First Contact Behavioural Interventions for People with Chronic or Palliative Illnesses

A special issue of Behavioral Sciences (ISSN 2076-328X).

Deadline for manuscript submissions: closed (30 April 2020) | Viewed by 5716

Special Issue Editors


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Guest Editor
School of Sport, Exercise and Rehabilitation Sciences, University of Birmingham, Edgbaston, Birmingham B15 2TT, UK
Interests: psychosocial adaptation; hope; mental well-being; narrative; storytelling; behavioural interventions; chronic illness; pain; qualitative research
Special Issues, Collections and Topics in MDPI journals
Therapy Services, Queen Elizabeth Hospital Birmingham, University Hospitals Birmingham, NHS Foundation Trust, Mindelsohn Way, Queen Elizabeth Medical Centre, Edgbaston, Birmingham, B15 2PR, UK
Interests: oncology; speech and language therapy; quality of life; Q methodology; narratives; patient experience; clinical supervision
NICM Health Research Institute, Western Sydney University, Westmead, NSW 2145, Australia
Interests: health behaviour change; digital health; physical-mental comorbidities; physical activity; nutrition; co-design and service user involvement
Special Issues, Collections and Topics in MDPI journals

Special Issue Information

Dear Colleagues,

The aim of this Special Issue is to identify novel approaches that provide conditions for lasting behaviour change in people who are easily overlooked. Our hope is that this Special Issue can challenge current thinking linked to the explanation of behaviour change for people with chronic or palliative illnesses who are not represented well by the existing body of research.

Summary of Issue

People may choose to opt out of or are unable to undertake actions that lead to positive behaviour change. There can be many reasons for this, including individuals not being listened to, finding it difficult to adapt to something that has happened, not seeing the relevance, being frightened of the changes that might occur, or not feeling supported to change.

This Special Issue is aimed at identifying interventions that create positive conditions for behaviour change and mental well-being in people with chronic or palliative illness that may not respond to traditional behavioural interventions. The purpose of this work is to ask the following question: ‘what globally is being done to create good psychosocial and environmental conditions that might enable hard-to-reach groups to change their behavioural response?’ The intention is to describe how interventions may create platforms from which people are inspired to change their behaviour. The idea of this Special Issue is to move away from interventions that make small steps forward for a larger picture on physical activity, towards interventions that can change current practice and offer alternative suggestions. The work should be aimed at challenging traditional approaches. The issue aspires to present work that is both broad and novel and that might positively influence the internal and behavioural responses of different population groups. A place from which the first steps created by an intervention can be built upon. Examples that would be relevant include, but are not limited to:

  • Interventions that impact on isolation and dependency and show a link or association to more positive behaviours and improvement in mental health. For instance, a review by Kate and Andy has illustrated the impact of a storytelling intervention on an individual’s emotional well-being.
  • Interventions that aim to create a lasting impact aside from a set amount of physical activity achieved within a limited time frame. For instance, peer-led approaches may represent a cost-effective way to increase physical activity.
  • Interventions that can identify changes in the co-variates of physical activity in individuals newly diagnosed. For example, Andy is involved in work that partners across Europe with people newly diagnosed with Parkinson’s disease who are given an opportunity to experience a novel behavioural-based intervention with storytelling. This work illustrated how both internal and social support mechanisms can promote mental well-being and have some positive impact on behaviour change.

Please note:

We are less interested in the amount of behaviour change and more interested in the possible explanation of why change is occurring and identifying the conditions needed for lasting change to be established. We are happy for different methodologies to be employed and for any long-term or palliative condition to be the focus. We will consider interventions that are aimed at professionals, carers, or people with a chronic or palliative illness.

Dr. Andrew Soundy
Dr. Kate Reid
Dr. Joe Firth
Guest Editors

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Keywords

  • behaviour change
  • behavioural approaches
  • psychosocial
  • environmental
  • physical activity
  • storytelling
  • chronic or palliative illness
  • hard-to-reach groups
  • qualitative, quantitative, and mixed methods

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Published Papers (1 paper)

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Research

14 pages, 247 KiB  
Article
A Qualitative Study on the Impact of First Steps—A Peer-led Educational Intervention for People Newly Diagnosed with Parkinson’s Disease
by Andrew Soundy, Johnny Collett, Sophie Lawrie, Shelly Coe, Helen Roberts, Michele Hu, Sally Bromley, Peter Harling, Alex Reed, Jan Coeberg, Camille Carroll and Helen Dawes
Behav. Sci. 2019, 9(10), 107; https://doi.org/10.3390/bs9100107 - 10 Oct 2019
Cited by 14 | Viewed by 5003
Abstract
Aim: The dual aim of this research was to consider the impact of providing the First Steps program on the stories of people with Parkinson’s Disease (PD) and to investigate the psychosocial and emotional mechanisms which may explain this impact. Methods: A [...] Read more.
Aim: The dual aim of this research was to consider the impact of providing the First Steps program on the stories of people with Parkinson’s Disease (PD) and to investigate the psychosocial and emotional mechanisms which may explain this impact. Methods: A qualitative study using a subtle realist paradigm and hermeneutic phenomenological methodology was undertaken. A single semi-structured interview was used to consider the impact and experiences of people with PD who completed either the intervention (2-day peer-led behavior intervention using storytelling 6–8 weeks apart) or received telephone support calls as part of the active control group. Descriptive statistics and a narrative analysis were undertaken on the results. Results: Forty-two participants were invited to participate, forty of whom completed the interview. This included 18 from the intervention group and 22 from the active control group. The intervention group identified the value of the program as worth-while, demonstrating improved exercise behavior and coping mechanisms following the intervention. Three major stories (the affirmed, the validated and the transformed story) identified the impact of the intervention. Three internal mechanisms (perceived control, hope and action, and the individual’s mind set) alongside three social mechanisms (social comparison, social control and the first opportunity to share with peers) appeared to explain this impact. Conclusion: This study provides exciting and novel evidence of the impact of a peer-led psycho-educational intervention for people newly diagnosed with PD. Further research is needed to consider the impact of stories-based approaches on participants and consider a critical evaluation of the mechanisms which may explain changes in stories and self-reported behaviour. Full article
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