Palliative Care for Chronic Diseases

A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Chronic Care".

Deadline for manuscript submissions: closed (31 October 2024) | Viewed by 4313

Special Issue Editors


E-Mail Website
Guest Editor
School of Nursing Midwifery and Health Systems, Health Sciences Centre, University College Dublin, D04 V1W8 Dublin, Ireland
Interests: nursing; chronic illness
Special Issues, Collections and Topics in MDPI journals

E-Mail Website
Guest Editor
1. School of Nursing Midwifery and Health Systems, Health Sciences Centre, University College Dublin, D04 V1W8 Dublin, Ireland
2. Our Lady’s Hospice & Care Services, Harold’s Cross, D6W RY72 Dublin, Ireland
Interests: palliative care; spirituality
Special Issues, Collections and Topics in MDPI journals

Special Issue Information

Dear Colleagues,

The World Health Organization defines palliative care as an approach that improves quality of life for patients and their families who are faced with the problems associated with living with a life-limiting condition. Palliative care focusses on the relief of suffering through the assessment and management of complex symptoms that can be physical, psychological, social or spiritual. Relief of such suffering requires attention to person-centred care, where the patient and their family are involved and are part of all decisions regarding their health. This must also include the patient’s wishes and preferences for care and treatment at all times. A key principle of palliative care is that it is applicable at any point along the disease trajectory. Indeed, access to palliative care—including end-of-life care—has been identified as a human right (Brennan, 2007), and irrespective of diagnosis, prognosis, geographic location, gender, sexual orientation and civil status, patients and their families have a right to ethical palliative care, which incorporates individual needs and includes consideration of wishes and preferences for care, including place of care. 

This Special Issue will explore palliative care for chronic disease, examining the key issues that arise for patients and their families in receipt of palliative and end-of-life care. 

Articles for this Special Issue may focus on issues that arise for patients with chronic disease and their families from diverse and varying cultural and ethnic backgrounds, and how these may influence health-related decision making.  

Through these explorations, this Special Issue will draw attention to, and deepen our understanding of, palliative care for chronic disease.

You may choose our Joint Special Issue in International Journal of Environmental Research and Public Health.

Dr. Mary Ryder
Dr. Michael Connolly
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Healthcare is an international peer-reviewed open access semimonthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2700 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • palliative care
  • chronic disease
  • supportive care
  • complex symptoms

Benefits of Publishing in a Special Issue

  • Ease of navigation: Grouping papers by topic helps scholars navigate broad scope journals more efficiently.
  • Greater discoverability: Special Issues support the reach and impact of scientific research. Articles in Special Issues are more discoverable and cited more frequently.
  • Expansion of research network: Special Issues facilitate connections among authors, fostering scientific collaborations.
  • External promotion: Articles in Special Issues are often promoted through the journal's social media, increasing their visibility.
  • e-Book format: Special Issues with more than 10 articles can be published as dedicated e-books, ensuring wide and rapid dissemination.

Further information on MDPI's Special Issue polices can be found here.

Published Papers (3 papers)

Order results
Result details
Select all
Export citation of selected articles as:

Research

Jump to: Review, Other

12 pages, 249 KiB  
Article
Determining the Need for Palliative Care Patients with Multiple Sclerosis—A Cross-Sectional Study
by Branimirka Aranđelović, Svetlana Simić, Dragana Simin, Milena Mikić, Vladimir Dolinaj, Slobodanka Bogdanović Vasić and Dragana Milutinović
Healthcare 2024, 12(20), 2024; https://doi.org/10.3390/healthcare12202024 - 11 Oct 2024
Viewed by 848
Abstract
Background/Objectives: Multiple sclerosis is characterised by the manifestation of heterogeneous symptoms that affect daily functioning. Patients face physical impairment, psychological problems and socioeconomic changes. Depending on the form of the disease, they may have different needs, which are often unsatisfied and could be [...] Read more.
Background/Objectives: Multiple sclerosis is characterised by the manifestation of heterogeneous symptoms that affect daily functioning. Patients face physical impairment, psychological problems and socioeconomic changes. Depending on the form of the disease, they may have different needs, which are often unsatisfied and could be overcome by including palliative care in the treatment. Despite the above, not enough is known about this population’s needs for palliative care. This cross-sectional study aimed to identify the need for palliative care and assess the functional dependence level in daily living activities in patients with multiple sclerosis. Methods: The sample consisted of 120 patients from the Neurology Clinic of the University Clinical Center of Vojvodina, Serbia. The following research instruments were used: a General questionnaire, Sheffield Profile for Assessment and Referral for Care, Multiple Sclerosis Impact Scale and Barthel Index. Results: The need for palliative care was expressed by 36.7% of patients, who expressed the most concern for the physical symptoms, independence and activity domains. Also, it was determined that the disease prevents patients from doing demanding physical tasks and that they are worried about multiple sclerosis. Almost a quarter of patients have had complete/severe dependence on other persons in performing daily activities. Conclusions: The most frequently reported physical symptoms by patients with MS were weakness, bladder problems, fatigue and different levels of dependence, while concerns related to sexual health, low mood and anxiety emerged as key challenges in the psychological domain. These findings underscore the importance of conducting needs assessments to guide the development of an appropriate palliative care model for MS patients. Full article
(This article belongs to the Special Issue Palliative Care for Chronic Diseases)

Review

Jump to: Research, Other

21 pages, 1120 KiB  
Review
The Impact of Palliative Care on Mitigating Pain and Its Associated Effects in Determining Quality of Life among Colon Cancer Outpatients
by John M. Macharia, Bence L. Raposa, Dávid Sipos, Csaba Melczer, Zoltan Toth and Zsolt Káposztás
Healthcare 2023, 11(22), 2954; https://doi.org/10.3390/healthcare11222954 - 12 Nov 2023
Viewed by 2538
Abstract
Pain continues to be a significant problem for cancer patients, and the impact of a population-based strategy on their experiences is not completely understood. Our study aimed to determine the impact of palliative care on mitigating pain and its associated effects in determining [...] Read more.
Pain continues to be a significant problem for cancer patients, and the impact of a population-based strategy on their experiences is not completely understood. Our study aimed to determine the impact of palliative care on mitigating pain and its associated effects in determining the quality of life (QoL) among colon cancer outpatients. Six collection databases were used to perform a structured systematic review of the available literature, considering all papers published between the year 2000 and February 2023. PRISMA guidelines were adopted in our study, and a total of 9792 papers were evaluated. However, only 126 articles met the inclusion criteria. A precise diagnosis of disruptive colorectal cancer (CRC) pain disorders among patients under palliative care is necessary to mitigate it and its associated effects, enhance health, promote life expectancy, increase therapeutic responsiveness, and decrease comorbidity complications. Physical activities, the use of validated pain assessment tools, remote outpatient education and monitoring, chemotherapeutic pain reduction strategies, music and massage therapies, and bridging social isolation gaps are essential in enhancing QoL. We recommend and place a strong emphasis on the adoption of online training/or coaching programs and the integration of formal and informal palliative care systems for maximum QoL benefits among CRC outpatients. Full article
(This article belongs to the Special Issue Palliative Care for Chronic Diseases)
Show Figures

Figure 1

Other

Jump to: Research, Review

18 pages, 589 KiB  
Systematic Review
The Role of Spirituality and Religion in Improving Quality of Life and Coping Mechanisms in Cancer Patients
by Dana Sonia Nagy, Alexandru Isaic, Alexandru Catalin Motofelea, Dorel Ionel Popovici, Razvan Gheorghe Diaconescu and Serban Mircea Negru
Healthcare 2024, 12(23), 2349; https://doi.org/10.3390/healthcare12232349 - 24 Nov 2024
Viewed by 325
Abstract
Background/Objectives: This systematic review aimed to comprehensively evaluate the role of spirituality and religion in the journey of patients with cancer and assess their impact on various aspects of well-being and coping mechanisms. Methods: Systematic searches were conducted in PubMed, Scopus, and Google [...] Read more.
Background/Objectives: This systematic review aimed to comprehensively evaluate the role of spirituality and religion in the journey of patients with cancer and assess their impact on various aspects of well-being and coping mechanisms. Methods: Systematic searches were conducted in PubMed, Scopus, and Google Scholar following the PRISMA guidelines. This study focused on the period from 2014 to 2024, the time chosen for the emerging integration of spirituality and religion in cancer treatment. Inclusion criteria targeted studies exploring the impact of spirituality and religion on cancer patients’ quality of life, coping, and treatment outcomes. Results: A comprehensive search initially yielded 2591 papers, of which 1544 were excluded as duplicates, and 113 were further excluded based on the inclusion criteria. Ultimately, 53 papers were selected for review, including 8 prospective cohort, 17 cross-sectional, 16 observational descriptive, and 12 RCT studies. Encompassing 13,590 patients with various cancer types, including breast, gastrointestinal, prostate, brain, and others, the review highlighted spirituality and religion’s significant role in improving cancer patients’ well-being. Across different cancers, greater spiritual well-being and religious coping were consistently associated with an improved quality of life, reduced distress, enhanced coping, and better treatment outcomes. Interventions such as mindfulness therapy, yoga, and religious coping strategies positively impact patients’ spiritual and emotional well-being. Conclusions: This review highlights the vital role of spirituality and religion in cancer care. Integrating these aspects into patient plans offers comfort and support throughout treatment. Healthcare providers should prioritize spiritual support to enhance patient well-being and optimize outcomes. Full article
(This article belongs to the Special Issue Palliative Care for Chronic Diseases)
Back to TopTop