Cultural Differences in Patients’ Preferences for Paternalism: Comparing Mexican and American Patients’ Preferences for and Experiences with Physician Paternalism and Patient Autonomy
Abstract
:1. Introduction
Is Autonomy a Cultural Universal?
2. Methods
2.1. Participants
2.2. Interview Questions
- Paternalism/El Paternalismo: A relationship in which the physician has substantial/most control and authority over the patient’s healthcare decisions./Una relación en la que el médico tiene un control sustancial/ mayor y más autoridad sobre las decisiones de atención médica del paciente.
- Autonomy/La Autonomía: A relationship in which the patient has substantial/most control and authority over their own healthcare decisions./Una relación en la que el paciente tiene un control sustancial/ mayor y más autoridad sobre sus propias decisiones de atención médica.
2.3. Methods of Analysis
3. Results
3.1. Group Preferences Data
3.1.1. Group Preferences: White American Respondents
3.1.2. Group Preferences: Mexican Respondents
3.2. Group Experiences Data
3.2.1. White American Respondents Experiences of Paternalism with U.S. Physicians
3.2.2. Qualitative Data Explaining Respondents’ Definitions of Paternalism
Mexican American Respondents’ Experiences with American and Mexican Physicians
White American Respondents’ Experiences with American Physicians
Mexican Respondents’ Experiences with Mexican Physicians
4. Discussion
4.1. Differences in Preferences for Physician Paternalism vs. Patient Autonomy
4.2. Cultural Differences in Experiences with Physician Paternalism vs. Patient Autonomy
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Appendix A. Interview Questions
- 1
- How many times would you say you’ve gone to see a doctor in the past year?
- 2
- Do you usually go to the same doctor or do you see different doctors?
- 3
- What is the ethnic background of the doctor that you usually see?
- 4
- Describe the relationship that you have with the doctor you usually see. (Probes: Do they know much about you? Your family? Do you know much about them?)
- 5
- How would you describe the personality of the doctor you usually see?
- 6
- When your doctor gives you a diagnosis and a treatment plan:
- Does your doctor consult with you when deciding on a treatment plan? Which do you prefer (i.e., do you prefer that your doctor give you choices between treatments or would you prefer if they make the treatment decisions)?
- At the end of the day, who makes the final treatment decision, you or your doctor or both?
- Do you prefer to play a bigger part in the treatment decision making process, or do you prefer for your doctor to play a bigger part in the treatment decision making process?
- Do you prefer for your doctor to know a lot about you personally?
- Is it weird if they ask about aspects of your personal life that are unrelated to the reason you are seeing the doctor? Do you prefer it when your doctor asks about your personal life?
- Is it okay for your doctor to give you advice about aspects of your personal life that are unrelated to the reasons you are seeing the doctor? Do you prefer doctors that give such advice?
- Have you ever questioned your doctor’s treatment decision? For example, have you ever NOT taken a medicine that your doctor prescribed? If so, why did you choose not to? If not, can you imagine a situation in which you would not follow your doctor’s orders for treatment?
- 7
- Can you briefly describe the ethnic/cultural background of doctors that you have liked in the U.S. (or Mexico)? What was good about those experiences?
- 8
- Can you briefly describe the ethnic/cultural background of doctors that you have not liked in the U.S. (or Mexico)? What was bad about those experiences?
- 9
- For doctors with different/ethnic cultural backgrounds, of the doctors that you liked, are any of them from ethnic/cultural backgrounds different from your own?
- 10
- (For American respondents) Do you have any Latinx friends?
- Have they ever shared anything with you about their experiences (good or bad) with doctors? If so, was the doctor American or another nationality/ethnicity? What did they say about it?
Hypotheticals
1 | 2,3 | 4 | 5,6 | 7 | ||||
perfectly normal | in between | a little WAUS | in between | highly WAUS |
- 11
- You are taking a medication that could cause depression and you tell your doctor that you don’t want to take the depression medication and your doctor tells you “if you get depressed, you must take the medication”. Why WAUS or why not?
- 12
- You go to the doctor with your son and his hair is long and shaggy and your doctor tells you to get your son a haircut. Why WAUS or why not?
- 13
- Your doctor tells you that you need to lose weight and then says “you have to exercise everyday”. Why WAUS or why not?
- 14
- During a regular check-up, your doctor tells you not to look at “very ugly things” (i.e., pornography) on the internet. Why WAUS or why not?
- 15
- (Question only for women who have been pregnant) After an ultrasound, your doctor wipes off your abdomen and zips and buttons up your pants for you. Why WAUS or why not?
- 16
- You go to the doctor with a particular concern (e.g., swelling in your feet) and your doctor asks you whether or not you want to take a medication (e.g., diuretic pills that help remove the liquid), would you think that is unusual? Why WAUS or why not?
- If you then agreed to the prescription and then you experienced side effects, would you be more or less likely to keep taking the medication if he asked if you wanted to take the medication rather than if he had told you “you must take the medication”?
- 17
- Imagine you are a young single adult and go to your doctor and he tells you that you must get married. Why WAUS or why not?
- 18
- Would you think it strange if you went to your annual check-up and your weight had been consistently increasing and your overweight doctor said to you “I’m not very good to talk about weight control to anybody” and then gave you basic advice about a good diet? Why WAUS or why not? Would you be more or less likely to follow his instructions as compared to if the doctor had said “you are overweight and need to watch what you eat and make sure that you have a well-balanced diet”? Would it have seemed more strange if they were to have said that?
- 19
- In your experience with American (or Mexican) doctors,
- RE: decision making, do they tell you what they want to do or do they give you information and let you decide what the best course of action is?
- RE: involvement/care, do they tend to know a lot about you personally? Do they ask a lot about you personally that may not be directly related to the reason you are seeing them?
- RE: advice-giving, do they tend to give you advice about your personal life and personal affairs even if it is not relevant to the reason you are seeing them?
- Define paternalism and autonomy
- 20
- Do you prefer paternalism or autonomy in healthcare?
- Why?
- 21
- In your experience, are mainstream American (or Mexican) doctors more paternalistic or autonomous?
- 22
- (IF yes to 10) In your experience/understanding, are Mexican doctors more paternalistic or autonomous?
Appendix B. Codebook 1
- Doctor Professionalism
- Lack of Professionalism: American
- Lack of Professionalism: Mexican
- American doctors
- Mexican doctors
- Concerns about paternalism
- American doctors
- Mexican doctors
- Concerns about autonomy
- Money concerns
- Lack of authority
- Actions showing lack of authority
- Interpretation of actions
- Support for paternalism
- American support
- Mexican support
- Authority of doctor
- Actions showing authority of doctor
- Interpretation of actions showing authority
- Confident (vs. Uncertain or unsure)
- Decision-making
- Support for autonomy
- American support
- Mexican support
- Shared decision-making
- Mexican doctors are more paternalistic
- Actions supporting paternalism of Mexican doctors
- Interpretation of actions supporting paternalism of Mexican doctors
- Care1-Physical and emotional caring
- Actions demonstrating lack of care1
- Actions demonstrating care1
- Interpretations of actions demonstrating care1
- Care2-Personal business, moral advice
- Actions demonstrating care2
- Interpretation of actions demonstrating care2
Appendix C. Codebook 2
- Characterizations of paternalism/autonomy
- Autonomy-informed decision-making
- Autonomy-doctor and patient as equals (collaboration)
- Autonomy-control over body
- Paternalism-authoritative doctor
- Arrogant
- Dismissive
- Paternalism-familism
- Care for well-being
- Paternalism-doctor’s expertise
- Patient decides if they agree with doctor
- Patient admits they are unqualified
- Autonomy
- People who say they prefer Autonomy, but describe something else
- Describe paternalism
- Describe mix
- People who prefer autonomy (numbers and story)
- Mexican
- Mexican-American
- American
- Paternalism
- People who say they prefer Paternalism but describe something else
- Describe autonomy
- Describe mix
- People who prefer paternalism (numbers and story)
- Mexican
- Mexican-American
- American
- Mix
- People who say P/A but give details as Mix
- Mix in middle
- Mix leaning toward autonomy
- Mix leaning toward paternalism
- Mix stories
- Mix preference
- Narratives
- Very influential experiences
- Paternalism experiences
- Mix experiences
- Negative experiences
- Positive experiences
- Autonomy experiences
- Mix experiences
- Negative experiences
- Positive experiences
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White American | Mexican American | Mexican | |||
---|---|---|---|---|---|
Location | Number | Location | Number | Location | Number |
California | 3 | California | 2 | Hidalgo | 16 |
Idaho | 1 | Kansas | 2 | Nuevo Leon | 1 |
Texas | 1 | New Mexico | 2 | Tamaulipas | 2 |
Utah | 10 | Texas | 2 | Veracruz | 1 |
Washington | 5 | Utah | 5 | ||
Washington | 7 | ||||
Total | 20 | 20 | 20 |
Interview Language | Gender | Age | Interview Time | ||||
---|---|---|---|---|---|---|---|
Group | Spanish | English | Female | Male | Range | Mean | Average (min:sec) |
White American | 0 | 20 | 12 | 8 | 30–58 | 47.5 | 36:39 |
Mexican American | 3 | 17 | 15 | 5 | 31–60 | 48.6 | 39:27 |
Mexican | 20 | 0 | 15 | 5 | 33–65 | 48.7 | 30:42 |
Total | 23 | 37 | 42 | 18 | 30–65 | 48.2 | 35:36 |
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Share and Cite
Thompson, G.A.; Segura, J.; Cruz, D.; Arnita, C.; Whiffen, L.H. Cultural Differences in Patients’ Preferences for Paternalism: Comparing Mexican and American Patients’ Preferences for and Experiences with Physician Paternalism and Patient Autonomy. Int. J. Environ. Res. Public Health 2022, 19, 10663. https://doi.org/10.3390/ijerph191710663
Thompson GA, Segura J, Cruz D, Arnita C, Whiffen LH. Cultural Differences in Patients’ Preferences for Paternalism: Comparing Mexican and American Patients’ Preferences for and Experiences with Physician Paternalism and Patient Autonomy. International Journal of Environmental Research and Public Health. 2022; 19(17):10663. https://doi.org/10.3390/ijerph191710663
Chicago/Turabian StyleThompson, Gregory A., Jonathan Segura, Dianne Cruz, Cassie Arnita, and Leeann H. Whiffen. 2022. "Cultural Differences in Patients’ Preferences for Paternalism: Comparing Mexican and American Patients’ Preferences for and Experiences with Physician Paternalism and Patient Autonomy" International Journal of Environmental Research and Public Health 19, no. 17: 10663. https://doi.org/10.3390/ijerph191710663
APA StyleThompson, G. A., Segura, J., Cruz, D., Arnita, C., & Whiffen, L. H. (2022). Cultural Differences in Patients’ Preferences for Paternalism: Comparing Mexican and American Patients’ Preferences for and Experiences with Physician Paternalism and Patient Autonomy. International Journal of Environmental Research and Public Health, 19(17), 10663. https://doi.org/10.3390/ijerph191710663