Moral Distress Events and Emotional Trajectories in Nursing Narratives during the COVID-19 Pandemic
Abstract
:1. Introduction
Moral Distress Memories and Emotions in Ethical Sense-Making
- Moral constraint: The moral agents think or feel that they know what is the most ethical action to take, but obstacles, real or perceived, internal or external, prevent them from taking it. The main emotions associated with this event are anger, frustration, powerlessness, and guilt;
- Moral tension: The moral agents feel or think they know what is the right thing to do, but do not share their point of view with others who think otherwise, and, therefore, do not engage in conflict. Therefore, they do not transform their moral principle into action, nor do they share it with colleagues. Anger, frustration, powerlessness, and guilt are frequently experienced emotions. Moral tension events can be precursors of moral conflict events;
- Moral conflict: The moral agents feel or think they know the right thing to do, and engage in conflict with people who have a different view on the decision to make. Moral conflict concerns an external and relational dimension and anger, frustration, powerlessness, and sadness are frequently experienced emotions;
- Moral dilemma: The moral agents feel or believe that there are two or more morally adequate actions, which are mutually exclusive. This means that nurses can choose to act in accordance with a moral principle, and, at the same time, feel that they have not respected another. Often a moral residue is present, along with emotions of guilt, strain, frustration, and sadness;
- Moral uncertainty: The moral agents cannot choose which moral principle to fulfil. Strain, frustration, and guilt are often present.
2. Materials and Methods
2.1. Tools and Participants
2.2. Methods of Data Analysis
- Shared reading of all the narratives, in order to identify which of the events narrated were representative of a condition of moral distress, in accordance with the characteristics described by the literature;
- For each category of moral distress events, the way in which the nurses’ memories were narrated was identified, highlighting the main morally demanding situations around which the ethical sense-making is articulated;
- Identification of the main emotions mentioned by the nurses in relation to the event of moral distress they narrated.
3. Results
- −
- Lack of organizational resources: In their narratives, the nurses remember situations in which external reasons made them feel that it was difficult to provide adequate health care. Some of the reasons were: the lack of beds in COVID-19 units and ICUs; the shortage of health workers and medications; the impossibility of confrontation among healthcare staff members; the inability to move freely and quickly in emergency situations; and the disorganization of hospitals and the lack of time.
“[...] At that time there were no beds in intensive care, so we continued to do many things that we knew were not enough. The patient had to be intubated, but there was no place to do it. You already knew the patient would get worse but there was nothing you could do to prevent it.” DNR-RV
- −
- The poor clinical knowledge on COVID-19: In their narratives, the nurses remember situations in which they felt unprepared facing the SARS-CoV-2 epidemic; moreover, the virus was manifesting itself differently in each patient, requiring different forms of treatment. This represents an internal and external constraint that confronts nurses with the lack of scientific references for a new and unknown virus.
“[...] Our lack of knowledge of what COVID-19 was in fact in its clinical manifestations and in its problems, led us to lose many patients and in a very short time and [...], we worked almost like an assembly line.” NTN-CG
- −
- Personal protective equipment as an obstacle: In their narratives, the nurses remember that the obligation to use protective equipment and the obligation of isolation, as well as the deprivation of contact with the outside, represent external constraints which, though indispensable for their safety, were often an impediment to material and emotional assistance to patients.
“[...] When patients are hospitalized, we are completely harnessed, so they have no external contact, except by telephone with their relatives. Then the state of isolation is added to the difficult situation linked to the protective devices they have to use … and from a psychological point of view they collapse.” MRI-RV
- −
- The inability to have a say: In their narratives, the nurses remember situations where they thought that more could be done to save some patients. On those occasions, however, they did not express their point of view, as, internally, they perceived that they did not have a space to share their own moral principles, possibly in contrast to those of doctors.
“A woman with various comorbidities was dying and I was so sorry that she practically died inside a ventilation hood and … without proper” sedation “[...]. There I could, as a health-care professional, insist and ask the doctor to act differently.” MRS-CG
- −
- Non-questionable medical choices: In the narratives, nurses remember not always being in agreement with the decisions made by doctors. They attempted forms of dialogue, and experienced conflicts in which they were defeated, due to the greater power of decision-making attributed to doctors. This led them to feel that they had not respected the fundamental ethical values of their profession, and to represent the hospital as a sometimes dehumanizing environment.
“I had a quarrel with the medical staff because of my ethics (which has always been in our ward), which is not to let patients die … or rather, to make them die in the best possible way. When we all understood that the man was dying, suffering and still wearing a ventilation hood, it was useless to continue his suffering, [...] instead, that night the medical staff insisted that he had to keep the ventilation hood on [...]. I asked several times during the night to take it off, but in the end I was unable to win.” FLR-RV
- −
- The choice of the “right” patient. In the narratives, the nurses remember that the health emergency led to a large number of infected people in need of hospitalization. This, in turn, led to the need to select those who could actually receive health care. Therefore, the nurses had to choose, from among several patients, the “right” ones who would undergo medical treatment, despite the fact that they all needed it in equal terms.
“The emergency doctor [...] said to us clearly: “Guys, I have one bed left, so, from the list of 10 people we ought to intubate, we have to pick up only one; then we will see if the others survive the night”. And we were there at the table to figure out who to intubate immediately and who to postpone to the following days instead, provided the patient was still alive. It was chilling enough, yes.” VRN-RV
- −
- The choice to take over communication with the family: In the narratives, nurses remember having to deal with the protocols regarding the issue of healthcare staff–caregivers communication regarding the patient’s clinical conditions. In particular, they recall that they had to choose between waiting for the doctor to take care of communicating with the family, and the instinct to take over this communication to alleviate the concern of family members.
“[...] Obviously no relatives could come to visit patients, right?! And so we also had to take phone calls. [...] When they call you, you are not in charge of informing the relatives on the patient’s conditions, as the doctor has the responsibility to communicate with them. I wondered how the family members felt; in any case, I had to be honest, but I tried to … reassure them even though I knew that unfortunately the patient was not going to survive. [...]” FRN-CG
- −
- The continuous transformation of the virus and of one’s actions. In the narratives, the nurses remember that the rapid mutation of the virus represented a strong factor of uncertainty about the right actions to take. This uncertainty also originated from the necessary reorganization of the nursing staff in the various departments and hospitals; as a result, nurses were suddenly sent into new departments, where they were asked to reinvent themselves in order to be able to cope with the serious emergency situation.
“[...] It is still unclear how to act with COVID. This virus is mutating so fast that drug therapy is good for one patient and less good for another. However, we do our best, we do everything we can. Anyway, I think there is still little clarity about this virus.” VTL-RV
- −
- Being unable to do anything to stop the deaths: In the narratives, nurses remember situations in which they could not do anything to save patients with COVID-19 from death; they gave support, not only material, but above all emotional, to infected patients who suddenly found themselves isolated and without any contact with the outside world.
“I felt bad, bad, bad. You feel helpless precisely because you can’t … you don’t know what to do because you are helpless, truly helpless [...] there was no time to manage one patient while another died. At the end of the evening I was on the verge of crying, yet I had been in it for a year [...] things could not have gone otherwise, it was inevitable.” CRS-RV
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Sex | % |
Male | 38% |
Female | 62% |
Years of Experience | % |
0 | 16% |
<5 | 72% |
>5 | 12% |
Geographical Location | % |
North (Italy) | 51% |
Center (Italy) | 5% |
South (Italy) | 44% |
Work Setting | % |
COVID-19 Unit | 11% |
Emergency–urgency health system | 89% |
Moral Events | COVID-19 Moral Issues | Main Emotions |
---|---|---|
Moral constraint |
| Powerlessness: feeling powerless and deprived of organizational and internal resources in the face of the war against the spreading virus |
Moral tension |
| Worthlessness: feeling inadequate in expressing their opinion on medical choices to be made in an emergency |
Moral conflict |
| Anger: feeling angry in response to medical decisions that conflict with their own opinion |
Moral dilemma |
| Sadness: feeling sad because choosing implies the loss of a possible option, or even a patient |
Moral uncertainty |
| Guilty: feeling guilty of not being able to make any decisions in situations of great confusion |
Moral compromise |
| Helplessness: feeling helpless in the face of a situation deemed immoral tout court |
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Lemmo, D.; Vitale, R.; Girardi, C.; Salsano, R.; Auriemma, E. Moral Distress Events and Emotional Trajectories in Nursing Narratives during the COVID-19 Pandemic. Int. J. Environ. Res. Public Health 2022, 19, 8349. https://doi.org/10.3390/ijerph19148349
Lemmo D, Vitale R, Girardi C, Salsano R, Auriemma E. Moral Distress Events and Emotional Trajectories in Nursing Narratives during the COVID-19 Pandemic. International Journal of Environmental Research and Public Health. 2022; 19(14):8349. https://doi.org/10.3390/ijerph19148349
Chicago/Turabian StyleLemmo, Daniela, Roberta Vitale, Carmela Girardi, Roberta Salsano, and Ersilia Auriemma. 2022. "Moral Distress Events and Emotional Trajectories in Nursing Narratives during the COVID-19 Pandemic" International Journal of Environmental Research and Public Health 19, no. 14: 8349. https://doi.org/10.3390/ijerph19148349
APA StyleLemmo, D., Vitale, R., Girardi, C., Salsano, R., & Auriemma, E. (2022). Moral Distress Events and Emotional Trajectories in Nursing Narratives during the COVID-19 Pandemic. International Journal of Environmental Research and Public Health, 19(14), 8349. https://doi.org/10.3390/ijerph19148349