Usefulness of a Multicomponent Group Intervention Program for Fibromyalgia Patients in Primary Care: A Qualitative Study of Health Professionals
Abstract
:1. Introduction
2. Materials and Methods
2.1. Design
2.2. Professionals’ Training and Attributions in the Program
2.3. Study Setting and Participants
2.4. Data Collection
2.5. Data Analysis
2.6. Trustworthiness
3. Results
3.1. Domain 1: Training and Counselling within the Framework of the Program
3.1.1. Training as Motivation
“…this gives me more knowledge, I already feel rewarded”.(nurse, P8b)
3.1.2. Continuous Counselling
“…in the unit (the USCSS), more time should be available to give us support… I think it should be full time, not just three days…”.(nurse, P10b)
3.2. Domain 2: Usefulness of the Program and Adequacy of the Content and Format of Group Sessions
3.2.1. Co-designing Experience and Overall Program Assessment
“It has been a gain to incorporate the physiotherapist and the psychologist into the project, and that it has been multidisciplinary. Because I think that, in this way, you cover much more and a more integral therapy is carried out”.(nurse, P10b)
3.2.2. Program Format Considerations
“…there are some (patients) who don’t want to be seen going to groups… sometimes in the health center you run into a lot of people”.(nurse, P10b)
3.2.3. Aspects of the Content of Sessions
“… I always tell them: you don’t all have to do it the same (physical exercise)… there are people who cannot do a long relaxation”.(nurse, P10b)
“…since the medication does not go very well for them… the exercises, some can do but some can’t… the behavioral part was what changed them, I think”.(nurse, P3a)
3.3. Domain 3: Experience as an FM Expert and Proposals for Overcoming Barriers
3.3.1. Facing the “Unknown” and Breaking Personal Barriers
“…they asked me to be an FM expert, I said no, the first answer was: “no, I don’t understand them and it’s impossible””.(nurse, P7b)
“Neither did I like them, nor did I generate empathy. After that (starting to lead the group), this relationship began to improve… you relax, you get to know them, you get to know the disease, you go in and you no longer put up that barrier when it comes to relating”.(GP, P12b)
“…I have patient friends who are no longer patients… with the younger ones we go for a walk some Sundays”.(nurse, P11b)
3.3.2. “Lessons Learnt” from the COVID-19 Era
3.3.3. Barriers to Program Implementation in PC and Proposals to Overcome Them
“…create the groups, between patient and patient… this overloaded me”.(nurse, P3a)
“…it seems as if the schedule you are investing in is not important, what is important is the other schedule (that of the consultation)”.(nurse, P7b)
“…the other (professionals) must be involved because the patient with fibromyalgia is not a patient of the FM expert, she/he is a patient of everyone”.(nurse, P4a)
“…It’s true that fibromyalgia, at the level of society, is frowned upon and people don’t understand them (the patients), neither do the family members… and that’s what costs the most, sometimes, at a professional level, to “get into” in this project”.(nurse, P10b)
“…just as a professional knows how to care for a diabetic or a hypertense patient, they should know how to care for a person with fibromyalgia”.(nurse, P3a)
3.4. Domain 4: Views of FM Experts about Patients’ Experiences of the Program
3.4.1. Confronting the Disease in a Different Way
“At home they (relatives) do not understand them and there (in the group) everyone understands them…, the fact that the treatment is in a group is more positive”.(nurse, P2a)
“Even if they have relapsed, they know that you have listened to them, you have attended to them and you have paid attention to them”.(nurse, P3a)
“…they related a lot. To this day they are still friends, they always write to each other in the WhatsApp group”.(nurse, P5a)
3.4.2. Barriers to Patient Participation in and Full Enjoyment of the Program
“…in rural areas it costs a lot to form a group, because there is a lot of dispersion, they are usually women who don’t have a car”.(nurse, P2a)
“…we say: “you don’t have to collapse, you have to try to see which are the best (activities, exercises) and alternate, you don’t have to do everything on the same day””.(nurse, P10b)
4. Discussion
Limitations
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Appendix A
- Focus Group Interview Guide
- A.
- Greetings and presentation of the research team.
- B.
- General information on the focus group (FG): objectives and dynamics.
- C.
- Explanation of the ethical aspects.
- D.
- Individual presentation of the informants.
- E.
- FG questions:
- Experiences as a fibromyalgia (FM) expert
- What was your experience as FM experts within the program?
- What are the positive aspects of the training as an FM expert and the advice received by the Unit Specialized in Central Sensitivity Syndromes (USCSS) during the program?
- What are the negative aspects of the training as an FM expert and the advice received by the USCSS during the program?
- Aspects of the program/content of the group sessions and technical aspects
- 4.
- What did you think of the group program for the treatment of fibromyalgia in general? (useful aspects)
- 5.
- What did you think of the content of the group health education sessions carried out as part of the program?
- 6.
- What did you think of the content of the group physical exercise sessions carried out as part of the program?
- 7.
- What did you think of the content of the group psychotherapy sessions carried out as part of the program?
- 8.
- What did you think of the place where the group sessions were held (health centers), their duration and scheduling?
- 9.
- What was your experience with fibromyalgia patients during the program? Do you want to comment on anything relevant to the doctor–patient relationship within the program?
- Opinions about the patients’ experience in the program
- 10.
- What is your opinion about the degree of patient satisfaction with the program?
- Aspects of the program that could be improved and program continuity
- 11.
- What aspects of the current group program should be improved?
- 12.
- What do you think about the continuation of the program in primary care?
- Contributions
- 13.
- Would you like to comment on any other point or topic that has not been mentioned?
- F.
- Ending of the FG:
- Summary of the informants’ contributions.
- Acknowledgement and thanks.
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Code | Gender | Age | Profession | Years Employed | Years as Fm Expert |
---|---|---|---|---|---|
P1a | female | 61 | GP | 33 | 5 |
P2a | female | 48 | nurse | 27 | 2 |
P3a | female | 47 | nurse | 25 | 4 |
P4a | female | 52 | nurse | 17 | 5 |
P5a | female | 62 | nurse | 35 | 4 |
P6a | male | 64 | GP | 17 | 4 |
P7b | female | 53 | nurse | 32 | 5 |
P8b | female | 55 | nurse | 28 | 3 |
P9b | female | 54 | nurse | 32 | 5 |
P10b | female | 64 | nurse | 43 | 2 |
P11b | female | 44 | nurse | 22 | 3 |
P12b | female | 47 | GP | 17 | 4 |
Domains | Themes |
---|---|
1. Training and counselling within the framework of the program | Training as motivation |
Continuous counselling | |
2. Usefulness of the program and adequacy of the content and format of group sessions | Co-designing experience and overall program assessment |
Program format considerations | |
Aspects of the content of sessions | |
3. Experience as an FM expert and proposals for overcoming barriers | Facing the “unknown” and breaking personal barriers |
“Lessons learnt” from the COVID-19 era | |
Barriers to program implementation in PC and proposals to overcome them | |
4. Views of FM experts about patients’ experiences of the program | Confronting the disease in a different way |
Barriers to patient participation in and full enjoyment of the program |
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Share and Cite
Caballol Angelats, R.; Aguilar Martín, C.; Carrasco-Querol, N.; Abellana, R.; González Serra, G.; Gràcia Benaiges, D.; Sancho Sol, M.C.; Fusté Anguera, I.; Chavarria Jordana, S.; Berenguera, A.; et al. Usefulness of a Multicomponent Group Intervention Program for Fibromyalgia Patients in Primary Care: A Qualitative Study of Health Professionals. Healthcare 2024, 12, 17. https://doi.org/10.3390/healthcare12010017
Caballol Angelats R, Aguilar Martín C, Carrasco-Querol N, Abellana R, González Serra G, Gràcia Benaiges D, Sancho Sol MC, Fusté Anguera I, Chavarria Jordana S, Berenguera A, et al. Usefulness of a Multicomponent Group Intervention Program for Fibromyalgia Patients in Primary Care: A Qualitative Study of Health Professionals. Healthcare. 2024; 12(1):17. https://doi.org/10.3390/healthcare12010017
Chicago/Turabian StyleCaballol Angelats, Rosa, Carina Aguilar Martín, Noèlia Carrasco-Querol, Rosa Abellana, Gemma González Serra, Dolors Gràcia Benaiges, Maria Cinta Sancho Sol, Immaculada Fusté Anguera, Susana Chavarria Jordana, Anna Berenguera, and et al. 2024. "Usefulness of a Multicomponent Group Intervention Program for Fibromyalgia Patients in Primary Care: A Qualitative Study of Health Professionals" Healthcare 12, no. 1: 17. https://doi.org/10.3390/healthcare12010017
APA StyleCaballol Angelats, R., Aguilar Martín, C., Carrasco-Querol, N., Abellana, R., González Serra, G., Gràcia Benaiges, D., Sancho Sol, M. C., Fusté Anguera, I., Chavarria Jordana, S., Berenguera, A., & Gonçalves, A. Q. (2024). Usefulness of a Multicomponent Group Intervention Program for Fibromyalgia Patients in Primary Care: A Qualitative Study of Health Professionals. Healthcare, 12(1), 17. https://doi.org/10.3390/healthcare12010017