Lung Support Service: Implementation of a Nationwide Text Message Support Program for People with Chronic Respiratory Disease during the COVID-19 Pandemic
Abstract
:1. Introduction
2. Methods
2.1. Study Design
2.2. Participants and Recruitment
2.3. Texting for Wellness: Lung Support Service Intervention
2.4. RE-AIM Framework
2.5. Analyses
3. Results
3.1. Reach and Representativeness
3.2. Enablers and Barriers to Adoption
3.2.1. Engagement Enablers and Barriers
THEME 1. EXPERIENCING HEALTHCARE SUPPORT |
Feeling supported |
Just letting me know you were always there to support me—Female, age 41, Major City |
It feels like someone is out there who truly cares and can depend on—Male, age 64, Major City |
It had the knack of providing the right support at exactly the right time—Female, age 64, Inner Regional Australia |
Mental health benefits of feeling less alone |
Although I’m aware the messages were generated electronically, it made me feel less alone. The support provided has been wonderful and I’m very grateful for being involved—Female, age 64, Major City |
I felt so much less alone by receiving these tips that though generic felt written in a very caring way specifically for me. Great for my mental well being too—Female, age 70, Major City |
I felt alone with my condition before I subscribed to the messages—Female, age 64, Inner Regional Australia |
THEME 2. USEFUL FOR MANAGING MY HEALTH |
Informative |
Very informative and I learnt some new things I was unaware of—Female, age 69, Inner Regional Australia |
The messages gave me valid information, but not overloaded it—Female, age 70, Very Remote Australia |
Learnt some coping tips didn’t know. Main one, when breathless bend forward with arms resting in front of you—Male, age 70, Major City |
Easy to understand |
They were easy to understand and gave easy to follow instructions when needed—Female, age 65, Major City |
Even people with basic reading skills can follow these—Female, age 65, Major City |
Gentle health reminders that motivated behaviour change |
It was daily reminders of good things to do for myself that would help my quality of life. I thought they were great prompts—Female, age 68, Inner Regional Australia |
It reminded me of the very small things I can do to make a difference to my own lung health and wellbeing. Encouraged me to challenge myself and not get disheartened—Female, age 70, Major City |
They form a reassurance that exercise, diet, other simple strategies like breathing and recovery are in my control, and can benefit my condition—Male, age 66, Major City |
SUGGESTIONS FOR PROGRAM IMPROVEMENT: CONTROL OVER PROGRAM FEATURES |
Program length |
The only negative thing is that it has finished and I will no longer receive my comforting, helpful messages any longer—Female, age 62, Major City |
Loved the program, could only be improved by extending the program—Female, age 66, Major City |
The program should be ongoing: it is good for staying motivated—Male, age 68, Outer Regional Australia |
Message frequency |
I received daily messages… on the odd busy day I did ignore them till after work but always looked at them in the evening…so maybe an option of how many messages a week would be my only note—Female, age 54, Inner Regional Australia |
Too many messages. Sometimes up to 4 consecutive days. Preferable to have less and be able to focus on one thing more slowly—Female, age 77, Major City |
More detailed information |
I would like to see some advice about condition specific actions. Keeping it general weakens the type of help that this can provide—Male, age 66, Inner Regional Australia |
Could be more new information instead of basic information which people with COPD already know. It was useful as memory jogger—Male, age 74, Major City |
Some messages needed a little more detail—Female, age 71, Inner Regional Australia |
3.2.2. Suggestions for Improvement
3.3. Implementation and Maintenance: Program Fidelity and Costs
4. Discussion
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
- Soriano, J.B.; Kendrick, P.J.; Paulson, K.R.; Gupta, V.; Abrams, E.M.; Adedoyin, R.A.; Adhikari, T.B.; Advani, S.M.; Altirkawi, K.A.; Ahmadian, E.; et al. Prevalence and attributable health burden of chronic respiratory diseases, 1990–2017: A systematic analysis for the Global Burden of Disease Study 2017. Lancet Respir. Med. 2020, 8, 585–596. [Google Scholar] [CrossRef] [PubMed]
- Labaki, W.W.; Han, M.K. Chronic respiratory diseases: A global view. Lancet Respir. Med. 2020, 8, 531–533. [Google Scholar] [CrossRef] [PubMed]
- Australian Institute of Health and Welfare Chronic Respiratory Conditions. Available online: https://www.aihw.gov.au/reports-data/health-conditions-disability-deaths/chronic-respiratory-conditions/overview (accessed on 21 November 2022).
- Ries, A.L. Pulmonary Rehabilitation: Summary of an Evidence-Based Guideline. Respir. Care 2008, 53, 1203–1207. [Google Scholar] [PubMed]
- McCarthy, B.; Casey, D.; Devane, D.; Murphy, K.; Murphy, E.; Lacasse, Y. Pulmonary rehabilitation for chronic obstructive pulmonary disease. Cochrane Database Syst. Rev. 2015, 2, Cd003793. [Google Scholar] [CrossRef] [PubMed]
- World Health Organisation. WHO Director-General’s Opening Remarks at the Media Briefing on COVID-19—11 March 2020. Available online: https://wwwwhoint/director-general/speeches/detail/who-director-general-s-opening-remarks-at-the-media-briefing-on-covid-19---11-march-2020 (accessed on 21 November 2022).
- Gerayeli, F.V.; Milne, S.; Cheung, C.; Li, X.; Yang, C.W.T.; Tam, A.; Choi, L.H.; Bae, A.; Sin, D.D. COPD and the risk of poor outcomes in COVID-19: A systematic review and meta-analysis. EClinicalMedicine 2021, 33, 100789. [Google Scholar] [CrossRef]
- Michaelchuk, W.; Oliveira, A.; Marzolini, S.; Nonoyama, M.; Maybank, A.; Goldstein, R.; Brooks, D. Design and delivery of home-based telehealth pulmonary rehabilitation programs in COPD: A systematic review and meta-analysis. Int. J. Med. Inform. 2022, 162, 104754. [Google Scholar] [CrossRef]
- Australian Government Risk Factors for More Serious Illness. Available online: https://www.health.gov.au/health-alerts/covid-19/advice-for-groups-at-risk/risk-factors-for-more-serious-illness (accessed on 11 November 2022).
- Bank My Cell How Many Smartphones Are in The World? Available online: https://www.bankmycell.com/blog/how-many-phones-are-in-the-world (accessed on 21 November 2022).
- Statista Number of Smartphone Users in Australia in 2017 with an Estimate until 2026. Available online: https://www.statista.com/statistics/467753/forecast-of-smartphone-users-in-australia/ (accessed on 21 November 2022).
- Client SAT Mobile Phone Coverage in Australia. Available online: https://clientsat.com.au/pages/mobile-phone-coverage-in-australia (accessed on 21 November 2022).
- Statista Active Internet Users as Percentage of the Total Population in Australia from 2015 to 2022. Available online: https://www.statista.com/statistics/680142/australia-internet-penetration/ (accessed on 21 November 2022).
- Chow, C.K.; Redfern, J.; Hillis, G.S.; Thakkar, J.; Santo, K.; Hackett, M.L.; Jan, S.; Graves, N.; de Keizer, L.; Barry, T.; et al. Effect of Lifestyle-Focused Text Messaging on Risk Factor Modification in Patients with Coronary Heart Disease: A Randomized Clinical Trial. JAMA 2015, 314, 1255–1263. [Google Scholar] [CrossRef]
- Chow, C.K.; Klimis, H.; Thiagalingam, A.; Redfern, J.; Hillis, G.S.; Brieger, D.; Atherton, J.; Bhindi, R.; Chew, D.P.; Collins, N.; et al. Text Messages to Improve Medication Adherence and Secondary Prevention After Acute Coronary Syndrome: The TEXTMEDS Randomized Clinical Trial. Circulation 2022, 145, 1443–1455. [Google Scholar] [CrossRef]
- Schrijver, J.; Lenferink, A.; Brusse-Keizer, M.; Zwerink, M.; van der Valk, P.; van der Palen, J.; Effing, T.W. Self-management interventions for people with chronic obstructive pulmonary disease. Cochrane Database Syst. Rev. 2022, 1, CD002990. [Google Scholar]
- Seidman, Z.; McNamara, R.; Wootton, S.; Leung, R.; Spencer, L.; Dale, M.; Dennis, S.; McKeough, Z. People attending pulmonary rehabilitation demonstrate a substantial engagement with technology and willingness to use telerehabilitation: A survey. J. Physiother. 2017, 63, 175–181. [Google Scholar] [CrossRef]
- Glasgow, R.E.; Harden, S.M.; Gaglio, B.; Rabin, B.; Smith, M.L.; Porter, G.C.; Ory, M.G.; Estabrooks, P.A. RE-AIM Planning and Evaluation Framework: Adapting to New Science and Practice With a 20-Year Review. Front. Public Health 2019, 7, 64. [Google Scholar] [CrossRef]
- Redfern, J.; Santo, K.; Coorey, G.; Thakkar, J.; Hackett, M.; Thiagalingam, A.; Chow, C.K. Factors Influencing Engagement, Perceived Usefulness and Behavioral Mechanisms Associated with a Text Message Support Program. PLoS ONE 2016, 11, e0163929. [Google Scholar] [CrossRef] [Green Version]
- Redfern, J.; Hyun, K.; Singleton, A.; Hafiz, N.; Raeside, R.; Spencer, L.; Carr, B.; Caterson, I.; Cullen, J.; Ferry, C.; et al. ITM support for patients with chronic respiratory and cardiovascular diseases: A protocol for a randomised controlled trial. BMJ Open 2019, 9, e023863. [Google Scholar] [CrossRef]
- Australian Bureau of Statistics. 2033.0.55.001—Census of Population and Housing: Socio-Economic Indexes for Areas (SEIFA), Australia. 2016. Available online: https://www.abs.gov.au/ausstats/[email protected]/Lookup/by%20Subject/2033.0.55.001~2016~Main%20Features~IRSAD~20 (accessed on 5 May 2022).
- Australian Government Department of Health and Aged Care. Australian Statistical Geographical Classication—Remoteness Area. Canberra. 2021. Available online: https://www.health.gov.au/health-topics/health-workforce/health-workforce-classifications/australian-statistical-geographical-classification-remoteness-area (accessed on 23 May 2022).
- Smith, J.; Firth, J. Qualitative data analysis: The framework approach. Nurse Res. 2011, 18, 52–62. [Google Scholar] [CrossRef] [Green Version]
- Hall, A.K.; Cole-Lewis, H.; Bernhardt, J.M. Mobile text messaging for health: A systematic review of reviews. Annu. Rev. Public Health 2015, 36, 393–415. [Google Scholar] [CrossRef] [Green Version]
- Agyapong, V.I.O.; Hrabok, M.; Vuong, W.; Shalaby, R.; Noble, J.M.; Gusnowski, A.; Mrklas, K.J.; Li, D.; Urichuk, L.; Snaterse, M.; et al. Changes in Stress, Anxiety, and Depression Levels of Subscribers to a Daily Supportive Text Message Program (Text4Hope) During the COVID-19 Pandemic: Cross-Sectional Survey Study. JMIR Ment. Health 2020, 7, e22423. [Google Scholar] [CrossRef]
- Topolovec-Vranic, J.; Natarajan, K. The Use of Social Media in Recruitment for Medical Research Studies: A Scoping Review. J. Med. Internet Res. 2016, 18, e286. [Google Scholar] [CrossRef]
- Roberts, N.J.; Younis, I.; Kidd, L.; Partridge, M.R. Barriers to the implementation of self management support in long term lung conditions. Lond. J. Prim. Care 2013, 5, 35–47. [Google Scholar] [CrossRef] [Green Version]
- Thew, G.R.; MacCallam, J.; Salkovskis, P.M.; Suntharalingam, J. Developing and evaluating psychological provision in the acute hospital setting for patients with chronic respiratory disease. Cogn. Behav. Ther. 2017, 10, e5. [Google Scholar] [CrossRef]
- Ishikawa, H.; Yano, E. Patient health literacy and participation in the health-care process. Health Expect. 2008, 11, 113–122. [Google Scholar] [CrossRef] [Green Version]
- Santomauro, D.F.; Mantilla Herrera, A.M.; Shadid, J.; Zheng, P.; Ashbaugh, C.; Pigott, D.M.; Abbafati, C.; Adolph, C.; Amlag, J.O.; Aravkin, A.Y.; et al. Global prevalence and burden of depressive and anxiety disorders in 204 countries and territories in 2020 due to the COVID-19 pandemic. Lancet 2021, 398, 1700–1712. [Google Scholar] [CrossRef] [PubMed]
- Taylor, S.J. Supported self-management for respiratory conditions in primary care: FAQs and evience. Prim. Care Respir. 2017, 4, 11–15. [Google Scholar]
- Meyer, V.M.; Benjamens, S.; Moumni, M.E.; Lange, J.F.M.; Pol, R.A. Global Overview of Response Rates in Patient and Health Care Professional Surveys in Surgery: A Systematic Review. Ann. Surg. 2022, 275, e75. [Google Scholar] [CrossRef] [PubMed]
- Buchholz, S.W.; Wilbur, J.; Ingram, D.; Fogg, L. Physical Activity Text Messaging Interventions in Adults: A Systematic Review. Worldviews Evid. -Based Nurs. 2013, 10, 163–173. [Google Scholar] [CrossRef]
- Spark, L.C.; Fjeldsoe, B.S.; Eakin, E.G.; Reeves, M.M. Efficacy of a Text Message-Delivered Extended Contact Intervention on Maintenance of Weight Loss, Physical Activity, and Dietary Behavior Change. JMIR Mhealth Uhealth 2015, 3, e88. [Google Scholar] [CrossRef]
n/N (%) | |
---|---|
Characteristic | Total N = 707 |
Demographics | |
Age (years), mean (SD); range (min-max) | 67.8 (9.2); 23–87 |
Gender | |
Male | 204/707 (28.9) |
Female | 501/707 (70.9) |
Current Smoker | |
Yes | 118/707 (16.7) |
No | 589/707 (83.3) |
Index of Relative Socio-economic Advantage and Disadvantage [IRSAD], categorized from postcode | |
Quintile 1 (most disadvantaged) | 152/695 (21.9) |
Quintile 2 | 166/695 (23.9) |
Quintile 3 | 155/695 (22.3) |
Quintile 4 | 103/695 (14.8) |
Quintile 5 (least disadvantaged) | 119/695 (17.1) |
Australian Standard Geographical Classification Remoteness Area | |
Major City | 386/695 (55.5) |
Inner Regional Australia | 222/695 (31.9) |
Outer Regional Australia | 79/695 (11.4) |
Remote Australia | 6/695 (0.9) |
Very Remote Australia | 2/695 (0.3) |
Characteristic | No./Total (%) a |
---|---|
Usefulness b | |
Found messages useful | 303/326 (92.9) |
Majority of messages were easy to understand | 321/326 (98.5) |
Program helped participant feel supported | 301/326 (92.3) |
Motivation and health management b | |
Messages helped me manage my health | 287/326 (88.0) |
Messages motivated me to be physically active | 267/326 (81.9) |
Messages motivated to eat healthier | 239/324 (73.8) |
Message sharing | |
Friend | 95/326 (29.1) |
Family member | 154/326 (47.2) |
GP/doctor | 58/326 (17.8) |
Specialist | 24/326 (7.4) |
Nobody | 105/326 (32.2) |
Program characteristics | |
Language of text messages ‘just right’ c | 308/326 (94.5) |
Number of messages per week ‘just right’ d | 300/326 (92.0) |
6-month program length was ‘just right’ e | 236/326 (72.4) |
6-month program length was ‘too short’ or ‘much too short’ e | 79/326 (24.2) |
Time of day receiving messages was appropriate b | 272/323 (84.2) |
Publisher’s Note: MDPI stays neutral with regard to jurisdictional claims in published maps and institutional affiliations. |
© 2022 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Raeside, R.; Singleton, A.C.; Todd, A.; Partridge, S.R.; Hyun, K.K.; Kulas, H.; Wootton, S.L.; Dale, M.T.; Alison, J.A.; McKeough, Z.; et al. Lung Support Service: Implementation of a Nationwide Text Message Support Program for People with Chronic Respiratory Disease during the COVID-19 Pandemic. Int. J. Environ. Res. Public Health 2022, 19, 17073. https://doi.org/10.3390/ijerph192417073
Raeside R, Singleton AC, Todd A, Partridge SR, Hyun KK, Kulas H, Wootton SL, Dale MT, Alison JA, McKeough Z, et al. Lung Support Service: Implementation of a Nationwide Text Message Support Program for People with Chronic Respiratory Disease during the COVID-19 Pandemic. International Journal of Environmental Research and Public Health. 2022; 19(24):17073. https://doi.org/10.3390/ijerph192417073
Chicago/Turabian StyleRaeside, Rebecca, Anna C. Singleton, Allyson Todd, Stephanie R. Partridge, Karice K. Hyun, Helen Kulas, Sally L. Wootton, Marita T. Dale, Jennifer A. Alison, Zoe McKeough, and et al. 2022. "Lung Support Service: Implementation of a Nationwide Text Message Support Program for People with Chronic Respiratory Disease during the COVID-19 Pandemic" International Journal of Environmental Research and Public Health 19, no. 24: 17073. https://doi.org/10.3390/ijerph192417073
APA StyleRaeside, R., Singleton, A. C., Todd, A., Partridge, S. R., Hyun, K. K., Kulas, H., Wootton, S. L., Dale, M. T., Alison, J. A., McKeough, Z., McNamara, R. J., Spencer, L., Jenkins, C., & Redfern, J. (2022). Lung Support Service: Implementation of a Nationwide Text Message Support Program for People with Chronic Respiratory Disease during the COVID-19 Pandemic. International Journal of Environmental Research and Public Health, 19(24), 17073. https://doi.org/10.3390/ijerph192417073