Illness Narrative Master Plots Following Musculoskeletal Trauma and How They Change over Time, a Secondary Analysis of Data
Abstract
:1. Introduction
2. Materials and Methods
2.1. Qualitative Approach and Research Paradigm
2.2. Researcher Characteristics
2.3. Context and Setting
2.4. Sampling and Sample Size
2.5. Ethical Approval
2.6. Data Collection Methods and Instruments
2.7. Data Analysis
2.8. Techniques to Enhance Trustworthiness
3. Results
3.1. Demographics
3.2. The Narrative Master Plots
3.2.1. The Resume Narrative Master Plot
Time Point 1
Time Point 2
Time Point 3
3.2.2. The Activity Narrative Master Plot
Time Point 1
Time Point 2
Time Point 3
3.2.3. The Quest Narrative
Time Point 1
Time Point 2
Time Point 3
3.2.4. Regressive Narratives and Moments
Time Point 1
Time Point 2
Time Point 3
4. Discussion
4.1. The Resume Narrative Master Plot
4.2. The Action Narrative
4.3. The Quest Narrative
4.4. Regressive Narrative and/or Moments
4.5. Limitations
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
- Thompson, L.; Hill, M.; Lecky, F.; Shaw, G. Defining major trauma: A Delphi study. Scand. J. Trauma Resusc. Emerg. Med. 2021, 29, 65. [Google Scholar] [CrossRef]
- Thompson, L.; Hill, M.; Shaw, G. Defining major trauma: A literature review. Br. Paramed. J. 2019, 4, 22–30. [Google Scholar] [CrossRef] [PubMed]
- Cole, E. The national major trauma system within the United Kingdom: Inclusive regionalized networks of care. Emerg. Crit. Care Med. 2022, 2, 76–79. [Google Scholar] [CrossRef]
- Schemitsch, C.; Nauth, A. Psychological factors and recovery from trauma. Injury 2020, 51 (Suppl. S2l), S64–S66. [Google Scholar] [CrossRef] [PubMed]
- Sutherland, A.G.; Alexander, D.A.; Hutchison, J.D. The Mind Does Matter: Psychological and Physical Recovery After Musculoskeletal Trauma. J. Trauma Inj. Infect. Crit. Care 2006, 61, 1408–1414. [Google Scholar] [CrossRef] [PubMed]
- Sutherland, A.G.; Suttie, S.; Alexander, D.A.; Hutchison, J.D. The mind continues to matter: Psychologic and physical recovery 5 years after musculoskeletal trauma. J. Orthop. Trauma 2011, 25, 228–232. [Google Scholar] [CrossRef] [PubMed]
- Rosenbloom, B.N.; Khan, S.; McCartney, C.; Katz, J. Systematic review of persistent pain and psychological outcomes following traumatic musculoskeletal injury. J. Pain Res. 2013, 6, 39–51. [Google Scholar] [CrossRef]
- Bridger, K.; Kellezi, B.; Kendrick, D.; Radford, K.; Timmons, S.; Rennoldson, M.; Jones, T.; Kettlewell, J.; on behalf of the ROWTATE Team. Patient Perspectives on Key Outcomes for Vocational Rehabilitation Interventions Following Traumatic Injury. Int. J. Res. Public Health 2021, 18, 2035. [Google Scholar] [CrossRef]
- Kang, K.K.; Ciminero, M.L.; Parry, J.A.; Mauffrey, C. The psychological effects of musculoskeletal trauma. J. Am. Acad. Orthop. Surg. 2021, 29, e322–e329. [Google Scholar] [CrossRef]
- Simske, N.M.; Breslin, M.A.; Hendrickson, S.B.; Vallier, H.A. Are we missing the mark? Relationships of psychosocial issues to outcomes after injury: A review of OTA annual meeting presentations. Orthop. Trauma Assoc. Int. 2020, 23, e070. [Google Scholar] [CrossRef]
- Chi-Lun-Chiao, A.; Chehata, M.; Broeker, K.; Gates, B.; Ledbetter, L.; Cook, C.; Ahern, M.; Rhon, D.I.; Garcia, A.N. Patients’ perceptions with musculoskeletal disorders regarding their experience with healthcare providers and health services: An overview of reviews. Arch. Physiother. 2020, 10, 17. [Google Scholar] [CrossRef] [PubMed] [PubMed Central]
- Robinson, L.J.; Stephens, N.M.; Wilson, S.; Graham, L.; Hackett, K.L. Conceptualizing the key components of rehabilitation following major musculoskeletal trauma: A mixed methods service evaluation. J. Eval. Clin. Pract. 2019, 26, 1436–1447. [Google Scholar] [CrossRef] [PubMed]
- Carroll, L.J.; Lis, A.; Weiser, S.; Torti, J. How Well Do You Expect to Recover, and What Does Recovery Mean, Anyway? Qualitative Study of Expectations After a Musculoskeletal Injury. Phys. Ther. 2016, 96, 797–807. [Google Scholar] [CrossRef] [PubMed]
- Norris, S.; Graham, L.; Wilkinson, L.; Savory, S.; Robinson, L. Patient perspectives of recovery following major musculoskeletal trauma: A systematic review and qualitative synthesis. Trauma 2023, 26, 210–219. [Google Scholar] [CrossRef]
- Soundy, A. Harnessing Hope in Managing Chronic Illness: A Guide to Therapeutic Rehabilitation; Routledge: London, UK, 2024. [Google Scholar]
- Frank, A. The Wounded StoryTeller; Chicago University Press: Chicago, IL, USA, 1995. [Google Scholar]
- France, E.F.; Hunt, K.; Dow, C.; Wyke, S. Do men’s and women’s account of surviving stroke conform to Frank’s narrative genres? Qual. Health Res. 2013, 23, 1649–1659. [Google Scholar] [CrossRef]
- Ekegren, C.L.; Braaf, S.; Ameratunga, S.; Ponsford, J.; Nunn, A.; Cameron, P.; Lyons, R.A.; Gabbe, B.J. Adaptation, self-motivation and support services are key to physical activity participation three to five years after major trauma: A qualitative study. J. Physiother. 2020, 66, 188–195. [Google Scholar] [CrossRef]
- O’Brien, B.C.; Harris, I.B.; Beckman, T.J.; Reed, D.A.; Cook, D.A. Standards for reporting qualitative research: A synthesis of recommendations. Acad. Med. 2014, 89, 1245–1251. [Google Scholar] [CrossRef] [PubMed]
- Middlebrook, N.; Heneghan, N.R.; Falla, D.; Silvester, L.; Rushton, A.B.; Soundy, A.A. Successful recovery following musculoskeletal trauma: Protocol for a qualitative study of patients’ and physiotherapists’ perceptions. BMC Musculoskelet. Disord. 2021, 22, 163. [Google Scholar] [CrossRef] [PubMed] [PubMed Central]
- Chatfield, S.L. Recommendations for secondary analysis of qualitative data. Qual. Rep. 2020, 25, 833–842. [Google Scholar] [CrossRef]
- Drisko, J.W. Transferability and Generalization in Qualitative Research. Res. Soc. Work. Pract. 2024. [Google Scholar] [CrossRef]
- Alawafi, R.; Rosewilliam, S.; Soundy, A. A qualitative study of illness narratives: ‘overcoming the monster’ master plot for patients with stroke. Int. J. Ther. Rehabil. 2022, 29, 1–12. [Google Scholar] [CrossRef]
- Rushton, A.B.; Evans, D.W.; Middlebrook, N.; Heneghan, N.R.; Small, C.; Lord, J.; Patel, J.M.; Falla, D. Development of a screening tool to predict the risk of chronic pain and disability following musculoskeletal trauma: Protocol for a prospective observational study in the United Kingdom. BMJ Open 2019, 8, e017876. [Google Scholar] [CrossRef] [PubMed]
- Clay, F.J.; Watson, W.L.; Newstead, S.V.; McClure, R.J. A systematic review of early prognostic factors for persistent pain following acute orthopaedic trauma. Pain Res. Manag. 2012, 17, 35–44. [Google Scholar] [CrossRef] [PubMed]
- World Health Organisation. International Classification of Functioning, Disability and Health: ICF; World Health Organization: Geneva, Switzerland, 2001. [Google Scholar]
- Earthly, S.; Cronin, A. Chapter 21 Narrative Analysis. In Researching Social Life, 3rd ed.; Gilbert, N., Ed.; Sage: London, UK, 2008. [Google Scholar]
- Andrews, M. Quality indicators in narrative research. Qual. Res. Psychol. 2021, 18, 353–368. [Google Scholar] [CrossRef]
- Blackburn, J.; Yeowell, G. Patients’ perceptions of rehabilitation in the community following hip fracture surgery. A qualitative thematic synthesis, Physiotherapy 2020, 108, 63–75. [Google Scholar] [PubMed]
- Ogilvie, R.; McCloughen, A.; Curtis, K.; Foster, K. The experience of surviving life-threatening injury: A qualitative synthesis. Int. Nurs. Rev. 2012, 59, 312–320. [Google Scholar] [CrossRef]
- Soundy, A.; Smith, B.; Cressy, F.; Webb, L. The experience of spinal cord injury: Using Frank’s narrative types to enhance physiotherapy undergraduates’ understanding. Physiotherapy 2010, 96, 52–58. [Google Scholar] [CrossRef]
- Brokerhof, I.M.; Ybema, J.F.; Bal, P.M. Illness narratives and chronic patients’ sustainable employability: The impact of positive work stories. PLoS ONE 2020, 15, e0228581. [Google Scholar] [CrossRef] [PubMed] [PubMed Central]
- Bryne, C.; Soundy, A. The effects of storytelling in the promotion of physical activity for chronically ill patients: An integrative review. Int. J. Ther. Rehabil. 2020, 27, 1–13. [Google Scholar] [CrossRef]
- Claydon, J.H.; Robinson, L.; Aldridge, S.E. Patients’ perceptions of repair, rehabilitation and recovery after major orthopaedic trauma: A qualitative study. Physiotherapy 2017, 103, 322–329. [Google Scholar] [CrossRef]
- Silvester, L.A.; Trompeter, A.J.; Hing, C.B. Patient experiences of rehabilitation following traumatic complex musculoskeletal injury—A mixed methods pilot study. Trauma 2021, 24, 218–225. [Google Scholar] [CrossRef]
- Blake, J.; Leppma, M.; Mamboleo, G.; Nauser, J.; O’Toole, H.; Chan, F. Attachment and hope as a framework for improving depression outcomes for trauma patients. J. Appl. Rehabil. Couns. 2020, 51, 94–114. [Google Scholar] [CrossRef]
- Corrigan, J.A.; Schutte, N.S. The relationships between the hope dimensions of agency thinkings and pathways thinking with depression and anxiety: A meta-analysis. Int. J. Appl. Posit. Psychol. 2023, 8, 211–255. [Google Scholar] [CrossRef]
- Zapata, M.A. Disability affirmation and acceptance predict hope among adults with physical disabilities. Rehabil. Psychol. 2020, 65, 291–298. [Google Scholar] [CrossRef]
- Whitehead, L.C. Quest, chaos and restitution: Living with chronic fatigue syndrome/myalgic encephalomyelitis. Soc. Sci. Med. 2006, 62, 2236–2245. [Google Scholar] [CrossRef]
Participant ID | Gender | Age | Fracture | Single Fracture or Multiple Fracture | Soft Tissue Injury | Further Detail | ISS Score | ISS Mild/Mod/Severe |
---|---|---|---|---|---|---|---|---|
1 | Male | 34 | Yes | Multiple | Y | 1. Closed Right Femoral Fracture 2. Closed left tibial fracture 3. Left foot injury 4. Right supraorbital laceration 5. Hand Injury | 10 | Moderate |
4 | Female | 35 | Yes | Single | N | 1. Left diaphyseal femoral shaft fracture | 9 | Moderate |
7 | Male | 57 | Yes | Single | N | 1. Proximal tibial fracture 2. Through knee amputation | 16 | Major |
8 | Male | 59 | Yes | Single | Y | 1. Right open elbow dislocation 2. Laceration of brachial artery 3. Distal radius fracture | 9 | Moderate |
10 | Male | 44 | Yes | Multiple | N | 1. Bilateral shoulder dislocation 2. Right shoulder fracture with TSR 3. Left femoral fracture | 9 | Moderate |
12 | Male | 80 | Yes | Multiple | Y | 1. Left hip dislocation 2. Left acetabular dislocation 3. Left distal humerus fracture 4. Left olecranon fracture 5. Left 5th rib fracture 6. Left knee laceration 7. Left grade 3 PCL/MCL injury | 5 | Mild |
14 | Female | 73 | Yes | Multiple | N | 1. Left tibial plateau fracture 2. Fractured ribs | 8 | Mild |
15 | Male | 36 | Yes | Multiple | Y | 1. Right and left medial malleolus fracture 2. Left open calcaneus fracture 3. Left tibial lacertation 4. Elbow injury | 9 | Moderate |
17 | Male | 60 | Yes | Multiple | N | 1. Left rib fracture 2. Left clavicle fracture 3. T11 and L1 fracture | 9 | Moderate |
18 | Female | 20 | Yes | Single | N | 1. Right femoral shaft fracture 2. Knee ligament injury | 9 | Moderate |
20 | Male | 57 | Yes | Multiple | N | 1. Right scapula fracture 2. Left comminuted tibia 3. Fibula fracture | 4 | Mild |
24 | Female | 44 | Yes | Multiple | N | 1. Right acetabulum 2. Right hip dislocation 3. Left tibial plateau 4. Right rib fracture 9–12 posterior 5. Right transverse process lumbar spine | 17 | Major |
Narrative Master Plot | Time Point | Example Quotes |
---|---|---|
Resumption | 1 | ‘a couple of weeks [time]… if I can walk before Christmas I’ll be laughing”. (P1) “I just know it’s going to take a while, but, like, I’ll be back good as new at some point” (P4) “I want to get back on a prosthetic and I want to be walking, I want to be everybody else’s height or whatever height I was” (P7) |
2 | “[I am at present] about 80% function may be now, and I’m hoping to get back to 90%” (P24) “people that have been told they are never going to walk again. Next thing they’re winning an Olympic gold medal”. (P1) “[I have watched] above knee people… and I think… if they can do that… ride a bike, ride a motorbike, climb mountains [I can]”. (P7) | |
3 | “I was going to be okay by Christmas. It’s now been a year. I’m obviously still not okay. So, that’s probably the biggest wakeup. So, I’ve times that by about 10 [years]”. (P4) “could see [from the scan] that the other leg was just as bad as that one. So, it looks like a minefield of bones” (P14) | |
Action | 1 | “I have been back in to see the consultant this week, on Tuesday, but again, I had to do that myself and get myself in the car. We had to drag me into the car and drive me to [hospital location]”. (P24) “[I] did my stairs, and then got a wheelchair back. So that was… Thursday was my turning point; my good day” (P24) stating “[I] did my stairs, and then got a wheelchair back. So that was… Thursday was my turning point; my good day”. (P18) |
2 | states “woke up one morning and the ribs were fine… so I thought well, I’m not in pain now”. (P17) I’ve had a few incidents of crying in the car and things, especially if the kids have been fighting and I haven’t felt just safe” (P24) | |
3 | “I’ll practice that more and more and more. I know it takes time, but it does seem to work” (P14) “can be a bit psychologically difficult to deal with because you’re sort of asking yourself, is this something I’m going to have to keep forever?” (P24) | |
Quest | 1 | “other people might think of me as disabled. I think I’m extremely able. Yeah. It’s a matter of attitude, isn’t it?”. (P14) “I am aware that that is maybe not possible, but I’m trying to sort of keep quite a neutral mindset, not worry one way or the other because I don’t think that that’s helpful”. (P10) “I just feel lucky to be alive you know and its completely changed my life, my attitude, you know I just want to look after myself more. I’ve lost, my weight is down, I’ve never been so… my weight has never been so low”. (P20) |
2 | “in my mind I was going this way, my accident made me go this way [a different way], but I still want to keep on going forward but just on a different way” (P1) “now I have to plan everything and plan my food, my weekly intake of food… its been hard adjusting to all that sort of thing”. (P15) | |
3 | “She [health care professional] said to me jokingly, she goes, look, you’ve got to realise that that’s not your own leg, it’s a prosthetic leg… I needed someone to tell me that because sort of like, the way things were going, it was like, everybody was saying, yeah, it will be good as new”. (P7) my arm… I’ve lost all muscle in it… but it will be alright… I’m a bit restricted with that but at least I can get about” (P12) | |
Regressive | 1 | |
2 | “[I] try to keep some positive thoughts about it [recovery]. At the same time… I do get thoughts of like I’m not going to be to walk again. Is my foot ever going to get better or will it need an amputation in the years ahead”. (P15) | |
3 | “I feel as though if I sat down and dwelled in all it, it’s just going to make it worse”. (P1) “I really started to do really well with my initial recovery, then I just kind of like plateaued, almost went backwards. That was really hard”. (P4) “it’s sort of comeback worse I suppose. I thought I was over the hump and more accepting and that’s difficult now because I think the realisation, the reality is that we’re pretty much as good as it will get. And in some ways, it’s like worse. My back is really painful”. (P8) |
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Soundy, A.; Moffatt, M.; Yip, N.M.; Heneghan, N.; Rushton, A.; Falla, D.; Silvester, L.; Middlebrook, N. Illness Narrative Master Plots Following Musculoskeletal Trauma and How They Change over Time, a Secondary Analysis of Data. Behav. Sci. 2024, 14, 1112. https://doi.org/10.3390/bs14111112
Soundy A, Moffatt M, Yip NM, Heneghan N, Rushton A, Falla D, Silvester L, Middlebrook N. Illness Narrative Master Plots Following Musculoskeletal Trauma and How They Change over Time, a Secondary Analysis of Data. Behavioral Sciences. 2024; 14(11):1112. https://doi.org/10.3390/bs14111112
Chicago/Turabian StyleSoundy, Andrew, Maria Moffatt, Nga Man (Nicole) Yip, Nicola Heneghan, Alison Rushton, Deborah Falla, Lucy Silvester, and Nicola Middlebrook. 2024. "Illness Narrative Master Plots Following Musculoskeletal Trauma and How They Change over Time, a Secondary Analysis of Data" Behavioral Sciences 14, no. 11: 1112. https://doi.org/10.3390/bs14111112
APA StyleSoundy, A., Moffatt, M., Yip, N. M., Heneghan, N., Rushton, A., Falla, D., Silvester, L., & Middlebrook, N. (2024). Illness Narrative Master Plots Following Musculoskeletal Trauma and How They Change over Time, a Secondary Analysis of Data. Behavioral Sciences, 14(11), 1112. https://doi.org/10.3390/bs14111112