Caring for Frail Older People Living Alone in Italy: Future Housing Solutions and Responsibilities of Family and Public Services, a Qualitative Study
Abstract
:1. Introduction
2. Materials and Methods
2.1. Study Design and Participants
2.2. Data Collection and Measures
2.3. Ethical Considerations
2.4. Data Analysis
3. Results
3.1. Sample Characteristics
3.2. Future Housing Solutions for Older People
3.2.1. Different Possibilities
3.2.2. Home, ‘Sweet Home’ and PCA
It is better to stay at home, where I have a memory of everything. (MAR_15)
I am too attached to this house (...), I hope my family will leave me here. This is my wish, what I told them. (MAR_10)
For me, staying in this house is the best solution. Where should I go? I do not want to go anywhere, this is my home, my city! (CAL_31)
I want to stay here [at home]. (...) If I go out for a walk, I can talk with persons I know, I can greet them, I can have company. (MAR_8)
For me, to age in this home is the best solution (…). Here I have a PCA, I have all what I want, if I feel bad, I call her. (CAL_39)
Right now, I only need help [of PCA] at night. If I should need more support even during the day, my children will provide it (…). They will help me for having a living in PCA. I want to stay in my home, I do not want to go anywhere else. (CAL_38)
Yes, I would prefer to stay in my home, and to find a solution, a support to continue to stay here. PCA is a solution, also to relief children. (MAR_18)
[To hire] a PCA? (…). If my head fits as I do now, it would be fine too! If I freak out, a relative should always monitor her work. (LOM_32)
I cannot afford a PCA, because he/she wants at least 600–700 EUR a month. I take only 1000 EUR. What could I do with 300 EUR left? (CAL_16)
3.2.3. Nursing Home: Absolutely Not!
Who takes me in nursing home? Economically I cannot afford it (…). Moreover, I know that in such a place, when one complains, no help is available. (MAR_14)
I will never go to a facility! Oh no, because at home I feel free with everything. There you are forced to eat at a scheduled time. (…). You cannot go out when you want, you cannot smoke a cigarette. (LOM_26)
I do not think I will go to the nursing home (...). In TV I see how older people is badly trated there. Eh, no, no, no, I really do not want go there. (MAR_22).
The nursing home is the death of older people. If one wants to die first, he/she goes there. It is terrible, terrible. There you must leave with strangers you do not know (…). You are immersed in your memories (...), and you turn off. Gradually you turn off. (CAL_7)
3.2.4. Nursing Home: Maybe
As long as I can, I will stay here at home (…). Then, if I become dependent, I will go to a nursing home (…). I think it is the only solution. If I cannot do anything anymore, I cannot remain at home. (MAR_13)
When I no longer understand anything, I think they [children] will put me in a nursing home, but as long as I stay with my head, I remain here in my home. (MAR_5)
3.2.5. Nursing Home: Accepted
I do not know what the future holds for me. Maybe I will go to a facility, but not in Italy. Maybe I should go to Switzerland, where there are many nursing homes of high quality. (CAL_12)
Children have their own interests and commitments (...). I do not want to disturb them, absolutely! (…). I prefer the nursing home. There is always the medical doctor! Then, when it is time, they bring you your medicine (…). (LOM_36)
3.2.6. Cohabitation and Proximity with Children
If my health deteriorates, of course I should sell my house and I could even retire with someone (…). I would go to live with my daughter. (MAR_5)
My son wants keep me with him out of my city [another town in the province]. Here, if I open the door, someone always passes by and greets me. In other places this cannot happen because there nobody knows me. (CAL_35)
I had to stay in my daughter’s house for five months [due to a fracture], I could not take it anymore! (MAR_30)
I cannot live alone. I cannot remain in this home (…). A small apartment, close to my daughters, would be enough for me. (MAR_9)
3.2.7. Further Housing Solutions
The best thing would be to live with some friends in the same house, all together. Eh, but it is not easy to be realised. (CAL_7)
Depending on how [health] things are, if I have to go to the hospital or clinic, I go. (CAL_10)
3.2.8. “I Am Unsure”
If a debilitating disease takes over, we logically cannot decide by ourselves. Then the others [family members] will decide, unfortunately. (MAR_4)
If my health were to deteriorate, I would discuss with my children and make the appropriate decision [for an adeguate housing solution]. When there are decisions of a certain importance, of a certain consistency, I always consult my children. (CAL_9)
3.3. Family or Public Responsibility in Caring for Older People
3.3.1. Different Regulatory Orientations
3.3.2. The Family, If Any, as First Care Provider
When I was young, grandparents were not abandoned and they were assisted by the whole family. This is the rule. (LOM_17)
The family is always in the frontline, because the family is in the heart. (MAR_19)
Help comes from the family, from children (...). Children should not abandon their parents! (CAL_38)
I think that children are the first caregivers, because it is right so. A mother and a father take care of their children. If there is the possibility, it is right that children help [the parents], as I did it towards my parents. It is a duty of children. (CAL_6)
As a general rule, it would be nice to be assisted by the family, but in my case, I do not have a family and children of my own (…). I could have support from grandchildren [daughters of sisters/brothers], but I would have preferred more to be assisted by a child. (LOM_29)
I am convinced that older people must be cared for by relatives, because I think it is much better having support from loved ones than from strangers. (MAR_14)
Well, if there is an extended and available family, it is clearly nice that relatives take care of their older loved ones! (CAL_7)
Children are better, but it is clear that they have their jobs, their families and own babies. They help, but I cannot force them. (MAR_10).
I would prefer a niece, a cousin, I do not know exactly. However, a woman in any case (...). I went to the hospital and they made fun of me because I did not want male nurses to clean me. (LOM_1)
If a family is unable [to assist], is not smart enough to understand which are the needs of the older parents, then it is better to be assisted by other persons out of the family. (LOM_13)
[When a PCA is hired] Family members must always be present, because there are good PCAs who assist well and others who do it exclusively for money (…). Family members must be present, and be vigilant. (CAL_18)
I think that older people must be cared for by their families, but unfortunately currently there are many PCAs in this respect. This is not good. Everyone should take care of their own older family members. (CAL_30)
3.3.3. Family First, but with Public Support
Once, when families were extended, one could exchange/alternate in supporting older relatives. Now the families are small and it is no longer possible. Treating a sick person alone, without help, is a heavy thing. (MAR_39)
The family is primary, but public service is indispensable. (MAR_4)
The care from the family by civil law must exist, but it is also a task of social structures, of public services. (CAL_12)
Families today are not always available, they have jobs. They need someone from public services who can support/relief them. (MAR_36)
The presence of children is good for what concerns the affective side, the emotional closeness. It is acceptable that children visit parents or hear them on the phone frequently, but it is heavy to support them for the activities of daily living. (MAR_18)
The first support is the family, when needed (…). The public service should intervene for health needs and medical care. (CAL_20)
The family and IA (...). This association could work, even though the latter sometimes is not sufficient for medicines and treatments that are needed. (CAL_27)
My children cannot help me (…). I do not want they live the [heavy] caregiving experience I had when supported my aunt, my mother-in-law, my father. (CAL_35)
Family and public service. The one does not exclude the other. Children work and cannot be always available. When sometimes I stay with my daughter in Rome, she goes out to work at 9.00 am hour in the morning, and comes back at 8.00 pm in the evening. All day I am alone and dumb like a mummy! (CAL_1)
There are also some seniors who do not want anyone in their home for assistance, other than the family. (MAR_1)
3.3.4. Public Service as Priority or Exclusively
There must be greater public attention for older people without children, or other relatives, who cannot assist them. (CAL_7)
Public services must help older people, since family members have their own families. (MAR_38)
Children cannot be relied upon because they abandon their parents in nursing homes. It does not mean anything to have children! So do not tell me the story of the lovely family. The family does not exist! If you have a lot of money, then you may be treated well. This is the law of life. (CAL_15)
3.3.5. Does the Public Service Work?
Family members need to assist their relatives because public services do nothing. (CAL_24)
The Italian State just abandoned seniors and does not help them. This is not the case abroad, where the State intervenes. (MAR_31)
3.4. Future Housing Solutions and Other Dimensions
My children help me, but I have a PCA every day. She’s very good, it’s a positive experience, that I would also recommend. (MAR_24)
At least there [nursing home] there is someone who says goodnight to you. Do you have an idea of what is it like to eat alone every day for years and years and years? Going to bed alone for years and years and years? (LOM_14)
3.5. Family or Public Care Responsibility and Other Dimensions
I have my sister, if I need something, she is available. If there is a need, it is better to have help from the family. (MAR_13)
More public services [should assist seniors]. I do not want to disturb my children, who work a lot, and have their own families too! Why should they take care of my several health problems? This does not suit me on principle. (MAR_22)
In my opinion, the family should help those who have it. I do not have a family, thus the Municipality, the Region, should help me with public services. (MAR_34)
Public services must intervene firstly, and much more. I need so much and what SAD is delivering is too scarce. I would like more help. Four hours a week is not enough. (CAL_8)
3.6. Future Housing Solutions and Family/Public Responsibility of Caring for Older People
4. Discussion
4.1. Future Housing Solutions
4.1.1. Ageing at Home, at Least with a PCA
4.1.2. Ageing in a Nursing Home
4.1.3. Ageing in Cohabitation or Proximity with Children
4.1.4. Further Consideration on Future Housing
4.2. Family or Public Care Responsibility
4.2.1. Family as First Care Provider
4.2.2. Family and Public Services
4.2.3. Public Services as First Care Provider
4.3. Future Housing Solutions, Family/Public Care Responsibility and Other Dimensions
4.4. Regional/Territorial Differences
4.5. Limitations and Trustworthiness of the Study
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Macro-Categories | Sub-Categories | Labels for the Analysis | Quantitative Items (N = Number) 1 |
---|---|---|---|
Future housing solutions | Preferred future assistance | Home | N. respondents reporting the main preferred solution(s). In addition, some specifications:
|
Home with Personal Care Assistant (PCA) | |||
Nursing Home | |||
Cohabitation with children | |||
Proximity with children | |||
Other | |||
Unsure/decision to make with family | |||
Regulatory orientation on care | Opinion on caring responsibility of family and public services | Family | N. respondents reporting the opinions |
Family and Public Services | |||
Public Services | |||
Other |
Characteristics | Regions | |||
---|---|---|---|---|
Lombardy | Marche | Calabria | Total | |
Age Groups (years) | ||||
67–74 | 9 | 4 | 4 | 17 |
75–79 | 7 | 6 | 6 | 19 |
80–84 | 10 | 11 | 7 | 28 |
85 and over | 14 | 19 | 23 | 56 |
Gender | ||||
Male | 9 | 8 | 13 | 30 |
Female | 31 | 32 | 27 | 90 |
Education | ||||
No title | 1 | 9 | 4 | 14 |
Primary school (5 years) | 16 | 15 | 24 | 55 |
Middle school (3 years) | 8 | 9 | 3 | 20 |
High school (3–5 years) | 15 | 7 | 6 | 28 |
University/similar (3–5 years) | - | - | 3 | 3 |
Marital Status | ||||
Single | 7 | 5 | 4 | 16 |
Married but not cohabiting | 1 | 1 | - | 2 |
Divorced/separated | 9 | 2 | 3 | 14 |
Widowed | 23 | 32 | 33 | 88 |
Living Situation | ||||
Alone | 36 | 32 | 25 | 93 |
With personal care assistant (PCA) | 4 | 8 | 15 | 27 |
Mobility | ||||
Only in the home | 12 | 17 | 19 | 48 |
Also outside the home with help 1 | 28 | 23 | 21 | 72 |
Level of physical limitations 2 | ||||
Mild | 13 | 12 | 5 | 30 |
Moderate | 8 | 12 | 13 | 33 |
High | 10 | 8 | 9 | 27 |
Very high | 9 | 8 | 13 | 30 |
Care arrangements/Supports 3 | ||||
Family | 27 | 33 | 34 | 94 |
Children | 21 | 23 | 27 | 71 |
Public service | 14 | 23 | 6 | 43 |
Home care (SAD) | 12 | 11 | 5 | 28 |
Monthly income brackets (EUR) | ||||
Up to 600 | 5 | 3 | 2 | 10 |
601–1500 | 30 | 30 | 29 | 89 |
1501–2500 | 4 | 6 | 7 | 17 |
2500+ | - | - | 2 | 2 |
Missing | 1 | 1 | - | 2 |
Total Cases/Respondents | 40 | 40 | 40 | 120 |
Solutions 1 | Lombardy | Marche | Calabria | Total | ||||
---|---|---|---|---|---|---|---|---|
n | % | n | % | n | % | n | % | |
Home | 21 | 53 | 17 | 43 | 23 | 58 | 61 | 51 |
Home with PCA | 4 | 10 | 11 | 28 | 9 | 23 | 24 | 20 |
PCA already present | - | - | 4 | 10 | 3 | 8 | 7 | 6 |
PCA absent | 4 | 10 | 7 | 17 | 6 | 15 | 17 | 14 |
Nursing Home | 12 | 30 | 18 | 45 | 6 | 15 | 36 | 30 |
As first choice | 4 | 10 | 4 | 10 | 1 | 3 | 9 | 7 |
As second/third choice | 8 | 20 | 14 | 35 | 5 | 13 | 27 | 23 |
Cohabitation with children | 1 | 3 | 5 | 13 | 6 | 15 | 12 | 10 |
Proximity with children | - | - | 4 | 10 | - | - | 4 | 3 |
Other 2 | 3 | 8 | - | - | 4 | 10 | 7 | 6 |
Unsure/decision to make with family 3 | 5 | 13 | 3 | 8 | 5 | 13 | 13 | 11 |
Total respondents | 40 | 100 | 40 | 100 | 40 | 100 | 120 | 100 |
Opinions of Older People | Lombardy | Marche | Calabria | Total | ||||
---|---|---|---|---|---|---|---|---|
n | % | n | % | n | % | n | % | |
Family (e.g., children) | 23 | 58 | 14 | 35 | 13 | 33 | 50 | 42 |
Family and public services 1 | 12 | 30 | 12 | 30 | 14 | 35 | 38 | 32 |
Public services | 4 | 10 | 12 | 30 | 10 | 25 | 26 | 22 |
Other 2 | 1 | 3 | 2 | 5 | 3 | 8 | 6 | 5 |
Total respondents | 40 | 100 | 40 | 100 | 40 | 100 | 120 | 100 |
Sample Characteristics | Home | Home with PCA | Nursing Home | Total | ||||
---|---|---|---|---|---|---|---|---|
n | % | n | % | n | % | n | % | |
Gender | ||||||||
Male | 16 | 53 | 7 | 23 | 9 | 30 | 30 | 100 |
Female | 45 | 50 | 17 | 19 | 27 | 30 | 90 | 100 |
Living Situation | ||||||||
Alone | 45 | 48 | 17 | 18 | 31 | 33 | 93 | 100 |
With PCA | 16 | 59 | 7 | 26 | 5 | 19 | 27 | 100 |
Mobility | ||||||||
Only in the home | 24 | 50 | 10 | 21 | 14 | 29 | 48 | 100 |
Additionally, outside the home with help | 37 | 51 | 14 | 19 | 22 | 31 | 72 | 100 |
Level of physical limitations 2 | ||||||||
Mild | 14 | 47 | 9 | 30 | 10 | 33 | 30 | 100 |
Moderate | 17 | 52 | 6 | 18 | 9 | 27 | 33 | 100 |
High | 15 | 56 | 1 | 4 | 9 | 33 | 27 | 100 |
Very high | 15 | 50 | 8 | 27 | 8 | 27 | 30 | 100 |
Supports 3 | ||||||||
Family | 48 | 51 | 22 | 23 | 30 | 32 | 94 | 100 |
Public service | 21 | 49 | 4 | 9 | 14 | 33 | 43 | 100 |
Total respondents 4 | 61 | 51 | 24 | 20 | 36 | 30 | 120 | 100 |
Sample Characteristics | Family | Family/Public Service | Public Service | Total | ||||
---|---|---|---|---|---|---|---|---|
n | % | n | % | n | % | n | % | |
Gender | ||||||||
Male | 12 | 40 | 6 | 20 | 10 | 33 | 30 | 100 |
Female | 38 | 42 | 32 | 36 | 16 | 18 | 90 | 100 |
Living Situation | ||||||||
Alone | 39 | 42 | 28 | 30 | 21 | 23 | 93 | 100 |
With PCA | 11 | 41 | 10 | 37 | 5 | 19 | 27 | 100 |
Mobility | ||||||||
Only in the home | 19 | 40 | 16 | 33 | 10 | 21 | 48 | 100 |
Additionally, outside the home with help | 31 | 43 | 22 | 31 | 16 | 22 | 72 | 100 |
Level of physical limitations 2 | ||||||||
Mild | 15 | 50 | 8 | 27 | 7 | 23 | 30 | 100 |
Moderate | 14 | 42 | 12 | 36 | 6 | 18 | 33 | 100 |
High | 10 | 37 | 11 | 41 | 5 | 19 | 27 | 100 |
Very high | 11 | 37 | 7 | 23 | 8 | 27 | 30 | 100 |
Supports 3 | ||||||||
Family | 38 | 40 | 33 | 35 | 18 | 19 | 94 | 100 |
Public service | 14 | 33 | 15 | 35 | 10 | 23 | 43 | 100 |
Total respondents 4 | 50 | 42 | 38 | 32 | 26 | 22 | 120 | 100 |
Future Housing Solutions 2 | Responsibility of Caring for Older People 1 | |||||||
---|---|---|---|---|---|---|---|---|
Family | Family/Public Service | Public Service | Total | |||||
n | % | n | % | n | % | n | % | |
Home | 32 | 52 | 19 | 31 | 7 | 11 | 61 | 100 |
Home with PCA | 8 | 33 | 6 | 25 | 10 | 42 | 24 | 100 |
Nursing home | 12 | 33 | 12 | 33 | 9 | 25 | 36 | 100 |
Total respondents | 50 | 42 | 38 | 32 | 26 | 22 | 120 | 100 |
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Melchiorre, M.G.; D’Amen, B.; Quattrini, S.; Lamura, G.; Socci, M. Caring for Frail Older People Living Alone in Italy: Future Housing Solutions and Responsibilities of Family and Public Services, a Qualitative Study. Int. J. Environ. Res. Public Health 2022, 19, 7413. https://doi.org/10.3390/ijerph19127413
Melchiorre MG, D’Amen B, Quattrini S, Lamura G, Socci M. Caring for Frail Older People Living Alone in Italy: Future Housing Solutions and Responsibilities of Family and Public Services, a Qualitative Study. International Journal of Environmental Research and Public Health. 2022; 19(12):7413. https://doi.org/10.3390/ijerph19127413
Chicago/Turabian StyleMelchiorre, Maria Gabriella, Barbara D’Amen, Sabrina Quattrini, Giovanni Lamura, and Marco Socci. 2022. "Caring for Frail Older People Living Alone in Italy: Future Housing Solutions and Responsibilities of Family and Public Services, a Qualitative Study" International Journal of Environmental Research and Public Health 19, no. 12: 7413. https://doi.org/10.3390/ijerph19127413
APA StyleMelchiorre, M. G., D’Amen, B., Quattrini, S., Lamura, G., & Socci, M. (2022). Caring for Frail Older People Living Alone in Italy: Future Housing Solutions and Responsibilities of Family and Public Services, a Qualitative Study. International Journal of Environmental Research and Public Health, 19(12), 7413. https://doi.org/10.3390/ijerph19127413