The Network That Unites a Qualitative Study on Clinical Psychological Intervention for Women with a History of Breast Cancer and Chronic Pain
Abstract
:1. Introduction
2. Materials and Methods
2.1. Research Questions
- Chronic pain and interference with quality of life and psychological well-being (How does your physical pain interfere with daily activities? How does your physical pain interfere with your psychological well-being? Tell me about what you feel, how you feel.);
- Chronic pain and relational well-being (Does physical pain also interfere with your relationship with family members or friends? In what ways? How do you feel when you are able to vent to your relatives or friends about his/her mental or physical suffering?);
- Participants’ perception of the role of the psychologist and the usefulness of psychological support in the management of chronic pain. (Have you ever sought help from a psychologist for this physical and/or psychological suffering of yours? Was it helpful to you? Tell me about your experience; if you have never done so, do you think it would be helpful to you and why? Have your family members ever used psychological support for their emotional state related to your neoplasm? Was it helpful for them and for coping better? Please tell me about their experience; if they have never used it, do you think it can also be helpful in supporting you in your treatment journey? Justify your answer.).
2.2. Participants
2.3. Methodology
- Name, age, marital status, and any children;
- Duration of therapy;
- Type of treatment followed;
- “Verbal Rating Scale” for chronic pain, a scale to rank perceived severity from 0 to 3.
- Physical pain and interference with daily activities;
- Physical pain and psychological well-being;
- Physical pain and interference in relationships with family or friends;
- Ability to vent to family or friends;
- Any requests for psychological support because of physical or psychological suffering related to the disease, experience, and perception of the psychologist’s role;
- Possible request for psychological support from family members for their emotional state related to the presence of the patient’s illness, experience, and perceived usefulness of the patient.
2.4. Eligibility Criteria
- They are female;
- They suffer or have recovered from breast carcinoma;
- They currently claim to have chronic cancer pain, assessed by the Verbal Rating Scale.
2.5. Recruitment and Sampling Strategy
2.6. Data Collection and Processing
2.7. Data Management and Analysis
3. Results
3.1. Characteristics of Participants
3.2. Themes
3.2.1. Theme 1: Quality of Life and Psychological Well-Being
“I do things as if I am already tired, I should be more agile in my movements but I do them with tiredness.”(C., 37 years old)
“Sometimes I can’t do daily activities, I get tired and feel 80 years old.”(A., 43 years old)
“I’m not a fearful person, I face everything from the first moment, I’m sure I have a strength... my husband calls it alien strength (...) I had to roll up my sleeves, I never got discouraged.”(A., 43 years old)
“I don’t stop, I get up, I put on make-up and I fix myself up, in fact the sicker I am the more I put on make-up (...) I can’t stop, I mustn’t stop, even if sometimes it’s hard.”(M., 40 years old)
3.2.2. Theme 2: Relational Well-Being
“Chronic pain interferes with the relationship with family and friends, yes, because there are days when I am not particularly well, even morally perhaps, and they don’t understand it. I’ve been told “OK, but now you have breast implants” or “come on, you haven’t had chemo, you haven’t lost your hair” but what does that mean? You don’t say these things.”(D., 48 years old)
“I vent more with my husband; he is my outlet. But many times, I avoid involving others because I don’t really feel understood. They know I take the tablets (hormone pill); they know there are side effects but they don’t really understand when you are in that situation what it feels like.”(C., 37 years old)
“The relationship created with all the members of the association has helped me a lot, there is a rare feeling between us (...) it is as if we had known each other all our lives, we share experiences (...) we are in tune, on the same track. The relationship and the dialogue with them are very useful, spontaneous, simple and natural, it also helps with pain management.”(A., 43 years old)
“I was trying to be a normal mum, I didn’t want to burden the children with the pain, I was trying to absorb it all myself and not pour it on others.”(M., 49 years old)
3.2.3. Theme 3: Perception and Role of the Psychologist
“My family would need it very much. My husband experienced my disease in a special way, I was the one who had to give him a boost because he started throwing himself on the sofa and crying without doing anything else for a long time. He has major depression, there’s nothing to do.”(G., 63 years old)
“The acceptance of what I had, of what I had to do, of treatments, was difficult for me and only with the help of the therapy that we do as a group I had very good results (...) in these five years I can say that everything has changed and everything has improved, the pain cannot be taken away by the therapy but it can give me a different light and make me face it differently, I am certainly not facing it as I did before the psychological approach.”(A., 49 years old)
“I have never considered psychological support because I believe I have found my balance.”(C., 40 years old)
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Characteristics of Participants | Total (n = 29) |
---|---|
Age: mean years (sd) | 51.06 (9.51) |
Currently being treated: | |
yes (%) | 20 (68.96%) |
no (%) | 9 (31.03%) |
Type of treatment: | |
surgery | 27 |
chemotherapy | 23 |
oral chemotherapy | 2 |
hormone therapy | 25 |
radiotherapy | 17 |
biological therapy | 1 |
immunotherapy | 1 |
Theme | Subtheme |
---|---|
Quality of life and psychological well-being |
|
Relational well-being |
|
Perception and role of the psychologist |
|
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Maglia, M.; Tortorici, J.; Lenzo, V.; Aiello, D.; Alì, M.; Aiello, R.; Caponnetto, P. The Network That Unites a Qualitative Study on Clinical Psychological Intervention for Women with a History of Breast Cancer and Chronic Pain. Eur. J. Investig. Health Psychol. Educ. 2022, 12, 619-630. https://doi.org/10.3390/ejihpe12060046
Maglia M, Tortorici J, Lenzo V, Aiello D, Alì M, Aiello R, Caponnetto P. The Network That Unites a Qualitative Study on Clinical Psychological Intervention for Women with a History of Breast Cancer and Chronic Pain. European Journal of Investigation in Health, Psychology and Education. 2022; 12(6):619-630. https://doi.org/10.3390/ejihpe12060046
Chicago/Turabian StyleMaglia, Marilena, Julie Tortorici, Vittorio Lenzo, Daniela Aiello, Marco Alì, Rosanna Aiello, and Pasquale Caponnetto. 2022. "The Network That Unites a Qualitative Study on Clinical Psychological Intervention for Women with a History of Breast Cancer and Chronic Pain" European Journal of Investigation in Health, Psychology and Education 12, no. 6: 619-630. https://doi.org/10.3390/ejihpe12060046
APA StyleMaglia, M., Tortorici, J., Lenzo, V., Aiello, D., Alì, M., Aiello, R., & Caponnetto, P. (2022). The Network That Unites a Qualitative Study on Clinical Psychological Intervention for Women with a History of Breast Cancer and Chronic Pain. European Journal of Investigation in Health, Psychology and Education, 12(6), 619-630. https://doi.org/10.3390/ejihpe12060046