Data Are Power: Addressing the Power Imbalance Around Community Data with the Open-Access Data4HumanRights Curriculum
Abstract
:1. Introduction
- (1)
- Improve the capacity of community-based organisations (e.g., in Lagos and Nairobi) to have a larger and more skilled/knowledgeable group of community data collectors and mappers;
- (2)
- Enable the collection and documentation of human rights-related data on a large scale in a systematic manner;
- (3)
- Consolidate and further develop the training materials as an open-source resource that can be tailored and adopted easily to other similar LMIC deprived communities.
2. Materials and Methods
2.1. Co-Design of the Training Outline with Community Groups
2.2. Principles of the Initial Material Development
2.3. Piloting, Feedback, and Oversight by Community-Based Organisations
2.4. Refinement and Public Release of the Materials
- Instructions: These guide the trainer(s) on delivering the training and a participant assessment form and attendance sheet.
- Slides: These provide visuals to help to deliver engaging, informative training. The slides can be projected, though in most cases the content can be delivered using a whiteboard or flipchart paper and the two-page handout (below). (Slides are not required for the training but are an essential orientation for trainers.)
- Handouts: These can be distributed during the training (paper copies) and/or made available for reference after the training (e.g., via WhatsApp). We recommend printing a few copies and laminating them for reuse (to reduce printing).
- Videos: Most modules are accompanied by a short video describing how to deliver the materials and/or demos of the tools used. (Videos are not required for the training but can be shared with training participants and are an essential orientation for trainers.)
2.5. The Importance of Female Leadership During Training Sessions
3. Results
3.1. The Developed Data4HumanRights Training Materials
- Applications: These modules set the scene for understanding the importance of data for community building, advocacy, and campaigning for human rights. Topics include an introduction to data for human rights, power and influence mapping, and how to prepare and deliver community training.
- Foundations: These modules provide the basics of working with a smartphone (instead of a computer) to organize information and communication. Topics include working with Google Drive and Docs, Making presentations with Google Slides, and using online meeting tools.
- Quantitative methods: These modules allow data collection on questions about what is happening in communities. Topics include data collection tools such as KoboCollect and Google Forms, survey design, sampling and planning, survey set-up in different tools, and working with tables and presenting data (e.g., graphs).
- Qualitative methods: These modules allow data collection on ‘why’ questions. Topics include focus group discussions, interviews, photovoice, sketch maps, and reconnaissance surveys.
- Spatial methods: These modules relate to ‘where’ questions in communities, enabling them to understand the geographic context. Topics include field spatial data collection in QField (mobile), visualizing data in the Google Maps app (mobile), mapping photos and text in Google Maps (computer), historical imagery and digitising data in Google Earth (computer), and adding to and editing OpenStreetMap.
- Media methods: These modules support communities by communicating about advocacy and awareness campaigns. Topics include an introduction to social media, taking powerful photos, uncovering a good story, and effective social media posts.
3.2. Training of Trainers in Lagos (Nigeria) and Expansion to Other Cities
- The sustainability of the training is supported by publishing the training materials as open-access material on our website, which allows community data collectors, CBOs, and NGOs to reuse the materials.
- The training materials are presently adapted by CommunityMappers (in Kenya) to fit their needs for community data collection on human rights. This will also include a translation to Swahili.
3.3. Advocacy Examples—The Impact of the D4HR Training Material
- Waste mapping in Nairobi (Kenya): Prior to the formalisation of Data4HumanRights, community workshops identified that quantifying and visualising the massive waste accumulations in deprived areas was a priority for the community. Through a small-scale fund, CommunityMappers launched a data collection campaign that mapped all trash piles in several communities in Nairobi. The data collection brought awareness of the problem both within the neighbourhoods and beyond. However, community activists lacked the capacity to visualise the data through maps. The D4HR curriculum was used to train members of the groups on how to generate and share maps. This allowed for collaborative collection, sharing, and updating of geolocated neighbourhood data. The resulting maps were used in discussions with local governments to raise awareness about the health and environmental consequences of the lack of waste management (Figure 9). In particular, in the context of floods, the blockage of drainage by waste is often a major cause of floods in settlements. One significant impact of the data collection and mapping was the increased awareness it generated, which led to youth groups taking action by cleaning up land and developing community projects.
- Eviction mapping in Nairobi (Kenya) and Lagos (Nigeria): Both cities have experienced massive evictions in 2023 and 2024. Most recently, severe flooding, that started in late April 2024, ravaged parts of Nairobi, resulting in considerable loss of life and extensive damage to residential properties. Despite widespread media coverage of the disaster, the subsequent government eviction had almost no media attention. The Kenyan government initiated a large-scale eviction of informal settlements along the city’s rivers, resulting in the displacement of approximately 180,000 individuals with limited prior notification. These evictions have exacerbated the crisis, leaving many families without shelter or adequate support. With the help of D4HR training, community groups were able to document the scale of these evictions, highlighting the need for a just and humanistic approach to resettlement. The advocacy being supported by photos and maps stressed the importance of integrating local knowledge and spatial data in disaster response planning to address climate injustice and support vulnerable populations effectively (Figure 10). One significant impact of mapping was the empowerment of understanding the location of the eviction zones, providing certainties for households whether they are inside or outside the eviction zone. This certainty alleviated stress for community members outside the eviction zone and allowed those within the zone to prepare for the eviction. Similarly, massive evictions have occurred in Lagos, with mapping examples for advocacy (Figure 1).
4. Discussion
4.1. Main Lessons Learned Towards Designing an Inclusive D4HR Training Material
4.2. Supporting Female Leadership Models, Inclusivity, and Reducing Access Barriers
4.3. Community-Based Advocacy Supported by Data
4.4. Challenges and Limitations Faced by Community Members During the Training
- ❖
- Limited access to technology: While smartphones are commonly available, the training should equip participants with data bundles so as not to create additional costs for participants. Lack of electricity could also impact the training and power banks might be needed as part of the training.
- ❖
- Literacy and education barriers: The training should be inclusive and designed to bridge the differences in literacy and education backgrounds. In particular, handouts need simple visual aids.
- ❖
- Language and cultural barriers: Although materials are translated into local languages, they might not cover the full range of languages. It is essential to ensure that all participants fully understand the materials. Cultural differences might require adjustments in the training, particularly when it comes to gender roles and the active participation of female leaders or people with disabilities.
- ❖
- Physical disabilities or health-related limitations: Although the training materials are adapted to support participants with disabilities, the training needs to be flexible to support participants who require more personalized accommodations.
- ❖
- Time and scheduling constraints: Community members often have limited time availability due to work obligations or family responsibilities. This is a major barrier to attending long and frequent training sessions. Also, political circumstances and transport challenges need to be considered to allow participation in training sessions.
- ❖
- Safety concerns: Depending on the location, safety concerns or political instability might restrict participation, particularly when conducting data collection exercises related to human rights.
- ❖
- Barriers for co-researchers: Co-researchers from communities may face logistical challenges due to limited resources for long-term involvement.
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
1 | Human rights-related issues include, e.g., the Right to life, Right to health, Right to education, Right to adequate housing, Right to dignity, Right to personal liberty, Right to fair hearing, Right to freedom of thought, Right to freedom of expression and the press, Right to freedom from discrimination [3]. |
2 | https://www.data4humanrights.net (accessed on 1 January 2025) |
3 | https://www.ideamapsnetwork.org/ (accessed on 1 January 2025) |
4 | https://www.idea-maps.net/workshops/community/ (accessed on 1 January 2025) |
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Kuffer, M.; Thomson, D.R.; Wakonyo, D.; Kimani, N.W.; Kohli-Poll Jonker, D.; Okoko, E.; Toheeb, R.; Akinmuyiwa, B.; Zanna, M.; Imole, D.; et al. Data Are Power: Addressing the Power Imbalance Around Community Data with the Open-Access Data4HumanRights Curriculum. Societies 2025, 15, 29. https://doi.org/10.3390/soc15020029
Kuffer M, Thomson DR, Wakonyo D, Kimani NW, Kohli-Poll Jonker D, Okoko E, Toheeb R, Akinmuyiwa B, Zanna M, Imole D, et al. Data Are Power: Addressing the Power Imbalance Around Community Data with the Open-Access Data4HumanRights Curriculum. Societies. 2025; 15(2):29. https://doi.org/10.3390/soc15020029
Chicago/Turabian StyleKuffer, Monika, Dana R. Thomson, Dianne Wakonyo, Nicera Wanjiru Kimani, Divyani Kohli-Poll Jonker, Enyo Okoko, Rasak Toheeb, Bisola Akinmuyiwa, Mohammed Zanna, Dezyno Imole, and et al. 2025. "Data Are Power: Addressing the Power Imbalance Around Community Data with the Open-Access Data4HumanRights Curriculum" Societies 15, no. 2: 29. https://doi.org/10.3390/soc15020029
APA StyleKuffer, M., Thomson, D. R., Wakonyo, D., Kimani, N. W., Kohli-Poll Jonker, D., Okoko, E., Toheeb, R., Akinmuyiwa, B., Zanna, M., Imole, D., & Maki, A. (2025). Data Are Power: Addressing the Power Imbalance Around Community Data with the Open-Access Data4HumanRights Curriculum. Societies, 15(2), 29. https://doi.org/10.3390/soc15020029