked Publics: Affordances, Dynamics, and Implications. In A Networked Self; Routledge: London, UK, 2010; pp. 47–66. [Google Scholar]
- Ellison, N.B.; Blackwell, L.; Lampe, C.; Trieu, P. “The question exists, but you don’t exist with it”: Strategic anonymity in the social lives of adolescents. Soc. Media Soc. 2016, 2, 2056305116670673. [Google Scholar] [CrossRef]
- Ellison, N.B.; Vitak, J. Social network site affordances and their relationship to social capital processes. In The Handbook of the Psychology of Communication Technology; Sundar, S., Ed.; Wiley Online Library: Hoboken, NJ, USA, 2015; Volume 32, pp. 205–228. [Google Scholar]
- Sundar, S.S. The MAIN model: A heuristic approach to understanding technology effects on credibility. In Digital Media, Youth, and Credibility; Metzger, M.J., Flanagin, A.J., Eds.; The MIT Press: Cambridge, MA, USA, 2008; pp. 73–100. [Google Scholar]
- Treem, J.W.; Leonardi, P.M. Social Media Use in Organizations: Exploring the Affordances of Visibility, Editability, Persistence, and Association. Ann. Int. Commun. Assoc. 2013, 36, 143–189. [Google Scholar] [CrossRef]
- Lawlor, A.; Kirakowski, J. Online Support Groups for Mental Health: A Space for Challenging Self-Stigma or a Means of Social Avoidance? Comput. Hum. Behav. 2014, 32, 152–161. [Google Scholar] [CrossRef]
- Moreno, M.A.; D’Angelo, J. Social Media Intervention Design: Applying an Affordances Framework. J. Med. Internet Res. 2019, 21, e11014. [Google Scholar] [CrossRef]
- Leonardi, P.M. When Flexible Routines Meet Flexible Technologies: Affordance, Constraint, and the Imbrication of Human and Material Agencies. MIS Q. Manag. Inf. Syst. 2011, 35, 147–167. [Google Scholar] [CrossRef] [Green Version]
- Scarlett, A.; Zeilinger, M. Rethinking Affordance. Media Theory 2019, 3, 1–48. Available online: http://journalcontent.mediatheoryjournal.org/index.php/mt/article/view/78 (accessed on 1 April 2021).
- American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders (DSM-5®); American Psychiatric Association: Philadelphia, PA, USA, 2013. [Google Scholar]
- Hom, M.A.; Stanley, I.H.; Schneider, M.E.; Joiner, T.E. A systematic review of help-seeking and mental health service utilization among military service members. In Clinical Psychology Review; Elsevier Inc.: Amsterdam, The Netherlands, 2017; Volume 53, pp. 59–78. [Google Scholar] [CrossRef]
- Meis, L.A.; Barry, R.A.; Kehle, S.M.; Erbes, C.R.; Polusny, M.A. Relationship Adjustment, PTSD Symptoms, and Treatment Utilization among Coupled National Guard Soldiers Deployed to Iraq. J. Fam. Psychol. 2010, 24, 560–567. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Itzhaky, L.; Stein, J.Y.; Levin, Y.; Solomon, Z. Posttraumatic Stress Symptoms and Marital Adjustment among Israeli Combat Veterans: The Role of Loneliness and Attachment. Psychol. Trauma Theory Res. Pract. Policy 2017, 9, 655–662. [Google Scholar] [CrossRef]
- Dekel, R.; Siegel, A.; Fridkin, S.; Svetlitzky, V. Does It Help? The Contribution of Wives’ Ways of Giving Support to Their Veteran Husbands’ Posttraumatic Stress Symptoms and Functional Impairment. J. Trauma. Stress 2018, 31, 856–865. [Google Scholar] [CrossRef] [PubMed]
- Ferrell, E.L.; Russin, S.E.; Hardy, R.M. Informal caregiving experiences in posttraumatic stress disorder: A content analysis of an online community. J. Community Psychol. 2019, 47, 757–771. [Google Scholar] [CrossRef] [PubMed]
- Gorman, L.A.; Blow, A.J.; Ames, B.D.; Reed, P.L. National Guard Families after Combat: Mental Health, Use of Mental Health Services, and Perceived Treatment Barriers. Psychiatr. Serv. 2011, 62, 28–34. [Google Scholar] [CrossRef] [PubMed]
- Mansfield, A.J.; Schaper, K.M.; Yanagida, A.M.; Rosen, C.S. One day at a time: The experiences of partners of veterans with posttraumatic stress disorder. Prof. Psychol. Res. Pract. 2014, 45, 488–495. [Google Scholar] [CrossRef]
- Kuhn, E.; Greene, C.; Hoffman, J.; Nguyen, T.; Wald, L.; Schmidt, J.; Ramsey, K.M.; Ruzek, J. Preliminary Evaluation of PTSD Coach, a Smartphone App for Post-Traumatic Stress Symptoms. Mil. Med. 2014, 179, 12–18. [Google Scholar] [CrossRef] [Green Version]
- Matthews-Juarez, P.; Juarez, P.D.; Faulkner, R.T. Social Media and Military Families: A Perspective. J. Hum. Behav. Soc. Environ. 2013, 23, 769–776. [Google Scholar] [CrossRef]
- Sherman, M.D.; Rudi, J.H.; Westerhof, L.; Borden, L.M. Social Media Communication among Military Spouses: Review of Research and Recommendations for Moving Forward. Mil. Behav. Health 2016, 4, 325–333. [Google Scholar] [CrossRef]
- Rossetto, K.R.; Owlett, J.S. Social Media as an (Un)Supportive Resource for Military Partners Coping With Military Lifestyle Challenges. Armed Forces Soc. 2020, 0095327X2097439. [Google Scholar] [CrossRef]
- Bezeq. Bezeq Internet Report 2019–2020. 2020. Available online: https://media.bezeq.co.il/pdf/internetreport_2019.pdf (accessed on 1 April 2021).
- Gramlich, J. 10 Facts about Americans and Facebook|Pew Research Center; Pew Research Center: Washington, DC, USA, 2019; Available online: https://www.pewresearch.org/fact-tank/2019/05/16/facts-about-americans-and-facebook/ (accessed on 1 April 2021).
- Levi, O.; Lubin, G. Treatment seeking for posttraumatic stress in Israel Defense Forces veterans deployed in the Second Lebanon War (2006) and “Operation Cast Lead” in the Gaza Strip (2009): A comparative study. Anxiety Stress Coping 2018, 31, 328–337. [Google Scholar] [CrossRef] [PubMed]
- Shnoor, Y.; Ziv, A.; Brodesky, J.; Naom, D. Aging among Disabled IDF Veterans and Its Implications for the Need for Services (in Hebrew). 2017. Available online: https://brookdale.jdc.org.il/wp-content/uploads/2017/12/RR_726_17_Heb_report.pdf (accessed on 1 April 2021).
- Braun, V.; Clarke, V. Using thematic analysis in psychology. Qual. Res. Psychol. 2006, 3, 77–101. [Google Scholar] [CrossRef] [Green Version]
- Gavin, H. Thematic Analysis. In Understanding Research Methods and Statistics in Psychology; SAGE Publications Ltd.: Thousand Oaks, CA, USA, 2012; pp. 273–281. [Google Scholar] [CrossRef]
- Schrock, A.R. Communicative affordances of mobile media: Portability, availability, locatability, and multimediality. Int. J. Commun. 2015, 9, 1229–1246. Available online: https://ijoc.org/index.php/ijoc/article/view/3288 (accessed on 1 April 2021).
- Conole, G.; Dyke, M. What are the affordances of information and communication technologies? ALT-J 2004, 12, 113–124. [Google Scholar] [CrossRef]
- Pearce, K.E.; Vitak, J. Performing honor online: The affordances of social media for surveillance and impression management in an honor culture. New Media Soc. 2016, 18, 2595–2612. [Google Scholar] [CrossRef]
- Baym, N.K. Personal Connections in the Digital Age; John Wiley & Sons: Hoboken, NJ, USA, 2015. [Google Scholar]
Name | Gender | Role | Age | Education Level | Marital Status | WA | FB |
---|---|---|---|---|---|---|---|
Adam | Male | PTSD | 70 | B.A. | Divorced | * | * |
Avi | Male | PTSD | 52 | B.A. | Married | * | |
Merav | Female | PTSD | 63 | Post-secondary | Divorced | * | |
Amos | Male | PTSD | 41 | Secondary | Married | * | |
Asher | Male | PTSD | 55 | B.A. | Married | * | |
Aryeh | Male | PTSD | 77 | B.A. | Married | * | |
Barak | Male | PTSD | 37 | Secondary | Married | * | * |
Azriel | Male | PTSD | 34 | Secondary | Married | * | * |
Baruch | Male | PTSD | 35 | Post-secondary | Married | * | * |
Ben | Male | PTSD | 37 | Post-secondary | Married | * | * |
Boaz | Male | PTSD | 48 | B.A. | Married | * | |
Mia | Female | PTSD | 30 | Secondary | Single | * | |
Chaim | Male | PTSD | 39 | B.A. | Married | * | * |
Dan | Male | PTSD | 29 | B.A. | Single | * | |
David | Male | PTSD | 34 | B.A. | Married | * | |
Daniel | Male | PTSD | 41 | Post-secondary | Married | * | |
Doron | Male | PTSD | 64 | B.A. | Married | * | |
Ehud | Male | PTSD | 68 | B.A. | Divorced | * | |
Eldad | Male | PTSD | 65 | Primary | Married | * | |
Eliezer | Male | PTSD | 40 | Secondary | Married | * | * |
Miriam | Female | PTSD | 32 | M.A. or above | Married | * | * |
Ezra | Male | PTSD | 63 | Secondary | Married | * | |
Gad | Male | PTSD | 65 | Secondary | Married | * | * |
Natalie | Female | PTSD | 32 | M.A. or above | Single | * | * |
Gershon | Male | Facilitator | 55 | B.A. | Married | * | |
Nurit | Female | Partner | 30 | M.A. or above | Married | * | * |
Nava | Female | Partner | 58 | M.A. or above | Married | * | |
Noya | Female | Partner | 38 | Secondary | Married | * | * |
Orit | Female | Partner | 38 | Post-secondary | Married | * | * |
Rachel | Female | Partner | 48 | M.A. or above | Married | * | * |
Rina | Female | Partner | 29 | M.A. or above | Married | * | |
Sarah | Female | Partner | 53 | B.A. | Married | * | * |
Shira | Female | Partner | 60 | Secondary | Married | * | |
Shosh | Female | Partner | 48 | B.A. | Married | * |
Affordances | Themes | Participants’ Quotes |
---|---|---|
Visibility | Public nature of posts | I know some say WhatsApp is private. That’s bullshit. You have to be very careful and even more careful what you write on Facebook. I am very careful not to write anything suicidal. |
Disclosing PTSD condition | Lots of people commented on my first post. It filled me with lots of energy. On the other hand, it stressed me terribly cause I’m not used to this level of exposure. | |
Anonymity | There is no anonymity. Not in the WhatsApp group and not on Facebook. I tried to make our Facebook group as anonymous as possible. If you’re not a member, but you’re looking for the group, you can’t see the posts published, but you can see who the members are. | |
Availability | Immediacy | I can upload a post at 3 am and know that there will be immediate comments. Lots of group members are awake, and they’ll respond immediately. |
Reach | One member needed help with a doctor who would write him a prescription for medical marijuana. So I asked the group in the middle of the night and lots of people shared their experience. | |
Multimediality | Use of voice messages | If something happens at home, I record a message, share it with the girls, and then their reactions are encouraging. |
Use of video | In one video some veterans filmed themselves telling their story to raise awareness and raise donations for the organization. | |
Use of images | Sometimes I post photos of what needs to be done at night to go to sleep. Combinations of alcohol and drugs. Any possible way to sleep more than two hours without getting up and screaming. | |
Surveillance | Admins monitoring members | I was upset and left the group. Then the admin and another member wrote to me and convinced me to come back. |
Members monitor members | If someone leaves the group, suddenly there is complete hysteria. And the biggest panic is when someone writes, “Enough is enough” because he can kill himself within 15 min. | |
(A)synchronicity | Ongoing communication | Once people felt comfortable in the offline group, they continued connecting on the WhatsApp group and kept talking about the training. |
Discontinuous communication | Communication on Facebook works like movie cuts. A few days after writing about my trauma, I can upload entirely different content, like a selfie with my nephew, and no one remembers I wrote something hard and painful. | |
Controlling communication | On Facebook, we have control. We can look away when we feel like it, and we do not have to give in to any norms. Facebook is not invasive or intrusive. It’s nothing. |
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Yeshua-Katz, D. The Role of Communication Affordances in Post-Traumatic Stress Disorder Facebook and WhatsApp Support Groups. Int. J. Environ. Res. Public Health 2021, 18, 4576. https://doi.org/10.3390/ijerph18094576
Yeshua-Katz D. The Role of Communication Affordances in Post-Traumatic Stress Disorder Facebook and WhatsApp Support Groups. International Journal of Environmental Research and Public Health. 2021; 18(9):4576. https://doi.org/10.3390/ijerph18094576
Chicago/Turabian StyleYeshua-Katz, Daphna. 2021. "The Role of Communication Affordances in Post-Traumatic Stress Disorder Facebook and WhatsApp Support Groups" International Journal of Environmental Research and Public Health 18, no. 9: 4576. https://doi.org/10.3390/ijerph18094576
APA StyleYeshua-Katz, D. (2021). The Role of Communication Affordances in Post-Traumatic Stress Disorder Facebook and WhatsApp Support Groups. International Journal of Environmental Research and Public Health, 18(9), 4576. https://doi.org/10.3390/ijerph18094576