Social Reintegration Experiences of Young Adult Cancer Survivors
Abstract
:1. Introduction
2. Materials and Methods
2.1. Q Population Organisation
- At what age were you diagnosed with cancer?
- What type of cancer was it?
- What stage was the cancer?
- How long did the treatment take?
- How many years have passed since you received hospital treatment?
- If you were to compare your social reintegration experience before and after being diagnosed with cancer, what would be the biggest difference?
- What words come to mind when you think of social reintegration?
- What was your social reintegration experience?
- Do you have any memorable experiences of the social reintegration process?
- What was the most difficult part of the social reintegration process?
- What was helpful in the social reintegration process?
- What is the most important factor for reintegrating cancer survivors in their 20s and 30s into society?
- What else would you like to add?
2.2. Q Sample Selection
2.3. P Sample Organisation
2.4. Q Sample Sorting
2.5. Data Analysis
3. Results
3.1. Result Analysis
3.2. Characteristics of the Types of Perceptions
3.2.1. Type 1: Recovery of Presence Through Social Reintegration Seeking
3.2.2. Type 2: Confusion in Social Reintegration due to Social Prejudices
3.2.3. Type 3: Valuing Psychosocial Support in the Process of Social Reintegration
3.2.4. Type 4: A Blessing in Disguise for Post-Traumatic Growth
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Steps | Research Procedures |
---|---|
Q Population | Literature research |
Internet data search | |
In-depth interviews | |
Q Sample Selection | Primary: Researchers (unstructured sample method) |
Secondary: one cancer survivor in their 20s, one cancer survivor in their 30s | |
Tertiary: Three Q methodology experts | |
40 Q samples | |
P Sample Organisation | 12 young adult cancer survivors in their 20s and 30s |
Purposive sampling | |
Q Sample Sorting | Forced distribution by P sample |
11-point scale | |
Data Analysis | Ken-Q Analysis program |
Factor extraction and rotation: principal component analysis (PCA), Varimax rotation | |
Interpretation and Typing | Type characterization |
Type naming |
Factor | Factor 1 | Factor 2 | Factor 3 | Factor 4 |
---|---|---|---|---|
Eigenvalues | 3.522128 | 1.788463 | 1.528208 | 1.040372 |
Explained Variance (%) | 29 | 15 | 13 | 9 |
Cumulative Explained Variance (%) | 29 | 44 | 57 | 66 |
Type | 1 | 2 | 3 | 4 |
---|---|---|---|---|
1 | 1 | 0.044 | 0.1962 | 0.3267 |
2 | 1 | 0.2724 | 0.1791 | |
3 | 1 | 0.3686 | ||
4 | 1 |
Type | P Sample No. | Loading | Sex | Age (International) | Cancer Type | Cancer Stage | Social Reintegration Period After Cancer Onset | Employment Status | Return to the Same Work |
---|---|---|---|---|---|---|---|---|---|
1 (N = 4) | P3 | 10 | F | 27 | Blood cancer (lymphoma) | Stage 2 | Less than 6 months after completion of treatment | N | N |
P10 | 8.90678 | F | 35 | Breast cancer | Stage 2 | More than 1 year after completion of treatment | Y | N | |
P2 | 6.64967 | F | 29 | Breast cancer | Stage 3 | More than 1 year after completion of treatment | Y | N | |
Thyroid cancer | Before surgery | ||||||||
P9 | 4.49717 | F | 37 | Malignant phyllode tumour | Stage 2 | More than 1 year after completion of treatment | Y | N | |
2 (N = 2) | P6 | 28.07677 | F | 28 | Thyroid cancer | Unknown | Less than 6 months after completion of treatment | Y | Y |
P4 | 10.23293 | F | 33 | Breast cancer | Stage 1 | Treatment and social reintegration are in parallel | Y | N | |
3 (N = 3) | P1 | 10.35289 | F | 35 | Breast cancer | Stage 2 | More than 1 year after completion of treatment | Y | N |
P8 | 6.34935 | M | 37 | Thyroid cancer | Stage 2 | Less than 6 months after completion of treatment | Y | Y | |
P12 | 5.77894 | F | 36 | Salivary gland cancer (parotid gland) | Stage 3 | More than 1 year after completion of treatment | Y | N | |
4 (N = 3) | P11 | 13.20113 | F | 27 | Soft tissue sarcoma cancer | Stage 4 | Treatment and social reintegration are in parallel | Y | N |
P5 | 5.90459 | F | 35 | Blood cancer (chronic myeloid leukaemia) | Chronic stage | Treatment and social reintegration are in parallel | Y | N | |
P7 | 3.84598 | F | 28 | Breast cancer | Stage 1 | More than 1 year after completion of treatment | Y | N |
No | Category | Statement | Factor 1 | Factor 2 | Factor 3 | Factor 4 | ||||
---|---|---|---|---|---|---|---|---|---|---|
Z-Score | Rank | Z-Score | Rank | Z-Score | Rank | Z-Score | Rank | |||
1 | Economic professional | I am anxious because I do not properly carry out economic activities compared to my peers. | 0.53 | 15 | −0.95 | 32 | −1.94 | 39 | −0.03 | 24 |
2 | I feel pathetic for having to rely on my parents at an age when I should be independent. | −1.18 | 34 | 0.18 | 18 | −1.63 | 38 | −1.48 | 37 | |
3 | I am more stressed because medical expenses are too high when I cannot find a job. | −0.86 | 29 | −1.37 | 36 | −0.24 | 25 | 0.55 | 14 | |
4 | I envy my friends who are building their careers while working at companies. | 0.97 | 6 | −1.48 | 38 | −0.67 | 28 | 0.3 | 18 | |
5 | I am afraid that I may not be promoted or may be pushed out of the front line after returning to work. | −1.23 | 35 | 0.48 | 12 | −0.76 | 30 | −1.36 | 35 | |
6 | It is difficult because I cannot secure time for regular checkups while working at a company. | −1.33 | 36 | 1.08 | 6 | 0.51 | 10 | −0.39 | 25 | |
7 | I feel burdened by the long gap due to cancer treatment. | 0.32 | 16 | 0.66 | 9 | 0.06 | 22 | 0.98 | 8 | |
8 | I am worried about whether I should reveal my cancer history or hide it when I resume my work. | 0.71 | 12 | 1.69 | 3 | −0.5 | 27 | 0.51 | 15 | |
9 | I am not sure whether there is a workplace where I can work. | 0.11 | 20 | −1.19 | 34 | −0.77 | 31 | −0.96 | 34 | |
10 | I am sorry to my family members because I seem to impose economic and mental burdens on them. | −0.86 | 30 | 0.18 | 19 | 0.07 | 20 | 0.88 | 9 | |
11 | Society (relationships) | I came to know the preciousness of family. | 1.01 | 5 | 1.98 | 1 | 1.55 | 4 | 1.19 | 5 |
12 | I am encouraged by the consideration and support of those around me. | 0.28 | 17 | 0.42 | 15 | 1.53 | 5 | 1 | 7 | |
13 | The experience of fighting cancer is another asset. | −0.16 | 25 | −0.26 | 24 | 1.48 | 6 | 1.94 | 1 | |
14 | The cancer became a blessing in disguise because I was able to study and obtain a certificate during the follow-up period. | −0.88 | 31 | 0.32 | 17 | −0.88 | 34 | 1.36 | 3 | |
15 | I feel lonely because there is no place to get help. | −0.04 | 24 | −0.32 | 29 | −2.01 | 40 | −0.51 | 27 | |
16 | I want to date and get married, but it seems difficult. | −0.97 | 33 | 1.59 | 4 | −0.78 | 32 | 0.66 | 12 | |
17 | I feel like I am an outcast from society. | 0.84 | 8 | −1.4 | 37 | −0.97 | 35 | −1.64 | 38 | |
18 | I am nervous and anxious because my peers seem to get ahead of me, leaving only me behind. | 0.6 | 14 | −1.3 | 35 | −0.83 | 33 | 0.11 | 20 | |
19 | I wish people did not know the fact that I was sick. | −0.97 | 32 | 1.88 | 2 | −1.29 | 37 | −2.21 | 40 | |
20 | I think the most important thing in social reintegration is information. | 0.81 | 9 | 0.5 | 10 | 0.69 | 9 | −0.53 | 28 | |
21 | I need help because having an open mind myself is difficult. | −0.04 | 23 | 0.69 | 8 | 0.77 | 7 | −0.83 | 33 | |
22 | Institutional supplementation to enable social reintegration is desperately necessary. | 1.71 | 2 | −0.29 | 25 | 0.42 | 13 | 0.75 | 10 | |
23 | Physical | I am afraid that if I become stressed after social reintegration, the cancer will relapse or metastasise. | 2.08 | 1 | 1.27 | 5 | 1.76 | 2 | −0.03 | 22 |
24 | I am reluctant to make an appointment because I do not know when and how my condition (physical condition) will change. | 0.19 | 19 | −0.58 | 30 | 0.27 | 16 | −0.64 | 30 | |
25 | I have difficulties with my sex life, but there is no place where I can get help or talk about it comfortably. | −0.84 | 28 | −1.88 | 39 | −1.16 | 36 | 0.42 | 16 | |
26 | I am experiencing psychological difficulties due to infertility and decreased fertility. | −0.53 | 27 | −1.88 | 40 | 0.38 | 14 | −1.43 | 36 | |
27 | My confidence in my appearance is dropping. | −1.61 | 40 | 0.98 | 7 | 0.07 | 21 | −0.03 | 23 | |
28 | I feel that my professional ability has decreased compared to before I became sick. | 0.02 | 22 | −0.79 | 31 | 0.5 | 11 | −0.49 | 26 | |
29 | I feel shrinkage due to my physical condition being different from before. | 0.77 | 10 | 0.11 | 20 | 0.5 | 12 | 0.24 | 19 | |
30 | I think the most important thing in social reintegration is physical strength. | 0.68 | 13 | 0.4 | 16 | 0.7 | 8 | 1.49 | 2 | |
31 | Psychology | I feel like I was newly born again. | −1.59 | 38 | −0.29 | 26 | 1.69 | 3 | 0.66 | 13 |
32 | I feel like I can make choices and live a better life versus before I got sick. | 0.92 | 7 | −0.29 | 27 | 0.25 | 18 | 1.24 | 4 | |
33 | I think I have a prejudice against cancer. | −1.46 | 37 | 0 | 22 | 0.09 | 19 | −0.64 | 31 | |
34 | I am at a loss because I have more days to live than the days I have lived. | −0.51 | 26 | −0.29 | 28 | 0.35 | 15 | −0.58 | 29 | |
35 | I am solitary and lonely. | 0.05 | 21 | −0.21 | 23 | −0.76 | 29 | −0.69 | 32 | |
36 | I feel really hopeless because there seems to be no hope. | −1.59 | 39 | −1.11 | 33 | −0.19 | 24 | −1.91 | 39 | |
37 | I have an ambivalent feeling that I can do it, but I cannot do it (return to work, new challenges, etc.). | 1.36 | 4 | 0.48 | 13 | 0.26 | 17 | 0.3 | 17 | |
38 | I need mental care. | 0.26 | 18 | 0.48 | 14 | 1.98 | 1 | 0.09 | 21 | |
39 | It is important to think about myself with sufficiently many possibilities opened. | 0.77 | 11 | 0.5 | 11 | −0.14 | 23 | 1.03 | 6 | |
40 | I would like to prove myself thinking that ‘I am still okay’ while working. | 1.68 | 3 | 0.03 | 21 | −0.37 | 26 | 0.69 | 11 |
Aspect | Type 1: Recovery of Presence Through Social Reintegration Seeking | Type 2: Confusion in Social Reintegration due to Social Prejudices | Type 3: Valuing Psychosocial Support in the Social Reintegration Process | Type 4: Blessing in Disguise for Post-Traumatic Growth |
---|---|---|---|---|
Primary Motivation | Seeks presence and belonging through social reintegration, particularly work reintegration. | Wants to reintegrate but is highly affected by social prejudices and perceptions. | Prioritises psychological well-being and support throughout reintegration. | Seeks personal growth and values the cancer experience as a transformative asset. |
View on Social Reintegration | Views reintegration as a restoration of normalcy and a challenge. | Wants social belonging but feels hindered by stigma and prejudices. | Emphasises the process of reintegration, focusing on mental stability over outcomes. | Views reintegration as an opportunity to enhance personal and physical well-being. |
Concerns About Health | Fears recurrence or metastasis due to stress post-reintegration. | Worries about revealing cancer history due to fear of negative perception. | Concerned about stress affecting mental health and cancer relapse. | Believes in maintaining health proactively to support reintegration. |
Need for Support | Strongly desires institutional support for reintegration. | Values family support highly but is concerned about societal views. | Strong need for emotional and psychological support from family and friends. | Sees minimal need for societal support, focusing on self-sufficiency. |
Attitudes towards Cancer Experience | See cancer experience as a setback; seeks to ‘prove’ normalcy and capability. | Cancer experience creates concern for self-image and acceptance in society. | Sees the cancer experience as a journey requiring mental resilience and support. | Views cancer as a resource and a catalyst for positive life changes. |
Ambivalence About Social Relationships | Feels ambivalent due to health concerns but ultimately values social reintegration. | Feels torn between wanting inclusion in society and fearing societal judgment. | Values family connections but may feel independent from societal expectations. | Feels less concerned with societal acceptance; focuses on self-acceptance and growth. |
Physical | Psychology | Society (Relationships) | Economic Professional | |
---|---|---|---|---|
Type 1: Recovery of Presence Through Social Reintegration Seeking | Normal | Normal | High | High |
Type 2: Confusion in Social Reintegration due to Social Prejudices | Low | High | High | Normal |
Type 3: Valuing Psychosocial Support in the Social Reintegration Process | Low | High | Normal | Low |
Type 4: Blessing in Disguise for Post-Traumatic Growth | High | High | Normal | Normal |
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Yi, J.S.; Lee, S.Y. Social Reintegration Experiences of Young Adult Cancer Survivors. Behav. Sci. 2024, 14, 1101. https://doi.org/10.3390/bs14111101
Yi JS, Lee SY. Social Reintegration Experiences of Young Adult Cancer Survivors. Behavioral Sciences. 2024; 14(11):1101. https://doi.org/10.3390/bs14111101
Chicago/Turabian StyleYi, Ji Seong, and Song Yi Lee. 2024. "Social Reintegration Experiences of Young Adult Cancer Survivors" Behavioral Sciences 14, no. 11: 1101. https://doi.org/10.3390/bs14111101
APA StyleYi, J. S., & Lee, S. Y. (2024). Social Reintegration Experiences of Young Adult Cancer Survivors. Behavioral Sciences, 14(11), 1101. https://doi.org/10.3390/bs14111101