Psychosocial Care and Support in Dementia

A special issue of Behavioral Sciences (ISSN 2076-328X). This special issue belongs to the section "Health Psychology".

Deadline for manuscript submissions: 15 April 2025 | Viewed by 1279

Special Issue Editors


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Guest Editor
1. Department of Psychiatry and Neuropsychology and Alzheimer Centrum Limburg, Maastricht University, 6229 ET Maastricht, The Netherlands
2. Department of Clinical Neuroscience, Karolinska Institutet, 171 77 Solna, Sweden
Interests: mild cognitive impairment; Alzheimer's disease; dementia; neuropsychology; caregiving; eHealth; pain management; interventions; affect; experience sampling method

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Guest Editor
Institute of Mental Health, University of Nottingham, Nottingham NG7 2RD, UK
Interests: dementia; ageing; mental health; eHealth interventions

Special Issue Information

Dear Colleagues,

According to the World Health Organization, more than 55 million people are currently living with dementia worldwide. Dementia is a major cause of disability and dependency, resulting in high economical costs (i.e., 1.3 trillion US dollars globally, 2019), with 50% of these care costs being attributable to care provided by informal caregivers (e.g., partners, family members, and close friends). Psychosocial care and support can help people with dementia and informal caregivers adjust to the diagnosis, develop coping skills, and maintain independence and wellbeing. Therefore, psychosocial care and support are essential for both the person with dementia and informal caregivers.

In recent years, the research field of psychosocial care and support for dementia has rapidly expanded. There is growing interest in aspects such as (1) social health and inclusion; (2) resilience and coping; (3) technology use and digital interventions; (4) inequity and inequality in access to care and support; and (5) novel methodological approaches. Given the importance of these topics, more studies are being conducted in this area. This Special Issue focuses on the development, evaluation, and/or implementation of psychosocial care and support in dementia to advance research, practice, and policy. We welcome reviews and original research articles focusing on these topics targeting any dementia types, stages, and care settings.

Dr. Sara Laureen Bartels
Dr. Esther Loseto-Gerritzen
Guest Editors

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Keywords

  • dementia
  • Alzheimer’s disease
  • young-onset dementia
  • caregiving
  • social health
  • inclusion
  • resilience
  • coping
  • technology
  • eHealth
  • inequality
  • inequity
  • minority
  • methodology
  • intervention
  • psychosocial
  • development
  • evaluation
  • implementation
  • sustainability

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Published Papers (1 paper)

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Research

15 pages, 526 KiB  
Article
Development of a Best Practice Guidance on Online Peer Support for People with Young-Onset Dementia
by Esther Vera Loseto-Gerritzen, Orii McDermott and Martin Orrell
Behav. Sci. 2024, 14(9), 746; https://doi.org/10.3390/bs14090746 - 26 Aug 2024
Viewed by 731
Abstract
This work aimed to develop a Best Practice Guidance on online peer support for people with young-onset dementia (YOD). The Best Practice Guidance was developed through a systematic literature review, focus groups, an online survey, and interviews and consultations with people with YOD [...] Read more.
This work aimed to develop a Best Practice Guidance on online peer support for people with young-onset dementia (YOD). The Best Practice Guidance was developed through a systematic literature review, focus groups, an online survey, and interviews and consultations with people with YOD and professionals. The Best Practice Guidance consists of two parts. Part 1 contains information for people with YOD about what online peer support entails, what to expect from it, and how to get involved. Part 2 is aimed at those who facilitate or moderate online peer support (professionals or people with lived experience) and includes guidelines on how to optimize online peer support for people with YOD. The Best Practice Guidance on online peer support provides (1) people with YOD with evidence-based, relevant, and accessible information about what online peer support entails and how it could help them, (2) providers and facilitators with guidelines on how to optimize online peer support for people with YOD, and (3) healthcare professionals with a concise and accessible tool for signposting. Future research is needed to implement and disseminate the Best Practice Guidance among dementia organizations and healthcare practices and should include rigorous studies on the implementation and sustainability of online peer support for people with YOD. Full article
(This article belongs to the Special Issue Psychosocial Care and Support in Dementia)
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