Experiences of Digital Transitions in Health and Social Care Services in Later Life: Findings and Reflections from a Collaborative, Interdisciplinary Exploratory Review
Abstract
:1. Introduction
- Context
2. Materials and Methods
2.1. Study Design
2.2. Information Sources and Search Strategy
2.3. Study Selection and Data Extraction
3. Results
3.1. Overview of Findings
3.2. Definitions and Types of Onboarding
3.3. Offboarding Is Non-Existent
3.4. Inequalities in Digital Onboarding
4. Discussion
4.1. Findings and Gaps in the Literature
4.2. Reflections from Interdisciplinary Dialogue
4.3. Strengths, Limitations and Ethical Considerations
4.3.1. Strengths
4.3.2. Limitations
4.3.3. Ethics
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
Correction Statement
Appendix A
- PubMed
- Search: (onboarding OR offboarding OR “on boarding” OR “off boarding” OR on-boarding OR off-boarding) AND (old OR older OR elderly OR later life OR ageing OR senior) Filters: from 2014–2024
- ((“onboarding”[All Fields] OR “offboarding”[All Fields] OR “on-boarding”[All Fields] OR “off-boarding”[All Fields] OR “on-boarding”[All Fields] OR “off-boarding”[All Fields]) AND (“old”[All Fields] OR (“older”[All Fields] OR “olders”[All Fields]) OR (“aged”[MeSH Terms] OR “aged”[All Fields] OR “elderly”[All Fields] OR “elderlies”[All Fields] OR “elderly s”[All Fields] OR “elderlys”[All Fields]) OR (“later”[All Fields] AND (“life”[MeSH Terms] OR “life”[All Fields])) OR (“aging”[MeSH Terms] OR “aging”[All Fields] OR “ageing”[All Fields]) OR (“senior”[All Fields] OR “seniorities”[All Fields] OR “seniority”[All Fields] OR “seniors”[All Fields]))) AND (2014:2024[pdat])
- Translations
- older: “older”[All Fields] OR “olders”[All Fields]
- elderly: “aged”[MeSH Terms] OR “aged”[All Fields] OR “elderly”[All Fields] OR “elderlies”[All Fields] OR “elderly’s”[All Fields] OR “elderlys”[All Fields]
- life: “life”[MeSH Terms] OR “life”[All Fields]
- ageing: “aging”[MeSH Terms] OR “aging”[All Fields] OR “ageing”[All Fields]
- senior: “senior”[All Fields]
- Medline
- ((onboarding or offboarding or “on boarding” or “off boarding” or on-boarding or off-boarding) and (old or older or elderly or later life or ageing or senior)).mp. [mp=title, book title, abstract, original title, name of substance word, subject heading word, floating sub-heading word, keyword heading word, organism supplementary concept word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier, synonyms, population supplementary concept word, anatomy supplementary concept word]
- limit 3 to yr=“2014–2024”
- Web of Science
- (onboarding OR offboarding OR “on boarding” OR “off boarding” OR “on-boarding” OR “off-boarding”) AND (old OR older OR elderly OR later life OR ageing OR senior) (Title) OR (onboarding OR offboarding OR “on boarding” OR “off boarding” OR “on-boarding” OR “off-boarding”) AND (old OR older OR elderly OR later life OR ageing OR senior) (Abstract)
- Timespan: 2014-01-01 to 2024-02-29 (Index Date)
- ACM Journal
- (onboarding OR offboarding OR “on boarding” OR “off boarding” OR “on-boarding” OR “off-boarding”) AND (old OR older OR elderly OR later life OR ageing OR senior) (Title) OR (onboarding OR offboarding OR “on boarding” OR “off boarding” OR “on-boarding” OR “off-boarding”) AND (old OR older OR elderly OR later life OR ageing OR senior) (Abstract)
- (onboarding OR offboarding OR “on boarding” OR “off boarding” OR “on-boarding” OR “off-boarding”) AND (old OR older OR elderly OR later life OR ageing OR senior) (Title) OR (onboarding OR offboarding OR “on boarding” OR “off boarding” OR “on-boarding” OR “off-boarding”) AND (old OR older OR elderly OR later life OR ageing OR senior) (Title)
- PsycInfo
- Keyword search:
- (onboarding OR offboarding OR “on boarding” OR “off boarding” OR on-boarding OR off-boarding) AND (old OR older OR elderly OR later life OR ageing OR senior)
- Limit: 2014–2024
- IEEE Explore
- (“All Metadata”:”onboarding” OR “All Metadata”:”offboarding” OR “All Metadata”:”on-boarding” OR “All Metadata”:”off-boarding” OR “All Metadata”:”on boarding” OR “All Metadata”:”off boarding”) AND (“All Metadata”:”old” OR “All Metadata”:”older” OR “All Metadata”:”elderly” OR “All Metadata”:”later life” OR “All Metadata”:”ageing” OR “All Metadata”:”senior”)
- Timespan: 2014–2024
- Engineering Village (compendex)
- ((((old OR older OR elderly OR later life OR ageing OR senior)) WN KY) AND (((onboarding OR “on-boarding” OR “on boarding” OR offboarding OR “off-boarding” OR “off boarding”)) WN KY)) AND (JA WN DT) AND (English WN LA)
- Timespan: 2014–2024
- ASSIA
- (onboarding OR offboarding OR “on boarding” OR “off boarding” OR on-boarding OR off-boarding) AND (old OR older OR elderly OR later life OR ageing OR senior)
- Timespan: 01.01.2014 to 2024 (any date)
- CINAHL
- “(onboarding OR offboarding OR “on boarding” OR “off boarding” OR on-boarding OR off-boarding) AND (old OR older OR elderly OR later life OR ageing OR senior)”
- Limiters—Publication Date: 20140101-20240231; Exclude MEDLINE records
- Expanders—Apply equivalent subjects
- Search modes—SmartText Searching
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Question Framework | Inclusion Criteria | Exclusion Criteria |
---|---|---|
Expectation | Papers that refer to onboarding or offboarding of older adults in the context of digital service provision. Papers that discuss on-boarding or off-boarding without specifically using these terms. | Papers that refer to onboarding and offboarding in other contexts—e.g., “off-boarding” a retiring employee. Papers that do not discuss digital service provision/digital transitions. Papers that are not in a health and social care context. |
Client Group | Older people (loosely chronologically defined as over 50—either individually or as the average age of the study population) | No older people involved, or it not possible to separate older people’s experience from that of younger participants (and the average age is below 50) |
Location | Anywhere | No limitations |
Impact | Not Applicable | Not Applicable |
Professionals | Health and social care professionals Researchers and designers working on digital health and care services People working with older adults who are accessing digital health and care services Older adults using digital health and care services | Digital service providers, researchers, and designers (outside health and social care contexts) |
Service | Health and social care services provided digitally | Public services that have nothing to do with health and social care Health and social care services that are not provided digitally |
First Author | Year | Study Title | Population | Digital Service or Intervention | Use of Onboarding | Use of Offboarding |
---|---|---|---|---|---|---|
Auton | 2023 | Smartphone-based remote monitoring for chronic heart failure: Mixed-methods analysis of user experience from patient and nurse perspectives | Seventy-nine older adults with chronic heart failure with reduced ejection fraction. Average age 62 years. 55% White, 16% Black | A smartphone app, Luscii, designed to support self-measurement of vital signs, instant messaging with carers, and e-learning | The onboarding approach is limited. The app has e-learning modules explaining how to recognise important symptoms and medication queries, but there is no indication of onboarding to use the app. | Offboarding is not discussed. |
Avram | 2022 | Patient onboarding and engagement to build a digital study after enrollment in a clinical trial (TAILOR-PCI Digital Study): Intervention study | One hundred fifty older patients (mean age 65.3) in the US and Canada. | A digital study intended to provide follow-up to an RCT comparing routine care to alternative therapy after percutaneous coronary intervention. | The study addresses a partial onboarding approach by mailing letters to participants with instructions on how to access a website and learn more about the study. Those who accepted received a text message with a link to download the app on their phones. | Offboarding is not addressed as part of the study, but it happened due to lack of engagement from participants. The study identified that 11.5% of participants abandoned because they did not understand what was expected of them. |
Azevedo | 2022 | Designing instructional materials for older adults to successfully onboard and use mHealth applications | The materials are designed for “older adults” (age not specified) with hypertension. | A mobile app, MEDSReM, is linked with a wireless blood-pressure monitor to help people with hypertension manage their condition. | The importance of developing onboarding materials is emphasised as an integral part of the app development process rather than solely meeting regulatory standards. Researchers demonstrate their approach to developing onboarding materials through various methods: literature review, comparative analysis, task analysis, storyboarding, reviews by different subject matter experts, and user testing with individuals from diverse backgrounds. | Offboarding is not discussed. |
Czech | 2023 | Independence for whom? A critical discourse analysis of onboarding a home health monitoring system for older adult care | Six participants aged 61+ | A home health monitoring system (not named), using wearable and motion sensors to monitor health. | The onboarding process is delivered through a technician to discuss user needs and choose sensors. Then a system overview is presented, together with a guide on how to use the voice assistance. Four themes associated with onboarding are presented: independence, safety, peace of mind, and how the initial onboarding affects the other themes. | Offboarding is not discussed. |
Frishammar | 2023 | Older individuals and digital healthcare platforms: Usage motivations and the impact of age on postadoption usage patterns | One hundred fifty-two thousandpatients in Sweden. Seventy-six thousand patients are aged 60 and over. | A digital healthcare platform accessible by phone, computer or tablet, designed to enable interaction between patients and healthcare professionals. | The paper analyses data related to the use of a digital health platform and discusses that older adults spend more time during onboarding compared to the younger generation. Those in the group 75 plus are significantly different from the age groups of 40–59 and 60–74. Compared to the younger generation, the seniors were over-represented in dropouts before the first onboarding question and during onboarding. | Offboarding is not discussed. |
Gray | 2021 | Assessing the implementation and effectiveness of the electronic patient-reported outcome tool for older adults with complex care needs: Mixed-methods study | Forty-four patients aged 60 and above with 10 or more visits to Family Health Teams (FHTs) within the previous 12 months. | A mobile app and portal for electronic Patient-Reported Outcomes (ePRO), designed to enable goal-oriented primary care delivery. | Both the patients and the providers undergo training as part of the onboarding process. Patients are trained one-on-one with a research team member on how to use the mobile device and platform just before their onboarding visit with the provider. Usual manuals and contact information for the research team are provided to the providers and patients for technology support. | Offboarding is not discussed. |
Haddad | 2023 | Patient satisfaction with a multisite, multiregional remote patient monitoring programme for acute and chronic condition management: Survey-based analysis | 3172 survey respondents. Average age 66.5. White: 95.96%, Hispanic or Latino: 2.43%, Black or African: 1.51%, and Asian: 1.2% | A remote patient monitoring (RPM) system included internet-based video consultations and integrated vital sign monitors overseen by a team of RPM nurses. | Onboarding is provided in different ways. Initially, with a telephone call with nonclinical staff to assist in setting up the system. Additionally, a kit is included with condition-specific educational information. Further assistance is provided by technical and nonclinical staff via toll-free phone calls. | Planned offboarding is not discussed. One of the participants’ most frequent concerns was related to returning equipment at the end of the study, indicating that there is a need for a clearly communicated offboarding process, which is not currently being met. |
Janssen | 2023 | A digital gaming intervention to strengthen the social networks of older Dutch adults: Mixed-methods process evaluation of a digitally conducted Randomized Controlled Trial | Thirty-three older adults (mean age 69) in the Netherlands. | A mobile gaming app, Playing Together, is intended to decrease loneliness in people aged 65+. | In-person interaction and repetition are seen as vital for effective onboarding. Older adults should be ‘taken by the hand’, and researchers should ‘invest in them’, giving them an enjoyable introductory experience in order to encourage uptake. Distractions (in this case, the evaluation questions) should be minimised, as these can interfere with effective onboarding. | Planned offboarding is not discussed. Unplanned offboarding is reflected in a high non-engagement rate, which is attributed to the lengthy onboarding process and some user experience issues. |
Matthews | 2023 | Barriers to using a patient portal among low-income patient populations: A qualitative descriptive study | Volunteer convenience sample. 25 Participants Average age: 53. 76% of participants were Black/African American and were patients at a Federally Qualified Health Centre (FQHC). | A patient portal, MyChart, is designed to provide web- or phone-based access to personal health information for low-income patients in particular. | This study finds that lack of awareness of the app’s capabilities and lack of administrative support for enrolling and utilising the app are the main barriers to uptake. Many of them feel frustrated about the lack of education on the app’s use, features, and functionalities. Additionally, patients report deficiencies in technological assistance from the provider, leading to demotivation for its use. | Planned offboarding is not discussed. Strong personal preferences of patients for communicating directly with their health providers are discussed. Users report having enough time and opportunity to contact the clinic and receive all the information they need during appointments, relying on traditional services due to lack of engagement with the digital option. |
Nadadur | 2022 | Medication adherence app for food pantry clients with diabetes: A feasibility study | Ten participants enrolled, with an average age of 52.5 years old. 60% African American, 30% Hispanic. 30% had a college degree | A mobile app, Wellth, designed to facilitate diabetes treatment adherence. | Onboarding is enabled with interviews to establish customisation in the app of preferred time for medication intake. A brief induction is given to explain how the app works step by step, with a link in the participant’s phone. | Offboarding the digital intervention is not discussed. However, dropping out of the study is not penalised with restrictions to the food pantry. |
Peterlin | 2024 | Older adults’ perceptions of online physical exercise management | 11–24 older adults (over 55) in Slovenia. | Online physical activity classes, which took place over a three-month period. | Onboarding is not a major focus, and discussion is limited. The paper recommends appointing someone to help older adults overcome any technological barriers that prevent them from taking part. | Planned offboarding is not discussed. Unplanned offboarding may be reflected in participants’ preference for in-person classes given additional perceived benefits (transport, social interaction, etc). |
Pierz | 2024 | Investigation of the impact of Wellinks on the quality of life and clinical outcomes in patients with Chronic Obstructive Pulmonary Disease: Interventional research study | One hundred forty-one participants with Chronic Obstructive Pulmonary Disease were fully enrolled. Average age 70. | A mobile app, Wellinks, with connected devices, designed to support home monitoring of Chronic obstructive pulmonary disease (COPD). | A coach contacts each of the participants via telephone to ensure the technical setup and devices are in order and to introduce the coaching process. Participants are also instructed to use the monitoring devices that come with the system at least once a week throughout the duration of the study. In addition, participants are encouraged to use the app to track symptoms and medication and to monitor their own spirometry and pulse oximetry data. | Planned offboarding is not discussed. Unplanned offboarding is reflected in gradual reductions in adherence to the app, as well as limited uptake of educational sessions. |
Quinn | 2019 | Mobile support for older adults and their caregivers: Dyad usability study | Eight older people (over 65, mean age 77.8) and their caregivers in the USA. | A mobile app for older adults to record their health and social care information and share it with their caregivers. | The study follows a strong onboarding process. Participants received an onboarding guide, with the chance to choose between individual or group training on the app. The training materials were the same for both sessions. Participant training had three elements: (1) guiding participants through creating a new account and entering basic demographic information; (2) linking dyads using the Family Sharing feature; (3) sending a test message to the app team to ensure they were properly connected. | Planned offboarding is not discussed. Unplanned offboarding is reflected in gradual reductions in weekly survey participation (attributed to lack of reminders); and in delayed or limited engagement (attributed to log-in and connectivity issues). Technical issues, including log-in and connectivity issues, are important discouraging aspects causing delayed or limited use of the app |
Ross | 2023 | Influences on patient uptake of and engagement with the National Health Service digital Diabetes Prevention Programme: Qualitative interview study | Thirty-two participants diagnosed with nondiabetic hyperglycemia in England. Referred via primary care OR self-referred. Average age 58.3. individuals White: 69%, Black: 6%, Asian: 6% | The NHS Digital Diabetes Prevention Programme (DPP). | Onboarding is addressed by contacting people interested in participating who have received information about the study. Additionally, some healthcare providers onboard participants using a programme handbook, while others do so with a brief telephone call. | Offboarding is not discussed. |
Stamenova | 2022 | Hospital-based ambulatory clinic adoption of video and telephone visits before and during the COVID-19 pandemic: a convergent mixed-methods study: Managing community care | One hundred twelve patients. Average age 57 White: 84%, Middle-easter: 4%, Mixed heritage: 4% | Remote clinic consultations, using Zoom video or phone calls; integrated with the hospital’s EMR information system. | Onboarding is provided after participants registration to the hospital’s Electronic Health Records Patient Portal. Additionally, technical support is given to set up the portal and the video conferencing technology. | Planned offboarding is not discussed. Unplanned offboarding is reflected in barriers to access experienced by some participants, including poor internet connection, lacking consistent access to technology, and not being comfortable to use technology. |
Steinert | 2018 | Effects of a long-term smartphone-based self-monitoring intervention in patients with lipid metabolism disorders | One hundred people with lipid metabolism disorders in Germany. Average age 52.6; 61% over 50. | A smartphone app, MyTherapy, to support self-management of lipid metabolism disease. | The onboarding process consists of written instructions (user manual) explaining how to download the app to the users’ Android or iOS device. However, the terminology and abbreviations were seen as difficult to understand. | Offboarding is not discussed. |
Wali | 2021 | Expanding telemonitoring in a virtual world: A case study of the expansion of a heart failure telemonitoring programme during the COVID-19 pandemic | Sixteen patients with heart failure in Canada. Average age 54.5. | A phone-based telemonitoring programme, Medly, designed to provide remote clinical support to patients with heart failure. | Onboarding is initially delivered in-person but switched to telephone calls due to COVID-19 restrictions. This approach was seen initially as negative by participants who were not aware of this change but ultimately enabled patients to be part of the programme without leaving their home. The study compares both situations and concludes that remote onboarding needs more support for technical issues. | Offboarding is not discussed. |
Wei | 2021 | Habits heart app for patient engagement in heart failure management: Pilot feasibility randomized trial | 23 Patients with heart failure from the cardiology clinics and inpatient units at Massachusetts General Hospital. Average age 63 years. | A smartphone (provided as part of the study) loaded with the Habits Heart App. This app was designed to monitor weight changes, track sodium content (in diet) and exercise logging. | Those randomised to the intervention group are given a 30-min onboarding session to be acquainted with the Habits Heart App and the study smartphone. At the end of the 30-min session, patients are asked to demonstrate their app use competency by performing actions in five key areas, including opening and watching the introduction patient education video, logging weight on the app using the Bluetooth-linked scale, inputting sodium content entries, inputting exercise entries, and messaging the study team through the app. | Offboarding is not discussed. |
Category of Onboarding | Description |
---|---|
Weak onboarding | No planned onboarding process; however, researchers or designers acknowledged barriers that would not have existed if planned onboarding had been in place. |
Partial onboarding | The intervention design included some kind of onboarding but without significant interaction with end users (e.g., a manual, or written instructions). |
Strong onboarding | The intervention design took into account both materials and interaction with people and was as supportive as possible (e.g., researchers would provide guidelines and personalised assistance). |
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Vaca-Benavides, D.A.; Uthayakumar, S.; McSwiggan, E.; Ostrishko, K.; Wanok, G.; Halpenny, C.; Cardamone, E. Experiences of Digital Transitions in Health and Social Care Services in Later Life: Findings and Reflections from a Collaborative, Interdisciplinary Exploratory Review. Soc. Sci. 2024, 13, 526. https://doi.org/10.3390/socsci13100526
Vaca-Benavides DA, Uthayakumar S, McSwiggan E, Ostrishko K, Wanok G, Halpenny C, Cardamone E. Experiences of Digital Transitions in Health and Social Care Services in Later Life: Findings and Reflections from a Collaborative, Interdisciplinary Exploratory Review. Social Sciences. 2024; 13(10):526. https://doi.org/10.3390/socsci13100526
Chicago/Turabian StyleVaca-Benavides, David Alejandro, Sumetha Uthayakumar, Emilie McSwiggan, Kayla Ostrishko, Godfrey Wanok, Clare Halpenny, and Elisa Cardamone. 2024. "Experiences of Digital Transitions in Health and Social Care Services in Later Life: Findings and Reflections from a Collaborative, Interdisciplinary Exploratory Review" Social Sciences 13, no. 10: 526. https://doi.org/10.3390/socsci13100526
APA StyleVaca-Benavides, D. A., Uthayakumar, S., McSwiggan, E., Ostrishko, K., Wanok, G., Halpenny, C., & Cardamone, E. (2024). Experiences of Digital Transitions in Health and Social Care Services in Later Life: Findings and Reflections from a Collaborative, Interdisciplinary Exploratory Review. Social Sciences, 13(10), 526. https://doi.org/10.3390/socsci13100526