Sustainable Care in a Familialist Regime: Coping with Elderly Care in Slovenia
Abstract
:1. Introduction
2. Coping Strategies: Related Literature
3. Materials and Methods
3.1. Design, Setting, and Sample
3.2. Procedures
3.3. Data Analysis
4. Results
4.1. Coping Strategies of Family Carers in Slovenia
4.1.1. External Coping Strategies
This situation has lasted already a couple of years. And I started feeling tired. This is why I found help. A doctor gave me advice on using social home help, as I did not know this existed. And I called them up, where they organise this and they helped me. But there is not enough help, as much as one would need….(I55, CG, female)
I called the Centre for Social Home Help and they said ‘No way’ that they could come and help for an hour (…). And then we waited. This was at the end of summer and we waited until March of the next year.(I14, female)
Another thing that is very inconvenient is that they do not do the bandaging of the legs. At the start, they did that. But then it was said that it is too medical and they do not do that. This is most unpractical since you have to be present at the exact time they dress her, to bandage the legs. There is no solution here. You have to be at home.(I16, CG, female)
Only that the hours would change. Not at 7 am, but at 8 in the morning. Only this, nothing else.(I18, CR, female)
The difference is that on the weekends those carers come, who do not know exactly… This transition is not ok. Sometimes the new people come and grandma is very angry since they do not know how to handle her. And they come earlier and are in a hurry, as they have more users.(I5, CG, male)
Well, I have a large family and we have divided this a little. So, it isn’t just me. Not only one person. We are 5, 6 carers in the game, so it is all divided.(I59, CG, female)
Yes, the daughter lives in (city in another country). (…). And the son lives in (city in the country). But he is so busy, so that under no circumstances could he… well, if I need something yes. But to be a large help, then no.(LP1, CG)
We have to go separately, I went on a trip that I would have preferred to take together, if it were possible.(LP31, female)
It is like that, I have a good neighbour. She has sometimes looked over my father, when we had to go to the doctor. And another neighbour is here across, who I can call upon.(Lp4, CG)
When I lived in (a bigger city), I came every week. I had an apartment in a house. When my mother become immobile, I said they should come to leave on the ground floor and I would move in on the upper floor. But they didn’t want to hear about that. So I moved with my son here, to be available to them.(I28, CG)
In 2014, I moved here because I was too tired with that every day. You cannot have one woman and a house and an apartment… managing two households was too much. We decided that I should come here. I slept over a few nights. And we decided this would not be so bad. And so it came that I stayed here.(Intervju14, CG, female)
You see, we built this ramp so that we can go out with a wheelchair. We made a bathroom without a tub, only tiles on the floor. And we bought a wheel chair, for showering.(I 14, CG, female)
4.1.2. Internal Coping Strategies
Recently, I changed my schedule so that I work from 9 am to 1 pm and come home (….) I did this also before, but I worked more hours. Now I have cut my working hours and work from 9 to 1 pm.(I28, CG, female)
Well, I simply forgot a bit about my own life. Now, after 2 years, I wonder if that is really expected and demanded from me, that I neglect my personal life, my personal pleasures. Or that I put my children second. Because I first make sure that they (mother and father in law) are taken care of ….(Intrevju11, female)
What can I say? I am trapped. This is how it is, I cannot go anywhere… mostly at home.(LP18, CG, female)
To tell you honestly, we haven’t been on vacation for 5 years. And if we go somewhere, we need to find a replacement. For example, the mother of my daughter in law died in February and we had to find someone.(LP29, CG, male)
Instead of going for a walk in the evening, I came over to them. I have this in me, I know that dad would take care of…, but I still come and check the medicines, sometimes they are already in bed, I just say hi, sometimes we put pyjamas on and take care of things.(LP11, CG, female)
Everything is upside down. Not bad, you know. If you have people around you and you get what you need, it is fine. Best to say thank you and thank god it is like this.(I12, CR, female)
Well, you need to just accept this change… I cannot say it was easy. But it is like this, life goes as it goes. And you handle every day as it comes. This is not some high philosophy.(LP22, CG)
You have to adjust your way of life. Basically, you have to give up everything.(LP31, CG, female)
Sometimes, I cannot find the strength for everything. What bothers me is guilt that I do not do enough. For mum, for my husband, or for the kids. I am always haunted by guilt.(I55, CG, female)
I sometimes feel I would need professional help, to be educated on how to deal with older people, if they fall, if they vomit… in that sense. How to react….(I30, CG, female)
24 h a day. 24 h a day for me. It is boring, to be like this 24 h a day. I do nothing.(I3, CR, male)
Maybe if someone would come and maybe talk, maybe 1 h maximum. Or play a game xxx, so that she gets distracted.(Lp2, CG)
If it were possible… I recently saw on television something on dementia, on how we should work on with people more. Not only this basic, but for example, with music. So that one would work with the person, as if they are living in the time when they remember everything. And play that music.(I56, CG, female)
5. Discussion
6. Conclusions
Author Contributions
Funding
Acknowledgments
Conflicts of Interest
References
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Government-Supported/-Addressed Strategy | Active/Passive Strategy | |
---|---|---|
External coping strategies | ||
using formal care services | yes | active |
use of the extended family network | no | active |
use of a wider social network | no | active |
cohabitation strategy | no | active |
home adjustments | no | active |
Internal coping strategies | ||
work-related adjustments | partly | active |
abandoning leisure activities, routines | no | passive |
abandoning vacations | no | passive |
keeping and establishing new routines | no | active |
accepting and finding satisfaction in care | partly | active |
worries and overburdening linked to care | no | active |
some needs remain unmet | no | passive |
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Hrast, M.F.; Hlebec, V.; Rakar, T. Sustainable Care in a Familialist Regime: Coping with Elderly Care in Slovenia. Sustainability 2020, 12, 8498. https://doi.org/10.3390/su12208498
Hrast MF, Hlebec V, Rakar T. Sustainable Care in a Familialist Regime: Coping with Elderly Care in Slovenia. Sustainability. 2020; 12(20):8498. https://doi.org/10.3390/su12208498
Chicago/Turabian StyleHrast, Maša Filipovič, Valentina Hlebec, and Tatjana Rakar. 2020. "Sustainable Care in a Familialist Regime: Coping with Elderly Care in Slovenia" Sustainability 12, no. 20: 8498. https://doi.org/10.3390/su12208498
APA StyleHrast, M. F., Hlebec, V., & Rakar, T. (2020). Sustainable Care in a Familialist Regime: Coping with Elderly Care in Slovenia. Sustainability, 12(20), 8498. https://doi.org/10.3390/su12208498