Telepresence Robots in the Context of Dementia Caregiving: Caregivers’ and Care Recipients’ Perspectives
Abstract
:1. Aging Population
- Escalated demand for healthcare services: With the aging of the population, there will be an upsurge in the requirement for healthcare services, including medical appointments, hospitalizations, and prescription medications [3,4]. This could potentially strain healthcare systems’ financial resources as well as the ability of these systems to find the labor needed to provide these services [5];
- Heightened necessity for long-term care: Many older adults will require extended care, including assistance with activities of daily living such as bathing, dressing, and eating. The cost and availability of such care can pose challenges for individuals, families, and governments [6];
- Increased demand for family caregiving: AARP [10] estimates that there are currently about 48 million family CGs in the United States, with about 42 million of these providing care to an adult aged 50 or older. The need for CGs is expected to continue to grow along with increases in the U.S. older adult population. Currently, there are seven potential family CGs per older adult. By 2050, with changes in the population structure, it is estimated there will be fewer than three potential family CGs per older adult [11].
2. Dementia and Caregiving
3. Current Technological Solutions to Support Caregiving
- Maintenance of daily function: Technology can play a role in assisting individuals to sustain their daily activities. These technologies are designed to simulate and offer guidance for routine tasks to support individuals with cognitive challenges in managing their daily lives more effectively and independently;
- Leisure and activity: Numerous technological interventions are directed toward enhancing the leisure experiences of individuals living with dementia. Various programs are focused on making music and art more accessible and enjoyable and offering opportunities to engage with virtual environments;
- Sensors and safety: Locator devices can help to find misplaced items, sound security alerts for falls or unexpected wanderings, and detect environmental issues, such as water leaks or fire. These sensors can also notify CGs and prevent safety issues;
- Caregiving and management: Technology also offers robotics-based applications to replace human CGs, such as using social robots with remote monitoring via sensors and videoconferencing or general robotic aid in daily activities like food preparation and eating. In terms of care management, IoT systems and medication aids, such as alarms, reminders, and dispensers, can simplify and organize life for caregivers.
Social Robots: A Potential Solution
- What are CGs’ and CRs’ initial reactions to VGo’s appearance and shape upon being introduced to it?
- Under what conditions will remote and in-person CGs be more likely to accept VGo in the home care setting and for which particular caregiving activities? Are there individual factors or features of the caregiving situation that affect participants’ attitudes toward VGo?
- What are participants’ reactions to the various functions and features of VGo they are shown? Which functions do participants believe they would use most and least frequently for their caregiving activities? Which functions would they expect to find most—or least—useful?
- What new or additional functions and features do CGs and CRs believe should be incorporated into VGo—or social robots more generally—to support caregiving?
- How do CGs expect the presence and use of VGo to affect their caregiving experiences, including their levels of stress or strain? How do CRs think it might affect their experience of care, as well as feelings of social isolation and loneliness? What kinds of effects, if any, do they think VGo would have on their relationships with each other?
4. Method
4.1. Procedure
4.2. Participants
4.3. VGo: Features and Characteristics
4.4. Data and Measures
4.5. Data Analysis
5. Results
5.1. Initial Impressions of the Robot
5.2. Attitudes Regarding the Robot’s Functionalities and Features
5.2.1. Mobility
5.2.2. Call
5.2.3. Community
5.2.4. Reminder
5.3. Ease or Difficulty of Use
5.4. Caregiving Requirements and Circumstances
6. Broader Implications for the Design of Social Robots
General Design Recommendations for Social Robots in Caregiving Settings
- Emergency services connectivity: ensure the robot can connect to 911 services and has an easily accessible emergency feature (button and voice command) for urgent situations. One of the CGs who highlighted this need mentioned the following:
- “Would it be connected to 911? A robot like this, you would want to have a command for an emergency call the emergency security or emergency medicine have the sensitivity to know that somebody has fallen. And ask, do you need help? Like when you need new drugs, if you have to contact either the pharmacy, that sort of thing.”
- Home navigation integration: facilitate the robot’s interaction with the home layout by connecting it to door locks to be able to navigate within the home. As one CG mentioned the following:
- “… I think that’s a good feature, you know. You’ve been calling on the phones. They don’t answer, and so you could send the robot to go find them. it doesn’t open doors. So that’s a blockage, you know. they have a lot of doors in their house, and so it wouldn’t be really accessible because of the door issue or the different levels.”
- Item locator integration: to enhance the robot’s role in daily convenience and practicality incorporate Bluetooth tracking technology into the robot to help users locate misplaced items. One of the CRs who noted this need stated the following:
- “…finding things like glasses. I don’t know how that would work. How does the robot find something? But it would pair with another device like the watch.”
- Smart home system compatibility: incorporate synchronization with existing home automation systems to enable users to control things like their television, lighting, and robotic vacuums through the robot. Here is one of the CR’s suggestions:
- “Could the robot be made or built to open doors? If you change the locks and have the door would automatically open when the robot got so close to it.” Another CG suggested the following:
- “…as long as it’s seamless between like platforms, you know, if it’s Google or if it’s Apple, because I think it would be good to have like routines and reminders set up. You know, not just a reminder that you ignore… if it was integrated with Apple Watch, or you know, another like, because then you can, like have the summary of it on your phone….It would be useful if it could turn off the lights, you know, like, if it integrated with like, the Google IoT that we already have to do that, then it’s not like, oh, having to use multiple devices to do the same thing. I think the more can do like, oh, you know, things like the television or the lights or something like that or that’s useful like even if it vacuum the floor, that would be awesome.”
- Storage features: for physical assistance in carrying items, consider adding a storage place like a tray or shelf to the robot for storing medications and personal items, as one CR suggested the following: “I think it would have been ideal to have a shelf on it, doesn’t have to be big, of course, because it’s not big, the robot itself, but medication could be laid out on it…”
- Therapeutic and entertainment apps: allow for the installation of therapy, audiobook, and music apps to the robot. One CG mentioned the following:
- “It’d be cool if it could also access to YouTube. Because my mom does yoga, I’ve set up a playlist on YouTube for her to do yoga class and if it would say, do you want to do yoga? Now I’ll play it for you. So, it would be awesome if it could navigate the web for my mother.”
- Transcription features: include voice-to-text capabilities to aid communications with those who have hearing impairments or prefer visual interaction. One CG suggested the following:
- “I realized that there might be a transcription of my voice to typed notes on the screen. And likewise, what the robot might be saying back to me might also be on screen. So, you have the dialogue there.”
7. Discussion
Author Contributions
Funding
Data Availability Statement
Conflicts of Interest
References
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ID | CR’s Stage of Disease | CR’s Diagnosis | CR’s Relationship to CG | Dyad Living Situation | Gender (CG/CR) | CR’s Age |
---|---|---|---|---|---|---|
1 | Moderate | Mild cognitive impairment (MCI) | Parent | Together | F/F | 83 |
2 | Moderate | MCI | Parent | Separate | F/M | 73 |
3 | Moderate | MCI | Spouse | Together | M/F | 84 |
4 | Early | MCI | Spouse | Together | M/F | 75 |
5 | Moderate | MCI, Alzheimer’s disease, Vascular dementia | Parent | Together | F/F | 90 |
6 | Early | MCI | Spouse | Together | F/M | 79 |
7 | Early | Alzheimer’s disease | Spouse | Together | M/F | 89 |
8 | Moderate | MCI | Parent | Separate | F/F | 67 |
9 | Unknown | MCI | Spouse | Together | F/M | 77 |
10 | Moderate | MCI, Vascular dementia | Parent | Separate | F/M | 86 |
11 | Moderate | Alzheimer’s disease | Spouse | Together | F/M | 70 |
12 | Early | Vascular dementia | Parent | Separate | F/F | 85 |
13 | Moderate | Mixed dementia | Spouse | Together | F/M | 87 |
14 | Early | MCI | Parent | Separate | M/M | 92 |
15 | Early | Other—“Parkinson’s Disease with mild cognitive impairment” | Spouse | Together | F/M | 75 |
16 | Moderate | Alzheimer’s disease | Spouse | Together | F/M | 77 |
17 | Early | Alzheimer’s disease | Spouse | Together | F/M | 86 |
18 | Early | MCI | Spouse | Together | F/M | 84 |
19 | Early | MCI, Alzheimer’s Disease, Vascular Dementia | Spouse | Together | F/M | 67 |
20 | Early | Frontotemporal dementia | Spouse | Together | F/M | 65 |
Category | Count of Positive Feedback | Count of Negative Feedback |
---|---|---|
Robot appearance | Fine, Sleek, Nice, Interesting, and Attractive (CGs = 5 and CRs = 7) | Sterile and hospital looking, Mobility scooter, Lack of humanoid features (CGs = 6 and CRs = 2) |
Size and shape | Ideal height for eye-level tablet use, Ideal size to fit against a wall (CGs = 5, CRs = 5) | Too large and Concerns about stability (CGs = 3 and CRs = 1) |
Comparison to other devices | Resemblance to vacuum cleaner (CGs = 5, CRs = 3), tablets or voice assistants (CGs = 6, CRs = 2), mobility scooter (CGs = 2), and grocery store robots (CGs = 3) |
Variable | Correlation with CG Positive Attitudes Toward Robot Features | p-Value | Correlation with CR Positive Attitudes Toward Robot Features | p-Value |
---|---|---|---|---|
CGs’ sum of scores on CRs’ IADLs | 0.339 | 0.01 * | ||
CGs’ general attitude (trust, interest, and comfort) toward technology | 0.104 | 0.66 | ||
CGs’ age | −0.106 | 0.66 | ||
CGs’ guilt scores | 0.049 | 0.83 | ||
CGs’ satisfaction with Communication with CRs | −0.503 | 0.02 * | ||
CGs’ (physical, emotional, and financial) experiences of strain from caregiving tasks | 0.029 | 0.9 | ||
CRs’ Level of Dependency (IADLs) | 0.393 | 0.08 | ||
CRs’ Feelings of Loneliness | 0.045 | 0.85 | ||
CRs’ Age | −0.434 | 0.056 |
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FakhrHosseini, S.; Cerino, L.; D’Ambrosio, L.; Balmuth, L.; Lee, C.; Wu, M.; Coughlin, J. Telepresence Robots in the Context of Dementia Caregiving: Caregivers’ and Care Recipients’ Perspectives. Robotics 2024, 13, 160. https://doi.org/10.3390/robotics13110160
FakhrHosseini S, Cerino L, D’Ambrosio L, Balmuth L, Lee C, Wu M, Coughlin J. Telepresence Robots in the Context of Dementia Caregiving: Caregivers’ and Care Recipients’ Perspectives. Robotics. 2024; 13(11):160. https://doi.org/10.3390/robotics13110160
Chicago/Turabian StyleFakhrHosseini, Shabnam, Lauren Cerino, Lisa D’Ambrosio, Lexi Balmuth, Chaiwoo Lee, Mengke Wu, and Joseph Coughlin. 2024. "Telepresence Robots in the Context of Dementia Caregiving: Caregivers’ and Care Recipients’ Perspectives" Robotics 13, no. 11: 160. https://doi.org/10.3390/robotics13110160
APA StyleFakhrHosseini, S., Cerino, L., D’Ambrosio, L., Balmuth, L., Lee, C., Wu, M., & Coughlin, J. (2024). Telepresence Robots in the Context of Dementia Caregiving: Caregivers’ and Care Recipients’ Perspectives. Robotics, 13(11), 160. https://doi.org/10.3390/robotics13110160